Abstracts tagged "psychosocial factors"

Abstract Number: 1029 • ACR Convergence 2023
Social Determinants of Health in Children with Rheumatic Disease: A Single Center Cohort
Kristina Ciaglia¹, Elizabeth Sloan¹ and Tracey Wright², ¹UT Southwestern and Scottish Rite for Children, Dallas, TX, ²UT Southwestern, Dallas, TX
Background/Purpose: Rheumatic disease disproportionately impacts certain socioeconomic, racial, and ethnic groups frequently resulting in health care inequities. Social determinants of health (SDOH) are conditions in…
Abstract Number: 1256 • ACR Convergence 2023
Self-esteem and Body Image of Young People with Rheumatic Diseases: A Systematic Review
Leticia Leon¹, Daniel clemente Garulo², Carmen Heredia³ and lydia Abasolo⁴, ¹Fundación Investigación Biomédica Hospital Clínico San Carlos, Madrid, Spain, ²Pediatric Rheumatology Unit, Hospital Niño Jesús, Madrid, Spain, ³Universidad Camilo Jose Cela, Madrid, Spain, ⁴Hospital Clínico San Carlos, Madrid, Spain
Background/Purpose: Little is known about the self-esteem and body image impact in young people with rheumatic and musculoskeletal diseases (RMD). Studies in chronic illness suggest…
Abstract Number: 1257 • ACR Convergence 2023
The Psychological Experience of Work for People with Inflammatory Arthritis (IA)
Joan Westreich¹, Adena Batterman¹, Anna Balakrishnan¹, Roberta Horton¹, Minerva Nong¹, Vivian Bykerk² and Theodore Fields¹, ¹Hospital for Special Surgery, New York, NY, ²Department of Rheumatology, Hospital for Special Surgery, New York, NY
Background/Purpose: A large body of research reports that people with inflammatory arthritis (IA) are at increased risk for work disability, which profoundly affects all aspects…
Abstract Number: 1259 • ACR Convergence 2023
Voices Unheard: Unmasking the Hidden Challenges of Youth with Rheumatic Diseases
Natasha Trehan¹, Laurie Proulx² and Isabel Dukes³, ¹University of Ottawa, Take a Pain Check Foundation, Toronto, ON, Canada, ²Canadian Arthritis Patient Alliance, Ottawa, ON, Canada, ³CAPA & TAPC, Freelance, Ottawa, ON, Canada
Background/Purpose: Rheumatic disease doesn't merely present physical challenges—it also significantly impacts various psychological and social aspects of one's life, often disrupting academic progress, straining friendships,…
Abstract Number: 1262 • ACR Convergence 2023
“Somebody Who’s Been There and Can Understand the Challenges That You’re Going Through”: Participant Perspectives of a Resilience-Based Energy Management Online Intervention for Systemic Sclerosis with Peer Health Coaches
Yen Chen¹, Alexandra Harper², Tiffany Phanhdone³, Mary Alore¹, Sheri Hicks¹, Adam Pape¹, Gina Jay¹, Shannen Bolde¹, Jennie Feldpausch¹, Dinesh Khanna¹ and Susan Murphy⁴, ¹University of Michigan, Ann Arbor, MI, ²University of Michigan, Ypsilanti Charter Twp, MI, ³Northwestern University, Chicago, IL, ⁴University of Michigan, Plymouth, MI
Background/Purpose: People with systemic sclerosis (SSc) often experience fatigue, which impacts daily life functioning and quality of life. We developed a 12-week, resilience-based energy management…
Abstract Number: 1830 • ACR Convergence 2023
Exploring Psychosocial Characteristics of Youth with Chronic Pain Across Gender Identities
Evan Mulvihill¹, Liam Courtney², Alora Rando¹ and Katherine Salamon³, ¹Nemours Children's Health, Wilmington, DE, ²Rowan-Virtua School of Osteopathic Medicine, Stratford, NJ, ³Nemours Children's Health, Wilmingon, DE
Background/Purpose: Pediatric chronic pain is a common, significant public health concern leading to decreased quality of life for youth and burden on the healthcare system1.…
