Abstracts tagged "patient outcomes"

Abstract Number: 1263 • 2017 ACR/ARHP Annual Meeting
Relevance and Utility of Patient Reported Outcomes Measurement Information System (PROMIS®) Instruments in SLE: A Qualitative Study
Shanthini Kasturi¹, Madeline Epsten², Adena Batterman³, Roberta Horton³, Juliette Kleinman³, Jillian Rose³, Jackie Szymonifka², Laura Robbins⁴ and Lisa A. Mandl¹, ¹Rheumatology, Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, ²Rheumatology, Hospital for Special Surgery, New York, NY, ³Social Work Programs, Hospital for Special Surgery, New York, NY, ⁴Education & Academic Affairs, Hospital for Special Surgery, New York, NY
Background/Purpose: The measurement of patient reported outcomes is a priority for patient-centered high value care. This is particularly true in chronic systemic diseases such as…
Abstract Number: 1306 • 2017 ACR/ARHP Annual Meeting
Predictors of Contraceptive Use Among Reproductive-Age Women with Rheumatic Diseases
Mehret Birru Talabi¹ and Sonya Borrero², ¹Rheumatology and Clinical Immunology, University of Pittsburgh School of Medicine, Pittsburgh, PA, ²Internal Medicine, University of Pittsburgh School of Medicine, Pittsburgh, PA
Background/Purpose: Contraception helps reproductive-age women with rheumatic diseases to avoid or plan pregnancies so that disease quiescence on safe medications may first be achieved. However,…
Abstract Number: 1351 • 2017 ACR/ARHP Annual Meeting
Minimal Clinically Important Improvement (MCII) of RAPID3 (ROUTINE ASSESSMENT OF PATIENT INDEX DATA 3), an INDEX of ONLY Patient Self-Report Scores in Rheumatoid Arthritis (RA): Similar Performance to DAS28 and CDAI
Michael Ward¹, Isabel Castrejón², Martin J. Bergman³, Lori C. Guthrie⁴, Maria I. Alba⁴ and Theodore Pincus², ¹NIH/NIAMS, Bethesda, MD, ²Rheumatology, Rush University Medical Center, Chicago, IL, ³Drexel University College of Medicine, philadelphia, PA, ⁴NIAMS/NIH, Bethesda, MD
Background/Purpose: No single “gold standard” measure is available to assess patients with rheumatoid arthritis (RA) in clinical trials and routine care, as in hypertension, diabetes,…
Abstract Number: 1804 • 2017 ACR/ARHP Annual Meeting
Patient-Reported Outcomes and Damage Predict Mortality in Lupus
Desiree R Azizoddin¹, Meenakshi Jolly², Patricia P. Katz³ and Edward H. Yelin⁴, ¹Department of Psychology, Loma Linda University, Loma Linda, CA, ²Rush, Chicago, IL, ³Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA, ⁴Medicine/Rheumatology, University of California San Francisco, San Francisco, CA
Background/Purpose: Physician-assessed disease activity and damage predict mortality in systemic lupus erythematosus (SLE). Patient-reported outcomes (PROs) are known predictors of mortality in other chronic diseases,…
Abstract Number: 2030 • 2017 ACR/ARHP Annual Meeting
Patient Motivation in Inflammatory Arthritis: The Use of Ultrasound-Guided Patient Education to Endorse Medication Adherence and Facilitate Cost-Effective Targeted Management
Yasser M. El Miedany^1,2, Maha El Gaafary³, Nadia El Aroussy¹, Sally Youssef⁴ and Deborah Palmer⁵, ¹Rheumatology and Rehabilitation, Ain Shams University, Cairo, Egypt, ²Rheumatology, Darent Valley Hospital, Dartford, United Kingdom, ³Community, Environmental and Occupational Medicine, Ain Shams University, Abbassia, Egypt, ⁴Rheumatology & Rehabilitation, Ain Shams University, Cairo, Egypt, ⁵Rheumatology, North Middlesex University Hospital, London, United Kingdom
