Abstracts tagged "patient"

Abstract Number: 170 • 2019 ACR/ARP Annual Meeting
Evaluating an Illustrated Storybook for Children with Juvenile Idiopathic Arthritis
Jimin Lee¹, Dennis Newhook ², Kaylee Eady ² and Roman Jurencak ¹, ¹Children's Hospital of Eastern Ontario, Ottawa, ON, Canada, ²CHEO Research Institute, Ottawa, ON, Canada
Background/Purpose: While juvenile idiopathic arthritis (JIA) is a common pediatric rheumatic disease, there is a lack of available child-friendly patient education materials. An illustrated storybook…
Abstract Number: 209 • 2019 ACR/ARP Annual Meeting
Joint Overuse in Patients with Rheumatoid Arthritis
Daisuke Kobayashi¹, Sachimi Amao ², Satoshi Ito ³, Kiyoshi Nakazono ³, Hajime Ishikawa ⁴ and Ichiei Narita ¹, ¹Division of Clinical Nephrology and Rheumatology, Niigata University, Niigata, Niigata, Japan, ²Nursing department, Niigata Rheumatic Center, Shibata, Japan, ³Department of Rheumatology, Niigata Rheumatic Center, Shibata, Japan, ⁴Department of Rheumatology, Niigata Rheumatic Center, Shibata, Niigata, Japan
Background/Purpose: The development of drug therapies for rheumatoid arthritis (RA), and control of synovitis has now become easier. However, once patients are relieved of pain,…
Abstract Number: 515 • 2018 ACR/ARHP Annual Meeting
How Knowledgeable Are Patients with Rheumatoid Arthritis about Cardiovascular Disease?
Meenakshi Jolly¹, Aman Kugasia², Salik Hussaini², Joshlean Fair³, Mondira Sengupta⁴, Lisa Walt⁵, Rasa Kazkauskaite⁶ and Joel A. Block³, ¹Rush University Medical Center, Chicago, IL, ²Division of Rheumatology, Rush University Medical Center, Chicago, IL, ³Rheumatology, Rush University Medical Center, Chicago, IL, ⁴John H Stroger Hospital of Cook County, Chicago, IL, ⁵American Hospital Association, Chicago, IL, ⁶Rush University, chicago, IL
Background/Purpose: Despite dramatic change in treatment options in recent years, cardiovascular disease (CVD) mortality has not improved in rheumatoid arthritis (RA) and remains the leading…
Abstract Number: 1372 • 2018 ACR/ARHP Annual Meeting
An Analysis of the Quality and Readability of Online Osteoarthritis Information with Historical Comparison
Kieran Murray¹, Tim Murray², Anna O'Rourke³, Candice Low⁴ and Douglas J. Veale⁴, ¹Rheumatology, Saint Vincent's University Hospital, Dublin 4, Ireland, ²Beaumont Hospital, Dublin, Ireland, ³Saint Vincent's University Hospital, Dublin 4, Ireland, ⁴Centre for Arthritis and Rheumatic Diseases, Dublin Academic Medical Centre, University College Dublin, Dublin, Ireland
Background/Purpose: OA is the most common cause of disability in people >65 years old.Most patients in the USA use the internet for healthcare information. The…
Abstract Number: 1400 • 2018 ACR/ARHP Annual Meeting
Effects of Childhood-Onset SLE on Academic Achievements and Employment in Adult Life
Noortje Groot¹, Marc Bijl², Radboud J. E. M. Dolhain³, Els J. Zirkzee⁴, Ruth D.E. Fritsch-Stork⁵, Y.K. Onno Teng⁶, Karina de Leeuw⁷, Irene E.M. Bultink⁸ and Sylvia S.M. Kamphuis⁹, ¹Paediatric Rheumatology, Erasmus Medical Centre - Sophia Children's Hospital, Rotterdam, Netherlands, ²Internal Medicine and Rheumatology, Martini Hospital, Groningen, Netherlands, ³Rheumatology, Erasmus University Medical Center, Rotterdam, Netherlands, ⁴Department of Rheumatology, Maasstad Hospital, Rotterdam, Netherlands, ⁵Department of Rheumatology and Clinical Immunology, University Medical Center Utrecht, Utrecht, Netherlands, ⁶Department of Nephrology, Leiden University Medical Center, Leiden, the Netherlands, Leiden, Netherlands, ⁷Rheumatology and Clinical Immunology, University Medical Center Groningen, Groningen, Netherlands, ⁸Rheumatology, Amsterdam Rheumatology and immunology Center | VU University Medical Center, Amsterdam, Netherlands, Amsterdam, Netherlands, ⁹Pediatric Rheumatology, Sophia Children's Hospital – Erasmus University Medical Center, Rotterdam, Netherlands
Background/Purpose: To investigate the effects of cSLE on education, vocation and employment in a large cohort of adults with cSLE. Methods: Patients were seen by…
