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Abstracts tagged "patient outcomes and scleroderma"

  • Abstract Number: 2717 • 2014 ACR/ARHP Annual Meeting

    Comparison of PROMIS® survey Between Scleroderma Patients in an Academic Center and Patient-Based Scleroderma Foundations

    Vivek Nagaraja1, Veronica Berrocal2, Kerri Connolly3, Ann Kennedy4, Daniela Seelmann5 and Dinesh Khanna1, 1Division of Rheumatology, University of Michigan, Ann Arbor, MI, 2Department of Biostatistics- School of Public Health, University of Michigan, Ann Arbor, MI, 3Scleroderma Foundation, Boston, MA, 4Federation of European Scleroderma Associations, Tournai, Belgium, 5Universidad de Los Andes, Santiago, Chile

    Background/Purpose The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS®) roadmap initiative is a cooperative research program designed to develop, evaluate, and standardize…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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