Abstracts tagged "Quality of life and systemic sclerosis"

Abstract Number: 739 • 2017 ACR/ARHP Annual Meeting
How Effective Is the Home Exercise Program for Hands in Patients with Systemic Sclerosis: Preliminary Results from a Randomized Controlled, Single-Blind, Clinical Trial
Neslihan Gokcen¹, Suade Ozlem Badak², Tunay Sarpel³, Yasar Sertdemir⁴ and Eren Erken², ¹Physical Medicine and Rehabilitation, Division of Rheumatology, Cukurova University School of Medicine, Adana, Turkey, ²Internal Medicine, Division of Rheumatology, Cukurova University School of Medicine, Adana, Turkey, ³Physical Medicine and Rehabilitation, Cukurova University School of Medicine, Adana, Turkey, ⁴Department of Biostatistics and Medical Informatics, Cukurova University School of Medicine, Adana, Turkey
Background/Purpose: Systemic sclerosis (SSc) represents a heterogeneous autoimmune disease characterized by fibrosis of skin and internal organs. In particular, thickening of the skin, puffy hands,…
Abstract Number: 2697 • 2017 ACR/ARHP Annual Meeting
Systemic Sclerosis Quality of Life Questionnaire (SScQoL) Captures the Complex Problems Experienced By Patients with Scleroderma
Matylda Sierakowska¹, Stanislaw Sierakowski², Marzena Olesinska³, Marek Brzosko⁴, Piotr Leszczynski⁵, Katarzyna Pawlak-Bus⁵, Bogdan Batko⁶, Piotr Wiland⁷, Maria Majdan⁸, Malgorzata Bykowska-Sochacka⁹, Wojciech Romanowski¹⁰, Aleksandra Zon-Giebel¹¹, Slawomir Jeka¹² and Mwidimi Ndosi¹³, ¹Department of Integrated Medical Care, Medical University of Bialystok, Bialystok, Poland, ²Department of Rheumatology and Internal Diseases, Medical University of Bialystok, Poland, Bialystok, Poland, ³Department of Connective Tissue Disease, National Institute of Geriatrics, Rheumatology and Rehabilitation,, Warsaw, Poland, ⁴Department of Rheumatology and Internal Diseases, Pomeranian Medical University, Szczecin, Poland, ⁵Department of Rheumatology and Rehabilitation, Medical University in Poznan, Poznan, Poland, ⁶Center of Rheumatology, J. Dietl Hospital in Krakow, Krakow, Poland, ⁷Department and Clinic of Rheumatology and Internal Medicine, Medical University, Wroclaw, Poland, ⁸Department of Rheumatology and Connective Tissue Diseases, Medical University in Lublin, Lublin, Poland, ⁹Dr J. Titz-Kosko Regional Hospital for Rheumatic Diseases in Sopot, Sopot, Poland, ¹⁰Poznan Centre of Rheumatology in Srem, Srem, Poland, ¹¹Silesian Center of Rheumatology, Rehabilitation and Prevention of Disability, Ustron, Poland, ¹²2nd University Hospital, CM UMK, Department of Rheumatology and Connective Tissue Diseases,, Bydgoszcz, Poland, ¹³Department of Nursing and Midwifery, University of the West of England, Bristol, United Kingdom
Background/Purpose: Systemic sclerosis (SSc) is a chronic rheumatic disease that disturbs the patients’ biological, social, emotional spiritual, and physical functioning; resulting in reduced quality of…
Abstract Number: 3249 • 2016 ACR/ARHP Annual Meeting
Improvement in Cough and Cough-Related Quality of Life in Participants Undergoing Treatment for Systemic Sclerosis-Related Interstitial Lung Disease
Elizabeth R. Volkmann¹, Dinesh Khanna², Chi-hong Tseng³, Robert Elashoff⁴, Bingling Wang⁵, Michael Roth³, Philip J. Clements³, Daniel E. Furst¹, Arthur Theodore⁶ and Donald P. Tashkin⁷, ¹University of California, Los Angeles, David Geffen School of Medicine, Los Angeles, CA, ²University of Michigan, Ann Arbor, MI, ³Medicine, University of California, Los Angeles, David Geffen School of Medicine, Los Angeles, CA, ⁴Biomathematics, University of California, Los Angeles, Los Angeles, CA, ⁵Biostatistics, University of California, Los Angeles, Los Angeles, CA, ⁶Medicine, Boston University, Boston, MA, ⁷David Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA
