Abstracts tagged "pediatric rheumatology and systemic sclerosis"

Abstract Number: 1424 • 2018 ACR/ARHP Annual Meeting
After 24 Months Observation Period the Patients Related Outcomes Improve Significantly in the Juvenile Scleroderma Inceptions Cohorte
Ivan Foeldvari¹, Jens Klotsche², Ozgur Kasapcopur³, Maria Teresa Terreri⁴, Tadey Avcin⁵, Rolando Cimaz⁶, Mikhail Kostik⁷, Maria M. Katsicas⁸, Dana Nemkova⁹, Cristina Battagliotti¹⁰, Lillemor Berntson¹¹, Juergen Brunner¹², Liora Harel¹³, Tilmann Kallinich¹⁴, Kirsten Minden¹⁵, Maria José Santos¹⁶, Kathryn S. Torok¹⁷ and Nicola Helmus¹, ¹Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, ²Program Area Epidemiology, German Rheumatism Research Center, Berlin, Germany, ³Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, ⁴Pediatric Rheumatology Unit, Federal University of São Paulo (UNIFESP - Universidade Federal de São Paulo), São Paulo, Brazil, ⁵University Children's Hospital, Ljubljana, Slovenia, ⁶Pediatrics, Ospedale Pediatrico Anna Meyer, Florence, Italy, ⁷Saint-Petersburg State Pediatric Medical University, Saint-Petersburg, Russian Federation, ⁸Service of Immunology & Rheumatology., Hospital de Pediatría Prof Dr JP Garrahan, Buenos Aires, Argentina, ⁹Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, ¹⁰Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, ¹¹Dept. of Pediatrics, Uppsala University Hospital, Uppsala, Sweden, ¹²Division of Pediatric Rheumatology, Medical University Innsbruck, Innsbruck, Austria, ¹³Schneider Children's Medical Center of Israel, Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel, ¹⁴Charité Berlin Campus Virchow, Berlin, Germany, ¹⁵Charité–Universitätsmedizin Berlin, Berlin, Germany, ¹⁶Reuma.pt, Almada, Portugal, Almada, Portugal, ¹⁷Pediatric Rheumatology, University of Pittsburgh Med Ctr, Pittsburgh, PA
Background/Purpose: Juvenile systemic scleroderma (jSSc) is an orphan disease with a prevalence 3 in a 1 000 000 children(1). Published data is limited regarding the…
Abstract Number: 1425 • 2018 ACR/ARHP Annual Meeting
Update from the Juvenile Scleroderma Inception Cohort
Ivan Foeldvari¹, Jens Klotsche², Ozgur Kasapcopur³, Amra Adrovic⁴, Kathryn S. Torok⁵, Valda Stanevicha⁶, Flavio Sztajnbok⁷, Maria Teresa Terreri⁸, Ekaterina Alexeeva⁹, Jordi Anton¹⁰, Maria M. Katsicas¹¹, Vanessa Smith¹², Tadey Avcin¹³, Rolando Cimaz¹⁴, Mikhail Kostik¹⁵, Thomas J. A. Lehman¹⁶, Walter A. Sifuentes-Giraldo¹⁷, Simone Appenzeller¹⁸, Mahesh Janarthanan¹⁹, Dana Nemkova²⁰, Maria José Santos²¹, Cristina Battagliotti²², Lillemor Berntson²³, Blanca Bica²⁴, Juergen Brunner²⁵, Patrícia Costa Reis²⁶, Despina Eleftheriou²⁷, Liora Harel²⁸, Gerd Horneff²⁹, Tilmann Kallinich³⁰, Dragana Lazarevic³¹, Kirsten Minden³², Susan Mary Nielsen³³, Yosef Uziel³⁴ and Nicola Helmus¹, ¹Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, ²Program Area Epidemiology, German Rheumatism Research Center, Berlin, Germany, ³Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, ⁴Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Istanbul, Turkey, ⁵Pediatric Rheumatology, Scleroderma Center of Pittsburgh, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, ⁶Pediatric cathedra, Riga Stradiņš University, Riga, Latvia, ⁷Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil, ⁸Pediatric Rheumatology Unit, Federal University of São Paulo (UNIFESP - Universidade Federal de São Paulo), São Paulo, Brazil, ⁹National Medical Research Center of Children's Health and Sechenov First Moscow State Medical University of the Ministry of Health of the Russian Federation, Moscow, Russian Federation, ¹⁰Hospital Sant Joan de Deu, Barcelona, Spain, ¹¹Service of Immunology & Rheumatology., Hospital