Abstracts tagged "PROMIS"

Abstract Number: 2951 • 2017 ACR/ARHP Annual Meeting
Responsiveness of the Patient Reported Outcomes Measurement Information System to Golimumab Intravenous and Infliximab Treatment in a Real World Clinical Trial in Rheumatoid Arthritis Patients
Jeffrey R. Curtis¹, Douglas Conaway², Joy Schechtman³, Aaron Broadwell⁴, Alan J. Kivitz⁵, Vance Bray⁶, Shelly Kafka⁷, Dennis Parenti⁷, Shawn Black⁷, Stephen Xu⁸, Wayne Langholff⁸ and Clifton O. Bingham III⁹, ¹Rheumatology & Immunology, University of Alabama at Birmingham, Birmingham, AL, ²Rheumatology/Medicine, Carolina Health Specialists, Myrtle Beach, SC, ³Sun Valley Arthritis Center LTD, Peoria, AZ, ⁴Rheumatology Osteoporosis Specialists, Shreveport, LA, ⁵Altoona Arthritis & Osteoporosis Center, Altoona, PA, ⁶Denver Arthritis Clinic, Denver, CO, ⁷Janssen Scientific Affairs, LLC, Horsham, PA, ⁸Janssen Research & Development, LLC, Spring House, PA, ⁹Rheumatology, Johns Hopkins University, Baltimore, MD
Background/Purpose: The Patient (Pt) Reported Outcomes Measurement Information System (PROMIS [P]) questionnaires developed by the NIH have been validated and are a feasible assessment tool…
Abstract Number: 3233 • 2016 ACR/ARHP Annual Meeting
Determinants of Pain, Fatigue, Physical Function and Social Participation in SLE Patients, Measured with Patient Reported Outcomes Measurement Information System (PROMIS®) Computerized Adaptive Tests
Shanthini Kasturi¹, Jayme C. Burket², Jessica Berman¹, Kyriakos A. Kirou¹, Alana B. Levine¹, Lisa R. Sammaritano¹ and Lisa Mandl¹, ¹Rheumatology, Hospital for Special Surgery, New York, NY, ²Healthcare Research Institute, Hospital for Special Surgery, New York, NY
Background/Purpose: Poor SLE outcomes have been associated with certain clinical and socio-demographic characteristics, but the determinants of patient reported outcomes (PROs) in SLE are unknown.…
Abstract Number: 94 • 2016 ACR/ARHP Annual Meeting
Performance of the Patient Reported Outcomes Measurement Information System (PROMIS) Measure for Physical Function in Early RA
Till Uhlig, Inge C Olsen, Anna-Birgitte Aga, Siri Lillegraven, Tore K Kvien and Espen A. Haavardsholm, Dept. of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway
Background/Purpose: The Patient Reported Outcomes Measurement Information System (PROMIS) initiative has developed and calibrated item banks for the assessment of physical function and other domains…
Abstract Number: 103 • 2016 ACR/ARHP Annual Meeting
People with Rheumatoid Arthritis Recruited from an Online Patient Community May Differ from Clinical Populations in Symptoms and Impacts
Anna Kristina Gutierrez¹, Susan J. Bartlett^1,2, Michelle Jones³, W. Benjamin Nowell⁴, Seth D. Ginsberg⁴, Vivian P. Bykerk⁵, Jeffrey R. Curtis⁶ and Clifton Bingham III⁷, ¹Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ²Department of Medicine, Division of ClinEpi, Rheumatology, Respirology, McGill University, Montreal, QC, Canada, ³Johns Hopkins University School of Medicine, Baltimore, MD, ⁴Global Healthy Living Foundation, CreakyJoints, Upper Nyack, NY, ⁵Divison of Rheumatology, Hospital for Special Surgery, New York, NY, ⁶Division Clinical Immunology & Rheumatology, University of Alabama at Birmingham, Birmingham, AL, ⁷Johns Hopkins University, Baltimore, MD
Background/Purpose: Patients are increasingly recruited from online communities to provide insight regarding their lived experiences and preferences for treatment and services. We compared physical, social,…
Abstract Number: 299 • 2016 ACR/ARHP Annual Meeting
