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Abstracts tagged "Pediatric rheumatology and quality of life"

  • Abstract Number: 2315 • ACR/ARHP Annual Meeting 2017

    Symptoms of Depression and Anxiety in Children with JIA: Relation to Other Domains of Health Related Quality of Life

    Michael Miller1, Yufan Yan2 and George Lales3, 1Pediatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, 2Feinberg School of Medicine, Northwestern University, Chicago, IL, 3Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL

    Background/Purpose: Juvenile Idiopathic Arthritis (JIA) is associated with symptoms of anxiety and depression.  We studied these symptoms and other health related quality of life (HRQOL)…
  • Abstract Number: 2394 • ACR/ARHP Annual Meeting 2016

    Patient and Parent Global Assessments of Disease Impact in Pediatric Localized Scleroderma: Correlates of Patient Reported Health-Related Quality of Life and Parent Reported Family Impact Domains

    Kaveh Ardalan1, Kaila Schollaert-Fitch2, Christina K. Zigler3, Makenzie A. Zidek4 and Kathryn S. Torok5, 1Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, 2Division of Pediatric Rheumatology, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, 3University of Pittsburgh, Pittsburgh, PA, 4Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, 5Pediatric Rheumatology, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA

    Background/Purpose: Pediatric localized sclerodermaÕs (LS) effects on patient/family well-being are underexplored. Contributions of HRQoL domains and family dynamics to LSÕs impact on patients has not…
  • Abstract Number: 1396 • ACR/ARHP Annual Meeting 2016

    Cognitive Function in Children with SLE Nephritis: A Cross-Sectional Comparison to Children with Other Glomerular Chronic Kidney Diseases

    Andrea Knight1,2,3, Matthew Matheson4, Susan Furth5, Brad Warady6, Stephen Hooper7 and Amy Kogon8, 1Division of Pediatric Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA, 2PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA, 3Center for Pediatric Clinical Effectiveness, Children's Hospital of Philadelphia, Philadelphia, PA, 4Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, 5Division of Nephrology, Children's Hospital of Philadelphia, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, 6Division of Nephrology, Children's Mercy Hospital, Kansas City, MO, 7Department of Allied Health Sciences, University of North Carolina School of Medicine, Chapel Hill, NC, 8Division of Nephrology, Nationwide Children's Hospital, The Ohio State University College of Medicine, Columbus, OH

    Background/Purpose: Children with lupus nephritis (LN) are at risk for cognitive impairment due to effects on the brain from systemic inflammation and from potential effects…
  • Abstract Number: 1469 • ACR/ARHP Annual Meeting 2015

    A Comparison of Pain and Disability, and Their Association Between Juvenile Primary Fibromyalgia Syndrome and Pediatric Rheumatic Diseases: Results from the Childhood Arthritis and Rheumatology Research Alliance Registry

    Jennifer E. Weiss1 and Mark Connelly2, 1Hackensack Univ Med Ctr, Hackensack, NJ, 2Psychology, University of Kansas Medical Center, Kansas City, KS

    Background/Purpose: We aim to determine the extent to which pain severity differs between patients with JPFS and other rheumatic diseases and if the degree of…
  • Abstract Number: 3149 • ACR/ARHP Annual Meeting 2015

    Predictors of Longitudinal Quality of Life Impact in Pediatric Localized Scleroderma

    Kaveh Ardalan, Christina Kelsey and Kathryn S. Torok, Pediatric Rheumatology, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA

    Background/Purpose: Localized scleroderma (LS) is an autoimmune disease characterized by inflammation and fibrosis of the skin and a wide range of extracutaneous manifestations (ECMs). The…
  • Abstract Number: 288 • ACR/ARHP Annual Meeting 2012

    Validation of Promis Modules for Use in Childhood-Onset Lupus

    Alexandria J. Greenler1, Laura E. Schanberg2, Michael P. Flannery1, Shannen Nelson3, Janet Wootton4, Esi M. Morgan DeWitt3 and Hermine Brunner5, 1Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 2Pediatrics, Duke University Medical Center, Durham, NC, 3Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 4Pediatric Rheumatology, Duke University Medical Center, Durham, NC, 5Cincinnati Children's Hospital Medical Center, Cincinnati, OH

    Background/Purpose:  The impact of childhood-onset lupus (cSLE) and its treatment on quality of life (QoL) has not been systematically established. The Patient Reported Outcomes Measurement…

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