ACR Meeting Abstracts

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Abstracts tagged "pediatric rheumatology and systemic sclerosis"

  • Abstract Number: 1424 • 2018 ACR/ARHP Annual Meeting

    After 24 Months Observation Period the Patients Related Outcomes Improve Significantly in the Juvenile Scleroderma Inceptions Cohorte

    Ivan Foeldvari1, Jens Klotsche2, Ozgur Kasapcopur3, Maria Teresa Terreri4, Tadey Avcin5, Rolando Cimaz6, Mikhail Kostik7, Maria M. Katsicas8, Dana Nemkova9, Cristina Battagliotti10, Lillemor Berntson11, Juergen Brunner12, Liora Harel13, Tilmann Kallinich14, Kirsten Minden15, Maria José Santos16, Kathryn S. Torok17 and Nicola Helmus1, 1Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, 2Program Area Epidemiology, German Rheumatism Research Center, Berlin, Germany, 3Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, 4Pediatric Rheumatology Unit, Federal University of São Paulo (UNIFESP - Universidade Federal de São Paulo), São Paulo, Brazil, 5University Children's Hospital, Ljubljana, Slovenia, 6Pediatrics, Ospedale Pediatrico Anna Meyer, Florence, Italy, 7Saint-Petersburg State Pediatric Medical University, Saint-Petersburg, Russian Federation, 8Service of Immunology & Rheumatology., Hospital de Pediatría Prof Dr JP Garrahan, Buenos Aires, Argentina, 9Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, 10Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, 11Dept. of Pediatrics, Uppsala University Hospital, Uppsala, Sweden, 12Division of Pediatric Rheumatology, Medical University Innsbruck, Innsbruck, Austria, 13Schneider Children's Medical Center of Israel, Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel, 14Charité Berlin Campus Virchow, Berlin, Germany, 15Charité–Universitätsmedizin Berlin, Berlin, Germany, 16Reuma.pt, Almada, Portugal, Almada, Portugal, 17Pediatric Rheumatology, University of Pittsburgh Med Ctr, Pittsburgh, PA

    Background/Purpose: Juvenile systemic scleroderma (jSSc) is an orphan disease with a prevalence 3 in a 1 000 000 children(1). Published data is limited regarding the…
  • Abstract Number: 1425 • 2018 ACR/ARHP Annual Meeting

