Abstracts tagged "patient"

Abstract Number: 2007 • 2014 ACR/ARHP Annual Meeting
Using Photovoice Techniques to Empower Lupus Patients and Create Public Awareness: A Program Evaluation
Jessica Rowshandel and Diane Gross, S.L.E. Lupus Foundation, New York, NY
Background/Purpose: Lupus through the Lens is a photography project for people with lupus to capture, in pictures, what it means to live with lupus. Created…
Abstract Number: 2005 • 2014 ACR/ARHP Annual Meeting
Multimedia Patient Education Tool for Patients with Osteoporosis
Maria A. Lopez-Olivo¹, Aparna Ingleshwar², Robert Volk², Andrea Barbo³, Maria Jibaja-Weiss⁴, Heather Lin⁵ and Maria E. Suarez-Almazor⁶, ¹Department of General Internal Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX, ²General Internal Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX, ³Department of Biostatistics, The University of Texas, MD Anderson Cancer Center, Houston, TX, ⁴Office of Outreach and Health Disparities, Baylor College of Medicine, Houston, TX, ⁵Biostatistics, The University of Texas, MD Anderson Cancer Center, Houston, TX, ⁶The Department of General Internal Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX
Background/Purpose: Patient education materials incorporating video modelling can be effective in improving patients’ outcomes. We conducted a randomized control trial to test the efficacy of…
Abstract Number: 1993 • 2014 ACR/ARHP Annual Meeting
Does Psychological Safety Impact Learning Environments Among Rheumatology Fellows: Findings from Veterans Affairs Learners’ Perception Survey
Joe Gamboa¹, Karina Marianne D. Torralba², Chau Nguyen¹, Grant W. Cannon³, Samuel Baz⁴ and T. Michael Kashner⁵, ¹Rheumatology, Loma Linda University, Loma Linda, CA, ²Rheumatology/Int Med, Loma Linda University, Loma Linda, CA, ³Division of Rheumatology, Salt Lake City VA and University of Utah, Salt Lake City, UT, ⁴Department of Medicine, Loma Linda University Medical Center, Loma Linda, CA, ⁵Office of Academic Affiliation, VA Loma Linda Healthcare System, Loma Linda, CA
Does Psychological Safety Impact Learning Environments among Rheumatology Fellows: Findings from Veterans Affairs Learners' Perception SurveyGamboa JR, Torralba KD, Nguyen CN, Cannon GW, Baz S,…
Abstract Number: 2100 • 2013 ACR/ARHP Annual Meeting
A Scoping Review On Leisure Activity Expectations After Total Hip Or Knee Arthroplasty Due To Arthritis
Dina L. Jones¹ and Nirupama Semmalidinne², ¹Orthopaedics and Physical Therapy, West Virginia University, Morgantown, WV, ²Orthopaedics, West Virginia University, Morgantown, WV
Background/Purpose: It is important that patient expectations are met after total hip (THA) or knee (TKA) arthroplasty in order to maximize outcomes and satisfaction. Although…
Abstract Number: 1921 • 2013 ACR/ARHP Annual Meeting
Ask The Rheumatologist: Evaluating The Use Of a Patient Centered Web Based Service
Steven J. Katz, Rheumatology, University of Alberta, Edmonton, AB, Canada
Background/Purpose: Previous studies have demonstrated growing and significant patient use of the internet as a health resource. Yet, many web based resources have been shown…
Abstract Number: 1030 • 2013 ACR/ARHP Annual Meeting
Readability of Participant Information and Consent Forms for Rheumatology Clinical Trial Participants
Stephen Hall¹, Gail Grant² and Christina Meyer², ¹Melbourne Rheumatology, Melbourne, Australia, ²emeritus research, melbourne, Australia
Background/Purpose: To determine the readability of written information (Participant Information and Consent Forms [PICS]) provided to clinical trial participants prior to enrolment into a clinical…
Abstract Number: 990 • 2013 ACR/ARHP Annual Meeting
Utilizing Facebook Chats To Convey Health Information To Lupus Patients At The Systemic Lupus Erythematosus – Antiphospholipid Syndrome Center Of Excellence At Hospital For Special Surgery