Abstract Number: 2030 • ACR Convergence 2023
Positive Psychosocial Factors May Protect Against Perceived Stress in a Multiethnic Cohort of People with SLE with and Without Trauma History
Kimberly DeQuattro¹, Laura Trupin², Sarah Patterson³, Stephanie Rush², Caroline Gordon⁴, Kurt Greenlund⁵, Kamil Barbour⁵, Cristina Lanata⁶, Lindsey Criswell⁷, Maria Dall'Era², Jinoos Yazdany² and Patti Katz⁸, ¹University of Pennsylvania, Media, PA, ²University of California San Francisco, San Francisco, CA, ³University of California San Francisco, Pacifica, CA, ⁴Institute of Inflammation and Ageing, University of Birmingham, Birmingham, United Kingdom, ⁵Centers for Disease Control and Prevention, Atlanta, GA, ⁶National Human Genome Research Institute, Washington, DC, ⁷NIH/NHGRI, Bethesda, MD, ⁸University of California San Francisco, San Rafael, CA
Background/Purpose: Trauma exposures are associated with SLE onset and disease activity; perceived stress is also associated with greater SLE disease activity and worse patient-reported outcomes.…
Abstract Number: 2111 • ACR Convergence 2023
Self-reported Methotrexate Adherence Underestimates Biochemical Adherence: Results from the Methotrexate Use Improvement in Rheumatoid Arthritis Using Biomarker Feedback Trial
James Bluett¹, Kimme Hyrich², Brian Keevil³, Patty Doran⁴ and Anne Barton⁵, ¹University of Manchester, Manchester, United Kingdom, ²Versus Arthritis Centre for Epidemiology, Centre for Musculoskeletal Research, The University of Manchester, Manchester, United Kingdom, ³Department of Clinical Biochemistry, Manchester University NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester, United Kingdom, ⁴School of Social Sciences, The University of Manchester, Manchester, United Kingdom, ⁵Versus Arthritis Centre for Genetics and Genomics, Centre for Musculoskeletal Research, The University of Manchester, Manchester, United Kingdom
Background/Purpose: Methotrexate (MTX) adherence is suboptimal and is associated with disease flare, DAS-28 response, radiographic damage and healthcare costs. Adherence can be measured using self-reported…
Abstract Number: 2500 • ACR Convergence 2023
Suicidal Ideation and Self-Efficacy in Systemic Lupus Erythematosus: Georgians Organized Against Lupus (GOAL) Cohort
Charmayne Dunlop-Thomas¹, Gaobin Bao¹, Jessica Williams², Hilton Mozee¹, Cristina Drenkard¹ and S. Sam Lim¹, ¹Emory University, Atlanta, GA, ²Emory University School of Medicine, Atlanta, GA
Background/Purpose: Suicidal ideation is more common in SLE than in other chronic diseases. Targeted interventions are needed to reduce morbidity and mortality. Bandura’s theory of…
Abstract Number: PP15 • ACR Convergence 2023
Toward a Frontier Beyond the Barriers of Position and Prejudice
Noriko Okochi¹, Eiji Oishi², Yuki Kojima³, Noro Takashi³, Mika Ishiguro³, Toshiko Ito-Ihara⁴ and YOSHIHIRO ARIMURA⁵, ¹Rheumatic Disease and Vasculitis Support Network Japan, Institute of Neuropsychiatry, Tokyo, Japan, ²Rheumatic Disease and Vasculitis Support Network Japan, UBE Frontier University, Yamaguchi, Japan, ³Rheumatic Disease and Vasculitis Support Network Japan, Shinagawa-Ku, Tokyo, Japan, ⁴Kyoto Prefectural University of Medicine, Rheumatic Disease and Vasculitis Support Network Japan, Kyoto, Japan, ⁵Kyorin University School of Medicine, Kichijoji Asahi Hospital, Rheumatic Disease and Vasculitis Support Network Japan, Mitaka-Shi, Tokyo, Japan
Background/Purpose: In Japan, firm boundaries exist between people from different walks of life surrounding diseases. 【Patients】Some patients are unable to assert themselves before doctors who…