Minimally Important Differences for Four Patient-Reported Outcomes Measurement Information System (PROMIS) Short Forms: Physical Function, Pain Interference, Depression, and Anxiety Among Adults with Knee Osteoarthritis
Augustine Lee¹, Lori Lyn Price², Jeffrey Driban³, William F. Harvey¹, Timothy E. McAlindon⁴, Angie Mae Rodday⁵ and Chenchen Wang¹, ¹Rheumatology, Tufts Medical Center, Boston, MA, ²Clinical Care Research, Tufts Medical Center, Boston, MA, ³Tufts Medical Center, Boston, MA, ⁴Division of Rheumatology, Tufts Medical Center, Boston, MA, ⁵Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA
Background/Purpose: Patient-Reported Outcomes Measurement Information System (PROMIS) provides reliable, valid measures of health status to resolve many challenges with comparability and interpretability in OA.…
Abstract Number: 376 • 2016 ACR/ARHP Annual Meeting
Initial Validation of the Patient Reported Outcomes Measurement Information System Pediatric Pain Intensity Scale in Juvenile Idiopathic Arthritis, Juvenile Fibromyalgia and Sickle Cell Disease
Esi Morgan¹, Constance Mara², Bin Huang³, Adam Carle⁴, Kenneth Goldschneider⁵, Carlton Dampier⁶ and Susmita Kashikar-Zuck⁷, ¹Pediatric Rheumatology, Cincinnati Children's Hospital, Cincinnati, OH, ²James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Biostatistics and Epidemiology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁴Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁵Anesthesia, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶Department of Pediatrics (Hematology-Oncology), Emory University School of Medicine, Atlanta, GA, ⁷Behavioral Medicine & Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: The Patient Reported Outcomes Measurement Information System(PROMIS) is a publicly available assessment system offering multiple measures to assess physical, mental and social health.…
Abstract Number: 445 • 2016 ACR/ARHP Annual Meeting
Performance of Promis Measures in a Multi-Ethnic Population-Based Systemic Lupus Erythematosus (SLE) Cohort
Patricia P. Katz¹, Jinoos Yazdany¹, Laura Trupin¹, Stephanie Rush², Cristina Lanata³, Charles G. Helmick⁴, Lindsey A. Criswell³ and Maria Dall'Era⁵, ¹Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA, ²UCSF, SF, CA, ³Division of Rheumatology, UCSF, San Francisco, CA, ⁴CDC, Atlanta, GA, ⁵Division of Rheumatology, University of California, San Francisco, San Francisco, CA
Background/Purpose: NIH’s PROMIS (Patient-Reported Outcomes Measurement Information System) measures have the potential to improve and expand outcomes measurement in SLE, but have not been tested…
Abstract Number: 529 • 2016 ACR/ARHP Annual Meeting
The Relationship Between Promis and CDAI Scores, Disease Duration, Age and Gender in Patients with Rheumatoid Arthritis
Alicia Lieberman¹, Judith Baumhauer², Chris Dasilva² and Allen P. Anandarajah³, ¹Allergy, Immunology and Rheumatology, University of Rochester Medical Center, Rochester, NY, ²Orthopedic surgery, University of Rochester Medical Center, Rochester, NY, ³Dept of Rheumatology, Univ of Rochester Medical Ctr, Rochester, NY
Background/Purpose: PROMIS (Patient-Reported Outcomes Measurement Information System) is a self-reported and parent-reported measure of global, physical, mental, and social health for the general population…
Abstract Number: 1413 • 2016 ACR/ARHP Annual Meeting
Establishing Clinical Severity for Patient Reported Outcomes Measurement Information System Measures in Adult Patients with Rheumatic Diseases