Background/Purpose: To assess the value of sharing the real-time ultrasound (US) images of the inflamed joints/ tendons with inflammatory arthritis patients and its impact on:…
Abstract Number: 2252 • 2017 ACR/ARHP Annual Meeting
Initial Validation of Patient-Reported Outcomes Measurement Information System (PROMIS®) in Children with Juvenile Myositis
Kaveh Ardalan^1,2, David Cella³, Lauren M. Pachman⁴, Elizabeth L. Gray⁵, Julia (Jungwha) Lee⁵, Kyle Fahey^6,7, Madison Wolfe^6,7, Megan L. Curran^7,8, Mariana C. Marques^6,7 and Rowland W. Chang⁹, ¹Departments of Pediatrics and Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, ²Division of Rheumatology, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, ³Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁴Cure JM Program of Excellence in Juvenile Myositis Research, Stanley Manne Children’s Research Institute, affiliated with Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, ⁵Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁶Division of Rheumatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, ⁷Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁸Division of Rheumatology, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, ⁹Preventive Medicine, Medicine, and Physical Medicine & Rehabilitation, Northwestern University Feinberg School of Medicine, Chicago, IL
Background/Purpose: Juvenile myositis (JM) can worsen quality of life (QoL) via proximal weakness, rashes, and treatments side effects. QoL legacy instruments may be limited by…
Abstract Number: 2254 • 2017 ACR/ARHP Annual Meeting
Disability (HAQ) and Quality of Life (SF-12) As Related to Adherence and Health Literacyin Patients with Rheumatoid Arthritis – the Trace-Study
Jens Gert Kuipers¹, Michael Koller², Florian Zeman², Karolina Mueller² and Jens Ulrich Rueffer³, ¹Department of Rheumatology, Red Cross Hospital Bremen, Bremen, Germany, ²University Hospital Regensburg, Center for Clinical Studies, Regensburg, Germany, ³German Fatigue Society, Cologne, Germany
Background/Purpose: Disabilities in daily living and quality of life are key endpoints to evaluate the outcome of treatment for rheumatoid arthritis (RA). Among factors that…
Abstract Number: 2261 • 2017 ACR/ARHP Annual Meeting
Supporting Smoking Cessation in RA and SLE: Identifying Patient-Centered Outcomes
Aimée Wattiaux¹, Laura Block², Andrea Gilmore-Bykovskyi², Edmond Ramly³, Jane Sadusky⁴, Megan Piper⁵, Brittany Bettendorf⁶, Ann Rosenthal⁷ and Christie M. Bartels⁸, ¹Department of Medicine, University of Wisconsin School of Medicine and Public Health, Madison, WI, ²University of Wisconsin School of Nursing, Madison, WI, ³Industrial and Systems Engineering, University of Wisconsin College of Engineering, Madison, WI, ⁴Research Consultant, Madison, WI, ⁵University of Wisconsin Center for Tobacco Research and Intervention, Madison, WI, ⁶Rheumatology, Medical College of Wisconsin, MIlwaukee, WI, ⁷Division of Rheumatology, Medical College of Wisconsin, Milwaukee, WI, ⁸Rheumatology/Medicine, University of Wisconsin - Madison, Madison, WI
Background/Purpose: Patients with RA and SLE are at higher risk for premature cardiovascular disease (CVD) than peers. Smoking is a leading modifiable risk factor for…
Abstract Number: 337 • 2017 ACR/ARHP Annual Meeting
Patient-Reported Flares Were Correctly Predicted By an Algorithm Using Machine-Learning Statistics on Activity Tracker Data on Steps, in a Longitudinal 3-Month Study of 170 Patients with Rheumatoid Arthritis (RA) or Axial Spondyloarthritis (axSpA)