Abstract Number: PP16 • ACR Convergence 2023
Peer Health Coaches Help Scleroderma Patients Cope with Isolation
Mary Alore¹, Yen Chen² and Susan Murphy³, ¹Troy, MI, ²University of Michigan, Ann Arbor, MI, ³University of Michigan, Plymouth, MI
Background/Purpose: In 2011, I felt extremely isolated with my new diagnosis of diffuse systemic sclerosis and sought support online and in support groups. In addition…
Abstract Number: 0134 • ACR Convergence 2023
Stressful Life Events in the Year Prior to Their Diagnosis Are Associated with Adult and Pediatric Systemic Rheumatic Diseases
Iazsmin Bauer Ventura¹, Maya Goldberg², Adam Schiffenbauer³, Min Shi⁴, Rita Volochayev⁵, Sharon H. Jackson⁶, Anna Jansen⁵, Nastaran Bayat⁷, Christine Parks⁸, Clarice R. Weinberg⁴, Angelo Picardi⁹, Frederick Miller¹⁰ and Lisa Rider³, ¹University of Chicago, Chicago, IL, ²National Institute of Environmental Health Sciences, National Institutes of Health, Bethesda, MD, ³NIEHS, NIH, Bethesda, MD, ⁴Biostatitstics & Computational Biology Branch, National Institute of Environmental Health Sciences, National Institutes of Health, Research Triangle Park, NC, ⁵Environmental Autoimmunity Group, National Institute of Environmental Health Sciences, National Institutes of Health, Bethesda, MD, ⁶National Institute of Dental and Craniofacial Research, National Institutes of Health, Bethesda, MD, ⁷Social Scientific Systems, DLH Holdings Corp, Silver Spring, MD, ⁸Epidemiology Branch, National Institute of Environmental Health Sciences, National Institutes of Health, Research Triangle Park, NC, ⁹Centre for Behavioral Sciences and Mental Health, Italian National Institute of Health, Rome, Italy, ¹⁰NIH, NIEHS, Chapel Hill, NC
Background/Purpose: Systemic rheumatic diseases (SRDs) are complex multi-organ immune-mediated disorders that arise from the interaction of environmental exposures in genetically predisposed individuals. Stressful life events…
Abstract Number: 011 • 2023 Pediatric Rheumatology Symposium
The Impact of Social Inequities on Presentation of Childhood-Onset Systemic Lupus Erythematosus (cSLE) at a Large Tertiary Center
Emily Beil¹, Eyal Muscal², Danielle Guffey², Marietta Deguzman¹ and Erin Peckham-Gregory², ¹Baylor College of Medicine, Texas Children's Hospital, Houston, TX, ²Baylor College of Medicine, Houston, TX
Background/Purpose: Differences in prevalence rates of childhood-onset SLE (cSLE) among different racial/ethnic groups have been well described. Yet, the role of social determinants of health…
Abstract Number: 102 • 2023 Pediatric Rheumatology Symposium
Preliminary Results from a Survey of Psychological Resilience Among JIA Patients
Daniella Schocken and Tracy Ting, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: Psychological resilience – an individuals capacity to adapt in the face of stressors and recover after adverse events – has been linked to a…
Abstract Number: 112 • 2023 Pediatric Rheumatology Symposium
Adverse Childhood Experiences: Prevalence and Relationship to Disease in Childhood-onset Lupus
Olivia Hendrikx¹, Stephanie Fevrier¹, Ibrahim Mohamed¹, Chelsea DeCoste², Paris Moaf¹, Lawrence Ng¹, Deborah Levy¹, Linda Hiraki¹, Alene Toulany¹ and Andrea Knight¹, ¹The Hospital for Sick Children, Toronto, ON, Canada, ²IWK Health Centre, Halifax, NS, Canada
Background/Purpose: Adverse Childhood Experiences (ACEs) measure traumatic experiences in childhood. ACEs are associated with epigenetic changes, are known to increase stress response and inflammation, and…

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