Vivek Nagaraja¹, Constance Mara², Carole V. Dodge³, David Fox⁴, Puja Khanna⁵, Timothy Laing⁴, W Joseph McCune⁶, Rajaie Namas⁴, Debra Bancroft Rizzo⁴, Kelly Vanoverbeke⁴, Amber Young⁷, Maha Almackenzie¹ and Dinesh Khanna⁸, ¹Department of Medicine [Division of Rheumatology], University of Toledo, Toledo, OH, ²James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Physical Medicine and Rehabilitation [Occupational Therapy], University of Michigan, Ann Arbor, MI, ⁴Department of Medicine [Division of Rheumatology], University of Michigan, Ann Arbor, MI, ⁵Rheumatology, University of Michigan, Ann Arbor, MI, ⁶Int Med/ Rheum, University of Michigan, Ann Arbor, MI, ⁷Department of Internal Medicine, Division of Rheumatology, University of Michigan, Ann Arbor, MI, ⁸University of Michigan, Ann Arbor, MI
Background/Purpose: Different patient reported outcome [PRO] measures are used for rheumatic diseases [RD], and there is lack of uniform generic illness measures across the disease…
Abstract Number: 2040 • 2016 ACR/ARHP Annual Meeting
Responsiveness of Patient Reported Outcomes Measurement Information System Measures in RA Patients Starting or Switching a DMARD
Alyssa Wohlfahrt¹, Clifton Bingham III², Zhi Zhang¹, Marcy Bolster³, Larry W. Moreland⁴, Tuhina Neogi⁵, Kristine Phillips⁶ and Yvonne C. Lee⁷, ¹Rheumatology, Immunology and Allergy, Brigham and Women's Hospital, Boston, MA, ²Johns Hopkins University, Baltimore, MD, ³Rheumatology, Allergy and Immunology, Massachusetts General Hospital, Boston, MA, ⁴Rheumatology & Clinical Immunology, University of Pittsburgh, Pittsburgh, PA, ⁵Clinical Epidemiology, Boston University School of Medicine, Boston, MA, ⁶Rheumatology, University of Michigan, Ann Arbor, MI, ⁷Rheumatology Immunology & Allergy, Brigham and Women's Hospital and Harvard Medical School, Boston, MA
Background/Purpose: The Patient Reported Outcome Measurement Information System (PROMIS) is an NIH-developed metric for assessing multidimensional aspects of health across different conditions. Prior RA studies…
Abstract Number: 2041 • 2016 ACR/ARHP Annual Meeting
Validity and Reliability of Patient Reported Outcomes Measurement Information System (PROMIS®) Global Health Short Form in Patients with SLE
Shanthini Kasturi¹, Jayme C. Burket², Jessica Berman¹, Kyriakos A. Kirou¹, Alana B. Levine¹, Lisa R. Sammaritano¹ and Lisa Mandl¹, ¹Rheumatology, Hospital for Special Surgery, New York, NY, ²Healthcare Research Institute, Hospital for Special Surgery, New York, NY
Background/Purpose: The measurement of patient reported outcomes (PROs) is a growing priority for performance improvement in clinical care of chronic conditions such as SLE. Measuring…
Abstract Number: 2349 • 2016 ACR/ARHP Annual Meeting
Longitudinal Construct Validity for Four Patient-Reported Outcomes Measurement Information System (PROMIS) Short Forms: Physical Function, Pain Interference, Depression, and Anxiety Among Adults with Knee Osteoarthritis
Augustine C. Lee¹, Lori Lyn Price², Jeffrey B. Driban¹, William F. Harvey¹, Timothy E. McAlindon³, Angie Mae Rodday⁴, Hans E. Knopp⁵ and Chenchen Wang¹, ¹Rheumatology, Tufts Medical Center, Boston, MA, ²Biostatistics Research Center, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, ³Division of Rheumatology, Tufts Medical Center, Boston, MA, ⁴Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, ⁵Physical Medicine and Rehabilitation, Tufts Medical Center, Boston, MA
Background/Purpose: Patient-Reported Outcomes Measurement Information System (PROMIS) provides clinicians and researchers access to reliable, valid measures of health status to resolve many challenges associated…
Abstract Number: 1081 • 2015 ACR/ARHP Annual Meeting
Administration of Patient Reported Outcome Measurement Information System (PROMIS) Instruments By Computer Adaptive Testing in Patients with Systemic Vasculitis