Nadine H. Spring¹, Elyse Bernstein², Su Jin Kim³, Monica C. Richey¹, Jessica Rowshandel⁴ and Jane E. Salmon¹, ¹Rheumatology, Hospital for Special Surgery, New York, NY, ²Public Relations, Hospital for Special Surgery, New York, NY, ³Department of Social Work Programs, Hospital for Special Surgery, New York, NY, ⁴S.L.E. Lupus Foundation, New York, NY
Background/Purpose: The SLE-APS Center of Excellence at Hospital for Special Surgery (HSS) uses Facebook chats as a means to increase awareness, reach a wider audience,…
Abstract Number: 982 • 2013 ACR/ARHP Annual Meeting
Preferred Strategies For Delivering Treatment Information To People With Rheumatoid Arthritis, Osteoarthritis and Osteoporosis
Maria A. Lopez-Olivo¹, Robert Volk², Maria Jibaja-Weiss³ and Maria E. Suarez-Almazor⁴, ¹General Internal Medicine, University of Texas. M.D Anderson Cancer Center, Houston, TX, ²General Internal Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX, ³Office of Outreach and Health Disparities, Baylor College of Medicine, Houston, TX, ⁴The Department of General Internal Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX
Background/Purpose: To explore the perceptions of people with rheumatoid arthritis (RA), osteoarthritis (OA), and osteoporosis (OP) regarding their preferred delivery methods for obtaining treatment information…
Abstract Number: 963 • 2013 ACR/ARHP Annual Meeting
Impact Of a Nurse-Led Program On Comorbidity Management In Rheumatoid Arthritis (RA): Results Of a Prospective, Multicenter, Randomized, Controlled Trial
Martin Soubrier¹, Elodie Perrodeau², Melanie Gilson³, Alain G. Cantagrel⁴, Xavier le Loet⁵, René-Marc Flipo⁶, Sandrine Guis⁷, Gael Mouterde⁸, Liana E. Euller-Ziegler⁹, Thierry Schaeverbeke¹⁰, Bruno Fautrel¹¹, Alain Saraux¹², Isabelle Chary-Valckenaere¹³, Gérard Chales¹⁴, Emmanuelle Dernis¹⁵, Pascal Richette¹⁶, Xavier Mariette¹⁷, Francis Berenbaum¹⁸, Jean Sibilia¹⁹, Philippe Ravaud²⁰ and Maxime Dougados²¹, ¹Rheumatology, CHU CLERMONT-FERRAND, Clermont-Ferrand, France, ²Epidemiologist, Paris, France, ³CH Grenoble Hopital Sud, Grenoble, France, ⁴Dept of Rheumatology, Hopital Purpan, Toulouse CEDEX 9, France, ⁵Rheumatology Department, CHU de ROUEN, Rouen, France, ⁶Hôpitaux Universitaires de Lille, France, France, ⁷Rheumatology1, CRMBM UMR CNRS 7339, Aix Marseille Univ; AP-HM, Marseille, France, ⁸Rheumatology, Montpellier 1 University, Lapeyronie Hospital, Montpellier, France, ⁹Service de Rhumatologie, L Archet Hospital (University), Nice CEDEX 3, France, ¹⁰Rhumatology departement, Groupe Hospitalier Pellegrin, Bordeaux, France, ¹¹Rheumatology, UPMC - Paris 6 University, Paris, France, ¹²Rhumatologie, CHU de la Cavale Blanche, Brest Cedex, France, ¹³Rheumatology, Nancy Teaching Hospital, Nancy, France, ¹⁴CHU RENNES, Rennes, France, ¹⁵Centre Hospitalier, Le Mans, France, ¹⁶Centre Viggo Petersen / Service de Rhumatologie, Hôpital Lariboisière, Paris, France, ¹⁷Paris-Sud University, Paris, France, ¹⁸Rheumatology, AP-HP, St Antoine Hospital, Paris, France, ¹⁹Rheumatology, CHU Hautepierre, Strasbourg, France, ²⁰Epidemiology, Hopital Hotel Dieu, Paris Descartes University, Paris, France, ²¹Cochin Hospital, Paris, France
Background/Purpose: Patients with rheumatoid arthritis (RA) are at an increased risk of developing numerous comorbid conditions that affect both mortality and RA outcome. Objectives: To…
Abstract Number: 903 • 2013 ACR/ARHP Annual Meeting
A Qualitative Study Of The Educational Needs Of Children With Scleroderma and Their Parents
Cindy F. Mendelson¹, Ana-Alicia Huerta², Jane Kastning³, Bernadette Vargas³ and Janet L. Poole⁴, ¹College of Nursing, University of New Mexico, Albuquerque, NM, ²Univeristy of New Mexico, Albuquerque, NM, ³Occupational Therapy, University of New Mexico, Albuquerque, NM, ⁴Occupational Therapy Program, University of New Mexico, Albuquerque, NM
Background/Purpose: Scleroderma is a rare disease, especially in childhood. Skin changes can be physically disfiguring which can lead to lowered self-esteem, especially during the adolescent…
Abstract Number: 189 • 2013 ACR/ARHP Annual Meeting