    Update from the Juvenile Scleroderma Inception Cohort

    Ivan Foeldvari1, Jens Klotsche2, Ozgur Kasapcopur3, Amra Adrovic4, Kathryn S. Torok5, Valda Stanevicha6, Flavio Sztajnbok7, Maria Teresa Terreri8, Ekaterina Alexeeva9, Jordi Anton10, Maria M. Katsicas11, Vanessa Smith12, Tadey Avcin13, Rolando Cimaz14, Mikhail Kostik15, Thomas J. A. Lehman16, Walter A. Sifuentes-Giraldo17, Simone Appenzeller18, Mahesh Janarthanan19, Dana Nemkova20, Maria José Santos21, Cristina Battagliotti22, Lillemor Berntson23, Blanca Bica24, Juergen Brunner25, Patrícia Costa Reis26, Despina Eleftheriou27, Liora Harel28, Gerd Horneff29, Tilmann Kallinich30, Dragana Lazarevic31, Kirsten Minden32, Susan Mary Nielsen33, Yosef Uziel34 and Nicola Helmus1, 1Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, 2Program Area Epidemiology, German Rheumatism Research Center, Berlin, Germany, 3Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, 4Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Istanbul, Turkey, 5Pediatric Rheumatology, Scleroderma Center of Pittsburgh, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, 6Pediatric cathedra, Riga Stradiņš University, Riga, Latvia, 7Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil, 8Pediatric Rheumatology Unit, Federal University of São Paulo (UNIFESP - Universidade Federal de São Paulo), São Paulo, Brazil, 9National Medical Research Center of Children's Health and Sechenov First Moscow State Medical University of the Ministry of Health of the Russian Federation, Moscow, Russian Federation, 10Hospital Sant Joan de Deu, Barcelona, Spain, 11Service of Immunology & Rheumatology., Hospital de Pediatría Prof Dr JP Garrahan, Buenos Aires, Argentina, 12Department of Internal Medicine, Department of Rheumatology, Ghent University Hospital, Department of Internal Medicine, Ghent University, Ghent, Belgium, Ghent, Belgium, 13University Children's Hospital, Ljubljana, Slovenia, 14Pediatrics, Ospedale Pediatrico Anna Meyer, Florence, Italy, 15Saint-Petersburg State Pediatric Medical University, Saint-Petersburg, Russian Federation, 16Pediatric Rheumatology, Hospital for Special Surgery Weill Cornell Medical College, New York, NY, 17Department of Rheumatology, University Hospital Ramón y Cajal, Madrid, Spain, 18Faculty of Medical Science State University of Campinas (UNICAMP), Sao Paulo, Brazil, 19Pediatric Rheumatology, Chennai, India, 20Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, 21Reuma.pt, Almada, Portugal, Almada, Portugal, 22Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, 23Dept. of Pediatrics, Uppsala University Hospital, Uppsala, Sweden, 24"Chefe do Serviço de Reumatologia do Hospital Universitário Clementino Fraga Filho (HUCFF)Universidade Federal do Rio de Janeiro ", Rio de Janeiro, Brazil, 25Division of Pediatric Rheumatology, Medical University Innsbruck, Innsbruck, Austria, 26Pediatrics, Hospital De Santa Maria, Lisbon, Portugal, 27Infection, Inflammation and Rheumatology, UCL Institute of Child Health, London, United Kingdom, 28Schneider Children's Medical Center of Israel, Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel, 29Asklepios Kinderklinik St. Augustin GmbH, Sankt Augustin, Germany, 30Charité Berlin Campus Virchow, Berlin, Germany, 31Dept of Pediatric Rheumatology and Immunology Clinical Center Nis, Nis, Serbia, 32Children’s University Hospital Charite/German Rheumatism Research Centre Berlin, Berlin, Germany, 33Rigshospitalet, Copenhagen, Denmark, 34Meir Medical Center, Kfar Saba, Israel

    Background/Purpose: Juvenile systemic scleroderma (jSSc) is an orphan disease with a prevalence of 3 in 1 000 000 children(1). There is limited data published regarding…
  • Abstract Number: 1440 • 2018 ACR/ARHP Annual Meeting

    Systemic Sclerosis in Pediatric Patients: An Epidemiological Study in a Large Insured Population in the US

    Alexander Michel1, Marcela Rivera2, Tatsiana Vaitsiakhovich2, Simon Teal2 and Janethe Pena3, 1Epidemiology, Bayer Basel, Basel, Switzerland, 2Real World Evidence, Bayer AG, Berlin, Germany, 3Clinical Development, Bayer US LLC, Whippany, NJ

    Background/Purpose: Systemic sclerosis (SSc) is a very rare autoimmune disorder and only very few population-based epidemiological studies described its incidence and prevalence in children. In…
  • Abstract Number: 1281 • 2017 ACR/ARHP Annual Meeting

    Plasma CXCL4 As a Biomarker in Juvenile Systemic Sclerosis

    Katharine Moore1,2, Marvin J. Fritzler3, Marisa S. Klein-Gitelman4, Ann M Reed5, Tzielan Lee6 and Anne Stevens7,8, 1Pediatrics, University of Colorado, Aurora, CO, 2Pediatric Rheumatology, Children's Hospital Colorado, Aurora, CO, 3Medicine, University of Calgary, Calgary, AB, Canada, 4Division of Pediatric Rheumatology/PDD PTD, Lurie Children's Hospital of Chicago/Northwestern University, Chicago, IL, 5Rheumatology, Duke University, Durham, NC, 6Pediatric Rheumatology, Stanford University, Palo Alto, CA, 7University of Washington, Department of Pediatrics, Seattle, WA, 8Center for Immunity and Immunotherapies, Seattle Children's Research Institute, Seattle, WA

    Background/Purpose: Juvenile systemic sclerosis (jSSc) is a severe and heterogeneous autoimmune vasculopathy. Pulmonary fibrosis is the highest independent predictor of mortality, yet currently there are…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

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