Abstracts tagged "qualitative and systemic lupus erythematosus (SLE)"

Abstract Number: 339 • 2017 ACR/ARHP Annual Meeting
Patients’ Attitudes and Experiences of Transitional Care in Paediatric Rheumatology: A Systematic Review of Qualitative Studies
Ayano Kelly^1,2,3,4, Fiona Niddrie⁵, David Tunnicliffe^4,6, Camilla Hanson^4,7, Gabor Major^8,9, Davinder Singh-Grewal^10,11,12 and Allison Tong⁴, ¹Rheumatology, The Canberra Hospital, Canberra, Australia, ²School of Medicine, Australian National University, Canberra, Australia, ³Canberra Rheumatology, Canberra, Australia, ⁴Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia, ⁵Rheumatology, Bone and Joint Institute,John Hunter Hospital, Newcatle, Australia, ⁶Sydney School of Public Health, University of Sydney, Sydney, Australia, ⁷Sydney School of Pubic Health, University of Sydney, Sydney, Australia, ⁸Medicine, University of Newcastle, Newcastle, Australia, ⁹Rheumatology, Bone and Joint Institute, John Hunter Hospital NSW Australia, Newcastle, Australia, ¹⁰Faculty of Medicine, University of New South Wales, Sydney, Australia, ¹¹Department of Rheumatology, The Sydney Children's Hospital Network, Sydney, Australia, ¹²Sydney Medical School, University of Sydney, Sydney, Australia
Background/Purpose: Despite the increasing number of transition programs available for rheumatology patients moving from paediatric to adult care, transition continues to pose challenges for patients…
Abstract Number: 1224 • 2016 ACR/ARHP Annual Meeting
Healthcare and Research Priorities of Adolescents and Young Adults with Systemic Lupus Erythematosus: A Mixed-Methods Study
David Tunnicliffe^1,2, Davinder Singh-Grewal^3,4,5, Jonathan Craig^1,6, Martin Howell^1,7, Peter Tugwell⁸, Fiona Mackie^9,10, Ming-Wei Lin^3,11, Sean O'Neill¹², Angelique Ralph^1,6 and Allison Tong^1,6, ¹Sydney School of Public Health, University of Sydney, Sydney, Australia, ²Centre for Kidney Research, Children's Hospital at Westmead, sydney, Australia, ³Sydney Medical School, University of Sydney, Sydney, Australia, ⁴Department of Rheumatology, The Sydney Children's Hospital Network, Sydney, Australia, ⁵Faculty of Medicine, University of New South Wales, Sydney, Australia, ⁶Centre for Kidney Research, Children's Hospital at Westmead, Sydney, Australia, ⁷Centre for Kidney Research, Children's Hospital at Westmead, Sydne, Australia, ⁸Center For Global Health, Institute of Population Hlth, Ottawa, ON, Canada, ⁹School of Women's and Children's Health, University of New South Wales, Sydney, Australia, ¹⁰Department of Nephrology, The Sydney Children's Hospital Network, Sydney, Australia, ¹¹Department of Immunology, Westmead Hospital, Sydney, Australia, ¹²University of New South Wales, Sydney, Australia
Background/Purpose: The care of adolescents and young adults with systemic lupus erythematosus (SLE) is particularly challenging. The disease may be severe, adolescent patients have complex…
Abstract Number: 920 • 2015 ACR/ARHP Annual Meeting
Patient Preferences for the Development of a Mobile Health (mHealth) Application (App) for Systemic Lupus Erythematosus (SLE) Patients: A Qualitative Study
Alana B. Levine¹, Adena Batterman², VP Bykerk¹, Aislinn Crank³, Su Jin Kim⁴, Juliette Kleinman⁵, Laura Leuenberger¹, Laura Robbins⁶, Jillian A. Rose³, Jane E. Salmon^1,3, Nadine Spring¹, My-Lan Tran⁷ and Roberta Horton², ¹Rheumatology, Hospital for Special Surgery, New York, NY, ²Social Work Programs, Hospital for Special Surgery, New York, NY, ³Hospital for Special Surgery, New York, NY, ⁴School of Social Work, Columbia University, New York, NY, ⁵Patient Care & Quality, Hospital for Special Surgery, New York, NY, ⁶Education & Academic Affairs, Hospital for Special Surgery, New York, NY, ⁷Department of Social Work Programs, Hospital for Special Surgery, New York City, NY
Background/Purpose: SLE patients face many challenges due to lupus, including pain, fatigue, managing medications and appointments, and emotional impact. Patients employ various strategies to manage…

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