Laure Gossec¹, Frédéric Guyard², Didier Leroy³, Thomas Lafargue², Michel Seiler³, Charlotte Jacquemin¹, Anna Molto⁴, Jeremie Sellam⁵, Violaine Foltz¹, Frédérique Gandjbakhch¹, Christophe Hudry⁶, Stéphane Mitrovic¹, Bruno Fautrel¹ and Herve Servy⁷, ¹UPMC University Paris 06, Pitié-Salpétrière Hospital, Paris, France, ²IMT, Orange, Nice, France, ³Healthcare, Orange, Paris, France, ⁴Hôpital Cochin, Department of Rheumatology, Paris Descartes University, Paris, France, ⁵Rheumatology, Saint-Antoine Hospital, Paris, France, ⁶AP-HP Hôpital Cochin, Paris, France, ⁷e-health services, Sanoia, Gemenos, France
Background/Purpose: The natural history of RA and axSpA comprises periods of low disease activity and flares. However, there are few data linking patient-reported flares to…
Abstract Number: 2535 • 2017 ACR/ARHP Annual Meeting
Patient Outcomes from a Tertiary Center Combined Rheumatology-Dermatology Clinic
Charis Gn¹, Delaney Conway², Joanne Cunha³, Abrar Qureshi⁴, So Yeon Paek⁵ and Anthony M. Reginato⁶, ¹Division of Rheumatology, The Warren Alpert Medical School of Brown University, Providence, RI, ²Internal Medicine, Rhode Island Hospital, The Warren Alpert Medical School of Brown University, Providence, RI, ³Division of Rheumatology, The Warren Alpert Medical School of Brown University, East Providence, RI, ⁴Dermatology, Rhode Island Hospital, The Warren Alpert Medical School of Brown University, Providence, RI, ⁵Departmet of Dermatology, The Warren Alpert Medical School of Brown University, Providence, RI, ⁶Rhode Island Hospital, The Warren Alpert School of Medicine at Brown University, Providence, RI
Background/Purpose: Many autoimmune diseases have both musculoskeletal and cutaneous manifestations, which historically have been managed separately by rheumatologists and dermatologists. Given the complex presentation of…
Abstract Number: 358 • 2017 ACR/ARHP Annual Meeting
Patients and Physicians Have Different Perceptions of the Relative Bother of the Symptoms and Impacts on Daily Activities in Psoriasis and Psoriatic Arthritis
M. Elaine Husni^1,2, Anthony Fernandez¹, Rakesh Singh³, Brett Hauber⁴, Jessie Sutphin⁴, Joshua Posner⁴ and Arijit Ganguli³, ¹Cleveland Clinic, Cleveland, OH, ²Rheumatology Dept A50, Cleveland Clinic Foundation, Cleveland, OH, ³AbbVie Inc., North Chicago, IL, ⁴RTI Health Solutions, Research Triangle Park, NC
Background/Purpose: Psoriasis and psoriatic arthritis arise from the same immune system response but result in different symptoms and impacts on daily activities. A patient with…
Abstract Number: 2693 • 2017 ACR/ARHP Annual Meeting
Relationships between Levels of Patient Activation, Self-Efficacy, and Demographic Variables in Systemic Sclerosis
Janet L. Poole¹, Veronica J. Berrocal², Jennifer Serrano³, Erica Bush³ and Dinesh Khanna³, ¹Health Sciences Ctr OT Program, 1 University of New Mexico, Albuquerque, NM, ²Div of Rheumatology, University of Michigan, Ann Arbor, MI, ³University of Michigan, Ann Arbor, MI
Background/Purpose: Patient activation refers to the ability and confidence people have to be engaged in managing their health care [Hibbard, 2004]. Knowledge and beliefs about…
Abstract Number: 435 • 2017 ACR/ARHP Annual Meeting
Characteristics of Rheumatoid Arthritis Patients Who Have a DMARD Interruption and the Impact of Using a Bridging Medication on Clinical and Patient Reported Outcomes