Abstract Number: 1706 • 2018 ACR/ARHP Annual Meeting
Development of an Online Lupus Self-Management Program Based on the Transtheoretical Model of Change
Sarah Gilman¹, Deborah Levesque², Carol Cummins², Daniel J. Wallace³, Victoria P. Werth^4,5, Rosalind Ramsey-Goldman⁶, Margaret Kaniewski⁷ and Patricia Davidson⁸, ¹Wayfinder Health Strategies, Falls Church, VA, ²ProChange Behavior Systems Inc., West Kingston, RI, ³Division of Rheumatology, Cedars Sinai Medical Center, Los Angeles, CA, ⁴Philadelphia Veterans Affairs Medical Center, Philadelphia, PA, ⁵University of Pennsylvania, Philadelphia, PA, ⁶FSM, Northwestern University, Chicago, IL, ⁷Centers for Disease Control & Prevention, Atlanta, GA, ⁸Lupus Foundation of America, Washington, DC
Background/Purpose: The Lupus Foundation of America is in Year 3 of a 5-year cooperative agreement with the Centers for Disease Control and Prevention to develop…
Abstract Number: 2183 • 2018 ACR/ARHP Annual Meeting
Access to Prescription Drugs in Canada: Results from an Online Survey
Nick Bansback^1,2,3, Cheryl L. Koehn⁴, Judy Chiu⁵, Melanie Mulder⁶ and Linda Li¹, ¹Arthritis Research Canada, Richmond, BC, Canada, ²University of British Columbia, Vancouver, BC, Canada, ³St Paul's Hospital, Centre for Health Evaluation and Outcomes Sciences, Vancouver, BC, Canada, ⁴Arthritis Consumer Experts, Vancouver, BC, Canada, ⁵Centre for Health Evaluation and Outcome Sciences, Vancouver, BC, Canada, ⁶St Paul's Hospital, Vancouver, BC, Canada
Background/Purpose: Prescription medications are an important treatment option for patients living with arthritis. However, patients may often not have access to certain medications they hear…
Abstract Number: 2192 • 2018 ACR/ARHP Annual Meeting
User Experience with Methotrexate in Managing Inflammatory Arthritis Under the Support of an Interprofessional Arthritis Care Team (UMTX Study)
Diane Tin¹, Marie Craig¹, Carolyn Dittmar², Carter Thorne², Nooshin Samadi¹, Edward Ng² and Aubrey Michael², ¹The Arthritis Program, Southlake Regional Health Centre, Newmarket, ON, Canada, ²Southlake Regional Health Centre, Newmarket, ON, Canada
Background/Purpose: Methotrexate (MTX) is the cornerstone for the treatment of RA as monotherapy or in combination. While its cost effectiveness in halting the disease is…
Abstract Number: 2360 • 2018 ACR/ARHP Annual Meeting
Perceptions of Patients with Rheumatoid Arthritis about Self-Assessment of Disease Activity after Watching an Educational Video: Qualitative Pilot Results from the Auto-DAS in Middle Eastern Arab Countries Study
Nelly Ziade¹, Sahar Saad², Manal al Mashaleh³, Lina el Kibbi⁴, Bassel el Zorkany⁵, Humeira Badsha⁶, Ghita Harifi⁶, Amani Daher⁷, Nelly Salloum⁸, Basel Masri⁹ and Thurayya Arayssi¹⁰, ¹Rheumatology, Saint-Joseph University, Beirut, Lebanon, ²Rheumatology, King Hamad University Hospital, Bahrain, Bahrain, ³Rheumatology, King Hussein Medical Center, Royal Medical Services, Amman, Jordan, ⁴Rheumatology, Specialized Medical Center, Riyadh, Saudi Arabia, ⁵Rheumatology, Cairo University, Cairo, Egypt, ⁶Dr. Humeira Badsha Medical Center, Dubai, United Arab Emirates, ⁷Medicine, Saint-Joseph University, Beirut, Lebanon, ⁸Registered Nurse, Beirut, Lebanon, ⁹Rheumatology, Jordan Hospital, Amman, Jordan, ¹⁰Medicine, Weill Cornell Medicine-Qatar, Doha, Qatar
Background/Purpose: Empowering RA patients through education is linked to improved adherence, treatment decisions and speeding up the assessment process during consultation. The purpose of the…
Abstract Number: 2361 • 2018 ACR/ARHP Annual Meeting
Needs, Experiences and Views of People with Rheumatic and Musculoskeletal Diseases about Self-Management Mobile Health Apps: Results of a Mixed Methods Approach
Aurélie Najm¹, Elena Nikiphorou², Heidi Lempp³, Laure Gossec⁴ and Francis Berenbaum⁵, ¹Department of Rheumatology, Nantes University Hospital, Nantes, France, ²Academic Rheumatology, Department of Inflammation Biology, King's College London, London, Great Britain, ³Department of Inflammation Biology, King's College London, London, United Kingdom, ⁴Rheumatology, Pitié Salpêtrière Hospital, Paris, France, ⁵AP-HP Saint-Antoine hospital, Service de Rhumatologie, Inserm UMRS_938, Paris, France
