Abstracts tagged "qualitative"

Abstract Number: 890 • 2016 ACR/ARHP Annual Meeting
Health-Related Domains of Importance to Patients with Takayasu’s Arteritis
Antoine G. Sreih¹, Fatma Alibaz-Oner², Ebony Easley³, Trocon Davis³, Gonca Mumcu⁴, Nataliya Milman⁵, Joanna C. Robson⁶, Peter F. Cronholm³, Haner Direskeneli⁷ and Peter A. Merkel⁸, ¹Rheumatology, The University of Pennsylvania, Philadelphia, PA, ²Department of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey, ³Department of Family Medicine and Community Health, The University of Pennsylvania, Philadelphia, PA, ⁴Department of Health Management, Marmara University, Faculty of Health Sciences, Istanbul, Turkey, ⁵Department of Medicine, University of Ottawa, Ottawa, ON, Canada, ⁶Faculty of Health and Applied Science, University of the West of England, Bristol, United Kingdom, ⁷Rheumatology, Marmara University, School of Medicine, Istanbul, Turkey, ⁸Division of Rheumatology, Univ of Pennsylvania; Perelman School of Med, Philadelphia, PA
Background/Purpose: The need to include patients’ perspectives as key outcomes in clinical research is now widely recognized. This project was designed to describe the experience…
Abstract Number: 1200 • 2015 ACR/ARHP Annual Meeting
Use of Focus Groups and Patient Partners to Revise an Internet Self-Management Program
Sharon Newbill¹, Dinesh Khanna², Jennifer Serrano³, Josephine Battyany⁴, Dana Rosson⁵, Cynthia Maxwell⁶, Mary Alore⁷, Laura Dyas⁸, Saville Kellner⁹, Luke Evnin¹⁰, Dennis Raisch¹¹, Richard Silver¹² and Janet L. Poole¹³, ¹University of New Mexico, Albuquerque, NM, ²Division of Rheumatology, University of Michigan, Ann Arbor, MI, ³University of Michigan, Ann Arbor, MI, ⁴Scleroderma Foundation Southern California, Culver City, CA, ⁵Medical University of South Carolina, Charleston, SC, ⁶Patient Partner, Charleston, SC, ⁷Patient Partner, Shelby Township, MI, ⁸Scleroderma Foundation Michigan Chapter, Southfield, MI, ⁹Scleroderma Research Foundation, Henderson, NV, ¹⁰Scleroderma Research Foundation, San Francisco, CA, ¹¹College of Pharmacy, University of New Mexico, Albuquerque, NM, ¹²Division of Rheumatology and Immunology, Medical University of South Carolina, Charleston, SC, ¹³Health Sciences Ctr OT Program, 1 University of New Mexico, Albuquerque, NM
Background/Purpose: Taking Charge of Systemic Sclerosis (TOSS) is an internet self-management program developed for people with systemic sclerosis (SSc). The purpose of this qualitative study…
Abstract Number: 2661 • 2015 ACR/ARHP Annual Meeting
Assessing Information Needs for Chronic Disease Management in Rheumatoid Arthritis
Marylou Cardenas-Turanzas¹, Elsa Gonzalez², Maithili Shethia¹, Maria A. Lopez-Olivo³, Pratibha Nayak⁴ and Maria E. Suarez-Almazor³, ¹Department of General Internal Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX, ²Higher Education Administration, Texas A&M University, Corpus Christi, TX, ³General Internal Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX, ⁴National Institutes of Health, Atlanta, GA
Background/Purpose: Patients with chronic disease are increasingly using social networking to share experiences about their disease, and receive peer support. As part of an educational…
Abstract Number: 2435 • 2014 ACR/ARHP Annual Meeting
‘It’s like the Worst Toothache You’ve Ever Had’ – How Persons with Rheumatoid Arthritis Describe and Manage Pain in Daily Life
Maria Bergström¹, Inger Ahlstrand², Ingrid Thyberg³, Torbjörn Falkmer⁴, Björn Börsbo⁵ and Mathilda Björk⁶, ¹School of Health Sciences, Jönköping University, Jönköping, Sweden, ²School of Health Sciences Jönköping University, Jönköping, Sweden, ³Rheumatology, Linköping University Hospital, Linkoping, Sweden, ⁴School of Occupational Therapy and Social Work, CHIRI, Curtin University, Perth, WA, Australia, Perth, Australia, ⁵Rehabilitation Medicine, Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden, ⁶Rehabilitation Center and Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden
Background/Purpose: Although it is reported that biological treatment has a positive effect on Rheumatoid arthritis (RA), pain intensity is still moderate to high in the…
Abstract Number: 2280 • 2013 ACR/ARHP Annual Meeting
Stiffness From The Perspective Of People Living With Rheumatoid Arthritis
Ana-Maria Orbai¹, Katherine Clegg-Smith², Susan J. Bartlett³, Elaine De Leon⁴, Michelle Jones⁵ and Clifton O. Bingham III¹, ¹Rheumatology, Johns Hopkins University, Baltimore, MD, ²Health Behavior and Society, Johns Hopkins University School of Public Health, Baltimore, MD, ³Clinical Epidemiology, McGill University, Montreal, QC, Canada, ⁴Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, ⁵Johns Hopkins University, Baltimore, MD
Background/Purpose: Stiffness was included in the 1961 and 1987 Rheumatoid Arthritis (RA) classification criteria and continues to be commonly queried in clinical care. Its relative…

All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].