Christine Iannaccone¹, Michelle Frits², Taysir G. Mahmoud³, Gabriela Maica⁴, Jonathan Coblyn⁵, Michael Weinblatt² and Nancy A. Shadick⁶, ¹Rheumatology, Immunology and Allergy, Brigham and Women's Hospital, Boston, MA, ²Rheumatology, Immunology and Allergy, Brigham and Women's Hospital and Harvard Medical School, Boston, MA, ³Division of Rheumatology, Immunology and Allergy, Brigham and Women's Hospital and Harvard Medical School, Boston, MA, ⁴Department of Rheumatology, Allergy, and Immunology, Brigham and Women's Hospital, Boston, MA, ⁵Department of Rheumatology, Brigham & Womens Hospital, Boston, MA, ⁶Rheumatology Immunology & Allergy, Brigham and Women's Hospital and Harvard Medical School, Boston, MA
Background/Purpose: It is common for RA patients to interrupt their DMARD use due to events like infection, surgery, or pregnancy. Many RA patients may need…
Abstract Number: 2942 • 2017 ACR/ARHP Annual Meeting
One Year Changes in Ultrasound Findings in the Feet Are Associated with Patient Reported Outcomes but Not Clinical Examination: a Prospective Observational Study of Patients with Early Rheumatoid Arthritis
Hanyan Zou¹, Karen A. Beattie², George Ioannidis³ and Maggie Larche², ¹McMaster University, Hamilton, ON, Canada, ²Medicine, McMaster University, Hamilton, ON, Canada, ³St Joseph's Healthcare Hamilton, Hamilton, ON, Canada
Background/Purpose: Despite extensive involvement of the feet in early RA, few studies report clinical and imaging changes in the feet over time. In this observational…
Abstract Number: 745 • 2017 ACR/ARHP Annual Meeting
An International Qualitative Research Study Exploring the Patient Experience of Raynaud’s Phenomenon in Systemic Sclerosis
John D. Pauling^1,2, Robyn T. Domsic³, Lesley Ann Saketkoo⁴, Celia Almeida⁵, Tracy M. Frech⁶, Francesca Ingegnoli⁷, Jane Withey⁸, Hilary Jay⁸, Emma Dures⁹, Joanna Robson¹⁰, Neil J. McHugh^11,12, Ariane L. Herrick^13,14, Marco Matucci-Cerinic¹⁵, Dinesh Khanna¹⁶ and Sarah Hewlett¹⁷, ¹Department of Pharmacy and Pharmacology, University of Bath, Bath, United Kingdom, ²Department of Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, United Kingdom, ³Medicine - Rheumatology, University of Pittsburgh, Pittsburgh, PA, ⁴Tulane, New Orleans, LA, ⁵HAS - Nursing and Midwifery, University of the West of England, Bristol, United Kingdom, ⁶Division of Rheumatology, University of Utah, Salt Lake City, UT, ⁷Dept. of clinical and community science, Rheumatology, Istituto G. Pini, University of Milan, Milano, Italy, ⁸Patient Research Partner, Bath, United Kingdom, ⁹Academic Rheumatology, Bristol, University of the West of England, Bristol, Bristol, United Kingdom, ¹⁰Rheumatology, University of the West of England (UWE Bristol), Bristol, United Kingdom, ¹¹Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, United Kingdom, ¹²Department of Pharmacy and Pharmacology, The University of Bath, Bath, United Kingdom, ¹³Centre for Musculoskeletal Research, University of Manchester, MAHSC, Salford Royal Hospital, Manchester, United Kingdom, ¹⁴School of Translational Medicine, University of Manchester, Manchester Academic Health Science Centre, Manchester, United Kingdom, ¹⁵Dept of Medicine/Div of Rheum, University of Florence, Florence, Italy, ¹⁶Department of Medicine, University of Michigan Scleroderma Program, Ann Arbor, MI, ¹⁷UWE Academic Rheumatology, University of West of England, Bristol, United Kingdom
Background/Purpose: Raynaud’s phenomenon (RP) is consistently ranked highest in patient surveys exploring the frequency and impact of disease related manifestations of systemic sclerosis (SSc). SSc-RP…

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