de Pediatría Prof Dr JP Garrahan, Buenos Aires, Argentina, ¹²Department of Internal Medicine, Department of Rheumatology, Ghent University Hospital, Department of Internal Medicine, Ghent University, Ghent, Belgium, Ghent, Belgium, ¹³University Children's Hospital, Ljubljana, Slovenia, ¹⁴Pediatrics, Ospedale Pediatrico Anna Meyer, Florence, Italy, ¹⁵Saint-Petersburg State Pediatric Medical University, Saint-Petersburg, Russian Federation, ¹⁶Pediatric Rheumatology, Hospital for Special Surgery Weill Cornell Medical College, New York, NY, ¹⁷Department of Rheumatology, University Hospital Ramón y Cajal, Madrid, Spain, ¹⁸Faculty of Medical Science State University of Campinas (UNICAMP), Sao Paulo, Brazil, ¹⁹Pediatric Rheumatology, Chennai, India, ²⁰Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, ²¹Reuma.pt, Almada, Portugal, Almada, Portugal, ²²Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, ²³Dept. of Pediatrics, Uppsala University Hospital, Uppsala, Sweden, ²⁴"Chefe do Serviço de Reumatologia do Hospital Universitário Clementino Fraga Filho (HUCFF)Universidade Federal do Rio de Janeiro ", Rio de Janeiro, Brazil, ²⁵Division of Pediatric Rheumatology, Medical University Innsbruck, Innsbruck, Austria, ²⁶Pediatrics, Hospital De Santa Maria, Lisbon, Portugal, ²⁷Infection, Inflammation and Rheumatology, UCL Institute of Child Health, London, United Kingdom, ²⁸Schneider Children's Medical Center of Israel, Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel, ²⁹Asklepios Kinderklinik St. Augustin GmbH, Sankt Augustin, Germany, ³⁰Charité Berlin Campus Virchow, Berlin, Germany, ³¹Dept of Pediatric Rheumatology and Immunology Clinical Center Nis, Nis, Serbia, ³²Children’s University Hospital Charite/German Rheumatism Research Centre Berlin, Berlin, Germany, ³³Rigshospitalet, Copenhagen, Denmark, ³⁴Meir Medical Center, Kfar Saba, Israel
Background/Purpose: Juvenile systemic scleroderma (jSSc) is an orphan disease with a prevalence of 3 in 1 000 000 children(1). There is limited data published regarding…
Abstract Number: 1440 • 2018 ACR/ARHP Annual Meeting
Systemic Sclerosis in Pediatric Patients: An Epidemiological Study in a Large Insured Population in the US
Alexander Michel¹, Marcela Rivera², Tatsiana Vaitsiakhovich², Simon Teal² and Janethe Pena³, ¹Epidemiology, Bayer Basel, Basel, Switzerland, ²Real World Evidence, Bayer AG, Berlin, Germany, ³Clinical Development, Bayer US LLC, Whippany, NJ
Background/Purpose: Systemic sclerosis (SSc) is a very rare autoimmune disorder and only very few population-based epidemiological studies described its incidence and prevalence in children. In…
Abstract Number: 1281 • 2017 ACR/ARHP Annual Meeting
Plasma CXCL4 As a Biomarker in Juvenile Systemic Sclerosis
Katharine Moore^1,2, Marvin J. Fritzler³, Marisa S. Klein-Gitelman⁴, Ann M Reed⁵, Tzielan Lee⁶ and Anne Stevens^7,8, ¹Pediatrics, University of Colorado, Aurora, CO, ²Pediatric Rheumatology, Children's Hospital Colorado, Aurora, CO, ³Medicine, University of Calgary, Calgary, AB, Canada, ⁴Division of Pediatric Rheumatology/PDD PTD, Lurie Children's Hospital of Chicago/Northwestern University, Chicago, IL, ⁵Rheumatology, Duke University, Durham, NC, ⁶Pediatric Rheumatology, Stanford University, Palo Alto, CA, ⁷University of Washington, Department of Pediatrics, Seattle, WA, ⁸Center for Immunity and Immunotherapies, Seattle Children's Research Institute, Seattle, WA
Background/Purpose: Juvenile systemic sclerosis (jSSc) is a severe and heterogeneous autoimmune vasculopathy. Pulmonary fibrosis is the highest independent predictor of mortality, yet currently there are…

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