Abstracts tagged "patient preferences and pulmonary complications"

Abstract Number: 1468 • 2012 ACR/ARHP Annual Meeting
Patient Perspective Informs Core Sets, Constructs of Metrics and Communication Tools for Patients with Connective Tissue Disease Related Interstitial Lung Disease
Shikha Mittoo¹, Sid Frankel², Daphne LeSage³, Flavia V. Castelino⁴, Lisa Christopher-Stine⁵, Sonye Danoff⁶, Aryeh Fischer⁷, Laura K. Hummers⁸, Ami A. Shah⁸, Jeffery J. Swigris⁹, Sophia Cenac¹⁰, Sancia Ferguson¹¹, Ignacio Garcia-Valladares¹², Maithy Tran¹³, Harmanjot K. Grewal¹⁴ and Lesley Ann Saketkoo¹⁵, ¹Medicine, Mount Sinai Hospital/University of Toronto, Toronto, ON, Canada, ²University of Manitoba, Winnipeg, Canada, ³Center for CCH at State of Louisiana, New Orleans, LA, ⁴Rheumatology, Massachusetts General Hospital, Boston, MA, ⁵Medicine and Neurology, Johns Hopkins University, Baltimore, MD, ⁶Medicine/Pulmonary, Johns Hopkins School of Medicine, Baltimore, MD, ⁷Rheumatology / ILD Program, National Jewish Health, Denver, CO, ⁸Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ⁹Autoimmune Lung Center, National Jewish Health, Denver, CO, ¹⁰Scleroderma and Sarcoidosis Patient Care and Research Center, Louisiana State University Health Science Center, New Orleans, LA, ¹¹Tulane University School of Medicine, ¹²Rheumatology, Guadalajara, Guadalajara, Mexico, ¹³Rheumatology, University of Toronto, Toronto, ON, Canada, ¹⁴Rheumatology, Lousiana State University Health Sciences Center, New Orleans, LA, ¹⁵LSU Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, LA
Background/Purpose: Limited information on the patient experience exists in CTD-ILD. Herein supports that the patients' perspective is essential to informing clinical practice and in…

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