ACR Meeting Abstracts

ACR Meeting Abstracts

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Abstracts tagged "patient-reported outcome measures and systemic lupus erythematosus (SLE)"

  • Abstract Number: 723 • 2018 ACR/ARHP Annual Meeting

    Patient-Reported Cognitive Screen Does Not Identify Cognitive Sub-Domains: Exploration of the Subscale Structure of the Perceived Deficits Questionnaire in a Systemic Lupus Erythematosus Cohort

    Lisa Engel1, Jiandong Su1, Emily Nalder2, Yael Goverover3, Monique Gignac4, Carmela Tartaglia5, Nicole Anderson1 and Zahi Touma1, 1University of Toronto, Toronto Western Hospital, Toronto, ON, Canada, 2Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON, Canada, 3Department of Occupational Therapy, New York University, New York, NY, 4Instititue for Work and Health, Toronto, ON, Canada, 5University of Toronto, Krembil Neurosciences Centre, Toronto, ON, Canada

    Background/Purpose: Identifying patients with Systemic Lupus Erythematosus related cognitive impairment (SLE-CI) is critical as SLE-CI can negatively affect employment, quality of life, and disease self-management.…
  • Abstract Number: 1403 • 2018 ACR/ARHP Annual Meeting

    Estimates of Minimally Important Differences and Patient Acceptable Symptom State in Five Patient-Reported Outcomes Measurement Information System Short-Forms Among Individuals with SLE

    Patricia Katz1,2, Evo Alemao3, Jayanti Mukherjee3 and Kaleb Michaud2,4, 1Forward/National Data Bank for Rheumatic Diseases, Wichita, KS, 2University of California San Francisco, San Francisco, CA, 3Bristol-Myers Squibb, Princeton, NJ, 4Rheumatology, University of Nebraska Medical Center, Omaha, NE

    Background/Purpose: As the NIH PROMIS (Patient-Reported Outcomes Measurement Information System) measures are used more widely, information is needed to enhance interpretation. Minimally important differences (MIDs;…
  • Abstract Number: 1667 • 2018 ACR/ARHP Annual Meeting

    Confirmatory Factor Analysis of the Patient-Reported Perceived Deficits Questionnaire in Systemic Lupus Erythematosus: Cautions for Use of Subscales

    Lisa Engel1, Jiandong Su1, Emily Nalder2, Yael Goverover3, Monique Gignac4, Carmela Tartaglia5, Nicole Anderson1 and Zahi Touma1, 1University of Toronto, Toronto Western Hospital, Toronto, ON, Canada, 2Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON, Canada, 3Department of Occupational Therapy, New York University, New York, NY, 4Instititue for Work and Health, Toronto, ON, Canada, 5University of Toronto, Krembil Neurosciences Centre, Toronto, ON, Canada

    Background/Purpose:  Approximately 38% of adults living with Systemic Lupus Erythematosus (SLE) experience cognitive impairment (CI) that can detrimentally affect employment, disease self-management, and quality of…
  • Abstract Number: 230 • 2017 ACR/ARHP Annual Meeting

    The Impact of Limited Health Literacy on Patient-Reported Outcomes (PROs) in Systemic Lupus Erythematosus (SLE)

    Patricia P. Katz1, Maria Dall'Era2, Laura Trupin3, Cristina Lanata2, Stephanie Rush4, Charles G. Helmick5, Lindsey A. Criswell4 and Jinoos Yazdany3, 1Medicine, University of California, San Francisco, San Francisco, CA, 2Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA, 3Medicine/Rheumatology, University of California San Francisco, San Francisco, CA, 4University of California, San Francisco, San Francisco, CA, 5Centers for Disease Control and Prevention, Atlanta, GA

    Background/Purpose: PROs play a prominent role in evaluating patient status in rheumatic diseases. PROs often reveal disparities in individuals with low education or income or…
  • Abstract Number: 1806 • 2017 ACR/ARHP Annual Meeting

    Performance of the Brief Index of Lupus Damage (BILD) in a Multi-Ethnic Population-Based Systemic Lupus Erythematosus (SLE) Cohort

    Patricia P. Katz1, Maria Dall'Era2, Laura Trupin3, Stephanie Rush4, Charles G. Helmick5, Lindsey A. Criswell4 and Jinoos Yazdany3, 1Medicine, University of California, San Francisco, San Francisco, CA, 2Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA, 3Medicine/Rheumatology, University of California San Francisco, San Francisco, CA, 4University of California, San Francisco, San Francisco, CA, 5Centers for Disease Control and Prevention, Atlanta, GA

    Background/Purpose: The BILD1,2 was developed and validated as a measure of SLE organ damage for use in epidemiologic studies in which administration of the SLICC…
  • Abstract Number: 2201 • 2016 ACR/ARHP Annual Meeting

    Self-Reported Breathlessness on Exertion Is Associated with Poor Outcomes Among Women with Systemic Lupus Erythematosus (SLE)

    Patricia P. Katz1, Sofia Pedro2, Robert S. Katz3, Frederick Wolfe4 and Kaleb Michaud5, 1Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA, 2National Data Bank for Rheumatic Diseases, Wichita, KS, 3Rush University Medical Center, Chicago, IL, 4National Data Bank, Wichita, KS, 5University of Nebraska Medical Center, Omaha, NE

    Background/Purpose:  Breathlessness is often considered as a predictor of functional outcomes in pulmonary disease, but has not been examined in SLE. Methods:  Data were from…
  • Abstract Number: 1064 • 2015 ACR/ARHP Annual Meeting

    Feasibility and Validity of Patient Reported Outcome Measurement Information System (PROMIS) in SLE

    Shanthini Kasturi1, Jayme C. Burket2, Jessica Berman1, Kyriakos A. Kirou1, Alana B. Levine1, Lisa R. Sammaritano1 and Lisa Mandl1,3, 1Rheumatology, Hospital for Special Surgery, New York, NY, 2Healthcare Research Institute, Hospital for Special Surgery, New York, NY, 3Department of Rheumatology, Hospital for Special Surgery, New York, NY

    Background/Purpose: Accurate measurement of patient reported outcomes (PROs) is particularly important in SLE, a heterogeneous disease in which similar symptoms can have disparate impact across…
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ACR Pediatric Rheumatology Symposium 2020

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