Gunnar Tomasson¹, John T. Farrar², David Cuthbertson³, Carol McAlear⁴, Susan Asdown⁵, Don Gebhart⁶, Georgia Lanier⁷, Nataliya Milman⁸, Jacqueline Peck⁹, Joanna Robson¹⁰, Simon Carette¹¹, Gary S. Hoffman¹², Nader A. Khalidi¹³, Curry L. Koening¹⁴, Carol A. Langford¹², Larry W. Moreland¹⁵, Paul A. Monach¹⁶, Christian Pagnoux¹¹, Ulrich Specks¹⁷, Antoine G. Sreih¹⁸, Steven R. Ytterberg¹⁹ and Peter A. Merkel⁴, ¹Dept of Public Health Sciences, University of Iceland, Reykiavik, Iceland, ²Universitiy of Pennsylvania, Philadelphia, PA, ³Biostatistics and Informatics, Department of Pediatrics, University of South Florida, Tampa, FL, ⁴Penn Vasculitis Center, Division of Rheumatology, University of Pennsylvania, Philadelphia, PA, ⁵NONE, Branbury, United Kingdom, ⁶NONE, Columbus, OH, ⁷NONE, Framingham, MA, ⁸Division of Rheumatology, University of Ottawa, Ottawa, ON, Canada, ⁹Oxford University, Oxford, United Kingdom, ¹⁰Nuffield Department of Orthopaedics Rheumatology and Musculoskeletal Sciences, University of Oxford, University of Oxford, Oxford, United Kingdom, ¹¹Mount Sinai Hospital, Toronto, ON, Canada, ¹²Rheumatology, Cleveland Clinic, Cleveland, OH, ¹³McMaster University, Hamilton, ON, Canada, ¹⁴Division of rheumatology, George E. Wahlen Department of Veterans Affairs Medical Center Salt Lake City and University of Utah, University of Utah School of Medicine, Salt Lake City, UT, ¹⁵Rheumatology & Clinical Immunology, University of Pittsburgh, Pittsburgh, PA, ¹⁶Rheumatology, Boston University School of Medicine, Boston, MA, ¹⁷Division of Pulmonary and Critical Care Medicine, Mayo Clinic College of Medicine, Rochester, MN, ¹⁸Department of Rheumatology, University of Pennsylvania, Philadelphia, PA, ¹⁹Rheumatology Division, Mayo Clinic, Rochester, MN
Background/Purpose: Currently-used outcome measures in vasculitis insufficiently capture the life impact of systemic vasculitis from patients' perspectives. The Patient Reported Outcome Measurement Information System…
Abstract Number: 2434 • 2015 ACR/ARHP Annual Meeting
Promis Tools for Measurement of Patient-Reported Outcomes in Children with Juvenile Arthritis
Timothy Brandon¹, Brandon Becker¹, Katherine Bevans¹ and Pamela F. Weiss², ¹Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, ²Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose: Child/parent perspectives on their own/their child's health are highly pertinent to disease management. PROMIS is a collection of patient-reported outcome measures that were developed…
Abstract Number: 2540 • 2015 ACR/ARHP Annual Meeting
Construct Validity of the Promis-29 in Systemic Sclerosis: Results from the Scleroderma Patient-Centered Intervention Network (SPIN) Cohort
Linda Kwakkenbos¹, Brett D. Thombs¹, Susan J. Bartlett², Marie-Eve Carrier³, Marie Hudson¹, Luc Mouthon⁴, Vanessa L. Malcarne⁵, Maureen Sauvé⁶, Dinesh Khanna⁷ and SPIN investigators, ¹McGill University, Montreal, QC, Canada, ²Medicine, McGill University, Montreal, QC, Canada, ³Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada, ⁴Paris Descartes University, UPRES-EA 4058, Department of Internal Medicine, Cochin Hospital, Paris, France, ⁵SDSU/UC San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA, ⁶Scleroderma Societies of Canada and Ontario, Hamilton, QC, Canada, ⁷Division of Rheumatology, University of Michigan, Ann Arbor, MI
Background/Purpose: The Patient-Reported Outcomes Measurement Information System (PROMIS¨) initiative is a cooperative research program designed to develop, evaluate, and standardize item banks to measure patient-reported…

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