Implementation Of a Methotrexate Self-Injection Education Video – Reducing Teaching Time While Maintaining Patient Confidence and Knowledge
Steven J. Katz¹ and Sylvia Leung², ¹Rheumatology, University of Alberta, Edmonton, AB, Canada, ²University of Alberta, Edmonton, AB, Canada
Background/Purpose: To compare the effect of standard nurse led methotrexate self-injection patient education to a methotrexate self-injection web based education video added to standard teaching on 1)…
Abstract Number: 2623 • 2012 ACR/ARHP Annual Meeting
Taking Charge of Systemic Sclerosis: A Pilot Study of an Internet Self-Management Program
Janet L. Poole¹, Dinesh Khanna², Betty Skipper³ and Cindy F. Mendelson⁴, ¹Occupational Therapy Program, University of New Mexico, Albuquerque, NM, ²Division of Rheumatology, University of Michigan Medical Center, Ann Arbor, MI, ³Family and Community Medicine, University of New Mexico, NM, ⁴College of Nursing, University of New Mexico, Albuquerque, NM
Background/Purpose: Systemic sclerosis (SSc) is an autoimmune connective tissue disease with serious implications for quality of life. The disease is challenging due to the variable…
Abstract Number: 2441 • 2012 ACR/ARHP Annual Meeting
Readability and Suitability Assessment of Patient Education Materials in Rheumatic Diseases
Rennie L. Rhee¹, Joan Marie Von Feldt², H. Ralph Schumacher³ and Peter A. Merkel⁴, ¹Rheumatology, University of Pennsylvania, Philadelphia, PA, ²Rheumatology, Univ of Pennsylvania/Philadelphia VAMC, Philadelphia, PA, ³Department of Medicine, University of Pennsylvania and VA Medical Center, Philadelphia, PA, ⁴University of Pennsylvania, Philadelphia, PA
Background/Purpose: Comprehension of health resources may be challenging for patients particularly those with limited health literacy. The objective of this study was to examine the…
Abstract Number: 2405 • 2012 ACR/ARHP Annual Meeting
A Proof-of-Concept Study of an Animated, Web-Based Methotrexate Decision Aid for Patients with Rheumatoid Arthritis
Linda C. Li¹, Paul M. Adam², Catherine L. Backman³, Sydney Brooks⁴, Gwen A. Ellert⁵, Allyson Jones⁶, Otto Kamensek⁷, Cheryl Koehn⁸, Diane Lacaille⁷, Colleen Maloney⁷, Anne F. Townsend⁹, Elaine Yacyshyn¹⁰, Charlene Yousefi⁷ and Dawn Stacey¹¹, ¹Department of Physical Therapy, University of British Columbia, Vancouver, BC, Canada, ²Rheumatology Liaison, Mary Pack Arthritis Centre, Vancouver, BC, Canada, ³Occupational Science & Occupational Therapy, The University of British Columbia, Vancouver, BC, Canada, ⁴The Arthritis Society, Ontario Division, Toronto, ON, Canada, ⁵Health Education, Trelle Enterprises Inc, Vancouver, BC, Canada, ⁶Department of Physical Therapy, University of Alberta, Edmonton, AB, Canada, ⁷Arthritis Research Centre of Canada, Vancouver, BC, Canada, ⁸Arthritis Consumer Experts, Vancouver, BC, Canada, ⁹Rheumatology, Arthritis Research Centre of Canada, Richmond, BC, Canada, ¹⁰562 Heritage Med Rsch Ctr, University of Alberta, Edmonton, AB, Canada, ¹¹School of Nursing, University of Ottawa, Ottawa, ON, Canada
Background/Purpose: Patient decision aids are designed to present the potential benefits and harm of treatment options, clarify individuals’ preferences, and guide discussion at a clinic…
Abstract Number: 2402 • 2012 ACR/ARHP Annual Meeting
Clinical Utility of the Hospital Anxiety and Depression Scale for an Outpatient Fibromyalgia Education Program
Diane Tin¹, Lorna J. Bain¹, J. Carter Thorne², Seungree Nam³ and Liane Ginsburg⁴, ¹The Arthritis Program, Southlake Regional Health Centre, Newmarket, ON, Canada, ²Southlake Regional Health Centre, Newmarket, ON, Canada, ³Faculty of Heatlh, York University, Toronto, ON, Canada, ⁴School of Health Policy and Management, York University, Toronto, ON, Canada
Background/Purpose: The Arthritis Program (TAP) at Southlake Regional Health Centre has offered an inter-professional, patient centered Fibromyalgia (FM) education program for nearly two decades. This…

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