Abstracts tagged "Quality of life and systemic lupus erythematosus (SLE)"

Abstract Number: 844 • 2013 ACR/ARHP Annual Meeting
Level and Determinants Of Health Related Quality Of Life In Childhood-Onset Systemic Lupus Erythematosus
Jordan T. Jones¹, Shannen L. Nelson², Janet Wootton³, Brianna Liberio⁴, Alexandria J. Greenler⁵, Jennifer L. Huggins¹, Laura E. Schanberg⁶ and Hermine Brunner¹, ¹Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, ³Pediatric Rheumatology, Duke University Medical Center, Durham, NC, ⁴University of Cincinnati College of Medicine, Cincinnati, OH, ⁵Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶Pediatrics, Duke University Medical Center, Durham, NC
Background/Purpose: Childhood-onset lupus (cSLE) is a chronic autoimmune disease and its effect on health-related quality of life (HRQoL) has not been systematically established, nor does…
Abstract Number: 2425 • 2012 ACR/ARHP Annual Meeting
A Qualitative Study of Self-Image and Body Image in Individuals with Systemic Lupus Erythematosus
Afton L. Hassett¹, Diane C. Radvanski² and Elizabeth Hale³, ¹Anesthesiology, University of Michigan, Ann Arbor, MI, ²Department of Medicine, Division of Rheumatology, Robert Wood Johnson Medical School, New Brunswick, NJ, ³Department of Rheumatology, Dudley Group NHS Foundation Trust, Dudley, United Kingdom
Background/Purpose: Symptoms and treatment related to SLE are often outwardly evident. Patients with SLE cope with such external manifestations as joint swelling, rashes, scarring, loss…
Abstract Number: 2236 • 2012 ACR/ARHP Annual Meeting
Cross Cultural Validation of English and French Versions of a Disease Specific Patient Reported Outcome Measure for Lupus in Canada
Josiane Bourré-Tessier¹, Ann E. Clarke², Rachel A. Mikolaitis³, Mark Kosinski⁴, Sasha Bernatsky⁵, Joel A. Block³ and Meenakshi Jolly⁶, ¹Rheumatology, McGill University, Montréal, QC, Canada, ²Clinical Epidemiology, McGill University, Montreal, QC, Canada, ³Section of Rheumatology, Rush University Medical Center, Chicago, IL, ⁴QualityMetric Inc, Lincoln, RI, ⁵McGill University, Montreal, QC, Canada, ⁶Rheumatology, Rush University Medical Center, Chicago, IL
Background/Purpose: The LupusPRO, a disease targeted Patient Reported Outcome measure, was developed and validated in US patients with Systemic Lupus Erythematosus (SLE). We aimed to…
Abstract Number: 1394 • 2012 ACR/ARHP Annual Meeting
Health Status Burden and Impact of Fatigue On Patient Functioning in SLE Patients From a Phase 1b Study
Michelle Petri¹, Ariane K. Kawata², Ancilla W. Fernandes³, Kavita Gajria⁴, Warren Greth⁵ and Asha Hareendran⁶, ¹Johns Hopkins University School of Medicine, Baltimore, MD, ²United Biosource Corporation, Bethesda, MD, ³MedImmune, LLC, Gaithersburg, MD, ⁴MedImmune LLC, Gaithersburg, MD, ⁵Clinical Development, MedImmune, LLC, Gaithersburg, MD, ⁶United Biosource Corporation, London, MD, United Kingdom
Background/Purpose: Systemic Lupus Erythematosus (SLE) has a significant impact on patient's quality of life. Fatigue is the most common symptom of SLE and affects between…
Abstract Number: 946 • 2012 ACR/ARHP Annual Meeting
Self-Reported Disease Activity and Health-Related Quality of Life in a Longitudinal Cohort of Patients with Systemic Lupus Erythematosus
Siva Narayanan¹, Ellen Sulcs², Alan Oglesby³, Cindy Garris⁴ and Mechele Lee², ¹Global Health Economics and Outcomes Research and Epidemiology, Human Genome Sciences, Inc., Rockville, MD, ²Healthcare Research, Harris Interactive Inc., Rochester, NY, ³GlaxoSmithKline, Research Triangle Park, NC, ⁴US Health Outcomes, GlaxoSmithKline R&D, Research Triangle Park, NC
Background/Purpose: Systemic lupus erythematosus (SLE) is a complex, multisystem autoimmune disease with variable clinical manifestations and an unpredictable waxing and waning disease course impacting patient…
Abstract Number: 646 • 2012 ACR/ARHP Annual Meeting
Comparison of the Lupusqol and SF-36 Scores As Valid Measures of Change in Health Related Quality of Life
Zahi Touma¹, Murray B. Urowitz², Dominique Ibanez², Shahrzad Taghavi-Zadeh³ and D. D. Gladman³, ¹Rheumatology, University of Toronto, Toronto Western Hospital, Toronto, ON, Canada, ²Division of Rheumatology, University of Toronto, Toronto Western Hospital, Toronto, ON, Canada, ³Division of Rheumatology, Toronto Western Hospital and University of Toronto, Toronto, ON, Canada
Background/Purpose: The LupusQoL questionnaire is a disease-specific instrument for adults with lupus while the short form-36 (SF-36) is a generic questionnaire. We aimed to compare…
Abstract Number: 294 • 2012 ACR/ARHP Annual Meeting
Effects of Obesity On Health-Related Quality of Life in Childhood-Onset Systemic Lupus Erythematosus
Rina Mina¹, Marisa S. Klein-Gitelman², Shannen Nelson³, Lori B. Tucker⁴, B. Anne Eberhard⁵, Nora G. Singer⁶, Deborah M. Levy⁷, Kathleen A. Haines⁸, Karen Onel⁹, Marilynn G. Punaro¹⁰, Kathleen M. O'Neil¹¹, Michael Henrickson¹², Jun Ying¹³ and Hermine Brunner¹⁴, ¹Rheumatology, Cincinnati Children's Hospital Medical Center/ University of Cincinnati, Cincinnati, OH, ²Division of Rheumatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, ³Rheumatology, Cincinnati Children's Hospital, Cincinnati, OH, ⁴Pediatric Rheum/Rm K4-120, BC Childrens Hospital, Vancouver, BC, Canada, ⁵Cohen Children's Hospital Medical Center, New Hyde Park, NY, ⁶Medicine, Division of Rheumatology, MetroHealth Medical Center, Cleveland, OH, ⁷Rheumatology, The Hospital for Sick Children and University of Toronto, Toronto, ON, Canada, ⁸Department of Pediatrics, Joseph M Sanzari Children’s Hospital, Hackensack University Medical Center, Hackensack, NJ, ⁹Pediatric Rheumatology, University of Chicago, Chicago, IL, ¹⁰Pediatric Rheumatology, Texas Scottish Rite Hospital, Dallas, TX, ¹¹Pediatric Rheumatology, Riley Hospital for Children, Indianapolis, IN, ¹²MLC 4010, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ¹³Medicine-Internal Medicine-General Medicine, University of Cincinnati, Cincinnati, OH, ¹⁴Cincinnati Children's Hospital, Cincinnati, OH
Background/Purpose: Obesity in adults with Systemic Lupus Erythematosus (SLE) is associated with an added risk of cardiovascular disease, decreased health-related quality of life (HRQOL), and…

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