Background/Purpose: While the increasing availability of apps may enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health, evidence on the development…
Abstract Number: 2410 • 2018 ACR/ARHP Annual Meeting
Determining the Need for Fatigue Management Resources for Young Adults with Rheumatic Disease
Kristine Carandang¹ and Janet L. Poole², ¹Chan Division of Occupational Science & Occupational Therapy, University of Southern California, Los Angeles, CA, ²Health Sciences Ctr OT Program, University of New Mexico, Albuquerque, NM
Background/Purpose: Fatigue is a multi-faceted symptom of rheumatic disease that has high priority among patients due to its far-reaching effects on roles and relationships. There…
Abstract Number: 2418 • 2018 ACR/ARHP Annual Meeting
Awareness of Fertility and Contraception Issues Among Women with Rheumatologic Diseases
Christina Payne¹, Meagan Clark², Sneha Patel³, Tanya Allawh³, Mei-An Ty-Arias², Ashley Davis² and Arundathi ‎ Jayatilleke ‎⁴, ¹Rheumatology, Drexel University COM/ HUH, Philadelphia, PA, ²Drexel University COM, Philadelphia, PA, ³Internal Medicine, Drexel University COM, Philadelphia, PA, ⁴Rheumatology, Drexel University COM, Philadelphia, PA
Background/Purpose: Because many autoimmune conditions preferentially affect women of childbearing age and both disease and treatment can negatively affect pregnancy outcomes, healthcare providers to women…
Abstract Number: 2589 • 2018 ACR/ARHP Annual Meeting
Clinical Characteristics and Treatment Profile of Patients with Psoriatic Arthritis Who Initiated Secukinumab and Other Biologics: Results from the Corrona Psoriatic Arthritis/Spondyloarthritis (PsA/SpA) Registry
Alexis Ogdie¹, Mei Liu², Sabrina Rebello³, Meghan Glynn², Peter Hur⁴ and Philip J. Mease⁵, ¹Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, ²Corrona, LLC, Waltham, MA, ³Corrona, LLC, Southborough, MA, ⁴Novartis Pharmaceuticals Corporation, East Hanover, New Jersey, USA, East Hanover, NJ, ⁵Swedish Medical Center and University of Washington, Seattle, WA
Background/Purpose: Few real-world studies have characterized patients with psoriatic arthritis (PsA) who initiate secukinumab. This study described characteristics of patients who initiated secukinumab and other…
Abstract Number: 2944 • 2018 ACR/ARHP Annual Meeting
Longitudinal Outcomes and Predictors of E-Learning Effectiveness in Patients with Axial Spondyloarthritis: A Randomized Controlled Trial
Daeria O. Lawson¹, Ahmed Omar^1,2, Rita Kang³, Nigil Haroon^1,2, Robert D Inman^1,4 and Laura Passalent^1,5, ¹Rheumatology, Toronto Western Hospital, Toronto, ON, Canada, Toronto, ON, Canada, ²Rheumatology, University of Toronto, Toronto, ON, Canada, Toronto, ON, Canada, ³Patient and Family Education, Toronto Western Hospital, Toronto, ON, Canada, Toronto, ON, Canada, ⁴University of Toronto, Toronto, ON, Canada, Toronto, ON, Canada, ⁵Department of Physical Therapy, University of Toronto, Toronto, ON, Canada, Toronto, ON, Canada
Background/Purpose: There is evidence that education programs are effective (e.g. improved disease activity and quality of life) for patients with arthritis, but little is known…
Abstract Number: PP13 • 2018 ACR/ARHP Annual Meeting
Support Groups and Patient Centred Care; Making a Difference in the Lives of People with Autoimmune and Rheumatic Conditions in Ghana
Paulina Padiki Narh¹, Abdul Aziz A. Adodo Can-Tamakloe¹ and Ida Dzifa Dey², ¹The Rheumatology Initiative tRi, Accra, Ghana, ²Department of Medicine, Rheumatology Unit, School of Medicine and Dentistry,University of Ghana, Accra, Ghana
Background/Diagnosis: I felt relieved when my diagnosis was confirmed, but upon hearing Lupus and Nephritis and no cure, I felt shattered. I was referred to…

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