Background/Purpose: While chronic cough occurs in the majority of patients with systemic sclerosis-related interstitial lung disease (SSc-ILD),1 its impact on quality of life has not…
Abstract Number: 453 • 2016 ACR/ARHP Annual Meeting
Adaptation and Validation the Systemic Sclerosis Quality of Life Questionnaire into Spanish Using Rasch Analysis
Mwidimi Ndosi¹, Silvia Garcia-Diaz², Begonya Alcacer-Pitarch³, Francesco Del Galdo⁴, Vicenç Torrente-Segarra² and Anthony C. Redmond⁴, ¹Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom, ²Rheumatology, Hospital Sant Joan Despí Moisès Broggi-CSI-, Barcelona, Spain, ³Leeds Institute of Rheumatic and Musculoskeletal medicine, University of Leeds, Leeds, United Kingdom, ⁴Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom
Background/Purpose: Systemic Sclerosis (SSc) represents a group of heterogeneous autoimmune disorders of connective tissue characterized by progressive fibrosis of the skin and internal organs [1].…
Abstract Number: 2899 • 2016 ACR/ARHP Annual Meeting
Impact of the Clinical Characteristics of Systemic Sclerosis in Patients Quality of Life
Joana Caetano¹, Luis Melo¹, Susana Oliveira¹ and Jose Delgado Alves^1,2, ¹Department of Medicine IV, Systemic Immunomediated Diseases Unit, Fernando Fonseca Hospital, Amadora, Portugal, ²CEDOC/NOVA Medical School, Lisbon, Portugal
Background/Purpose: Systemic sclerosis (SSc) is a rare heterogenic disease, with visceral, skin and vascular damage associated with a reduced life expectancy, disability and worsening of…
Abstract Number: 838 • 2015 ACR/ARHP Annual Meeting
Impaired Quality of Life in Systemic Sclerosis and Patient Perception of the Disease: A Large International Survey
Camelia Frantz¹, Jerome Avouac¹, Oliver Distler², Fazia Amrouche¹, Dominique Godard³, Ann Kennedy⁴, John Varga⁵, Marco Matucci-Cerinic⁶ and Yannick Allanore⁷, ¹Paris Descartes University, Rheumatology A department, Cochin Hospital, Paris, France, ²Division of Rheumatology, University Hospital And Eular Scleroderma Trials And Research (EUSTAR) Board, Zurich, Switzerland, ³Association des Sclérodermie de France, Auxerre, France, ⁴Federation of European Scleroderma Associations (FESCA), Tournai, Belgium, ⁵Division of Rheumatology, Northwestern University, Feinberg School of Medicine, Chicago, IL, ⁶Rheumatology Department, University of Florence And World Scleroderma Foundation, Florence, Italy, ⁷Paris Descartes University, Rheumatology A department, Cochin Hospital, And Eular Scleroderma Trials And Research (EUSTAR) Board, Paris, France
Background/Purpose: Systemic sclerosis (SSc) is recognized as one of the most fatal rheumatic diseases, but it also promotes many detrimental effects on health-related quality of…
Abstract Number: 852 • 2015 ACR/ARHP Annual Meeting
Health-Related Quality of Life in Early Systemic Sclerosis
Marie Hudson¹, Murray Baron², Mianbo Wang³, Candice Rabusa⁴, Susanna Proudman⁵, Mandana Nikpour⁶, Wendy Stevens⁴ and Canadian Scleroderma Research Group (CSRG), Australian Scleroderma Cohort Study (ASCS), ¹McGill University, Jewish General Hospital, Montreal, QC, Canada, ²Jewish General Hospital, Lady Davis Institute and McGill University, Montreal, QC, Canada, ³Lady Davis Institute for Medical Research, Montreal, QC, Canada, ⁴Rheumatology, St. Vincent’s Hospital, Melbourne, Australia, ⁵Rheumatology Unit, Royal Adelaide Hospital North Terrace, Adelaide, Australia, ⁶University of Melbourne Department of Medicine, Melbourne, Australia
Background/Purpose: Health-related quality of life (HRQoL) research is a priority in systemic sclerosis (SSc). Yet, much of the data comes from prevalent cohorts with established…

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