Abstracts tagged "patient outcomes and pediatric rheumatology"

Abstract Number: 1434 • 2018 ACR/ARHP Annual Meeting
Patient-Proxy Agreement on Health-Related Quality of Life in Juvenile Fibromyalgia Syndrome
Sabrina Gmuca, Audrey Urquhart and David D. Sherry, Pediatric Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose: The administration of proxy-reported health-related quality of life (HRQoL) measures in the assessment of juvenile fibromyalgia syndrome (JFMS) is common but its added clinical…
Abstract Number: 1800 • 2017 ACR/ARHP Annual Meeting
Do Patient Reported Outcome Measurement Information System (PROMIS) Computer Adaptive Tests Correlate with Disease Activity in Juvenile Idiopathic Arthritis?
Rebecca Trachtman¹, Elizabeth T. Murray², Jackie Szymonifka³, Alexa Adams⁴, Nancy Pan⁴, Sarah Taber⁴, Thomas J. A. Lehman⁴, Karen Onel⁴ and Lisa A. Mandl⁵, ¹Pediatric Rheumatology, Hospital for Special Surgery Weill Cornell Medical College, NY, NY, ²Hospital for Special Surgery, New York, NY, ³Rheumatology, Hospital for Special Surgery, New York, NY, ⁴Pediatric Rheumatology, Hospital for Special Surgery Weill Cornell Medical College, New York, NY, ⁵Rheumatology, Hospital for Special Surgery Weill Cornell Medical College, New York, NY
Background/Purpose: The importance of patient-reported outcomes is increasingly recognized both in clinical care and in research. PROMIS is an NIH-supported collection of patient-reported outcome measures,…
Abstract Number: 396 • 2015 ACR/ARHP Annual Meeting
A Comparison of the Illness Experience Reported Via the Patient Reported Outcomes Measurement Information System Between Patients with Childhood-Onset Systemic Lupus Erythematosus, Juvenile Idiopathic Arthritis, and Widespread Chronic Musculoskeletal Pain
Michael J. Holland¹, Jordan Jones¹, Esi M. Morgan DeWitt², Susmita Kashikar-Zuck³, David D. Sherry⁴, Adam C. Carle⁵, Bin Huang⁶, Constance Mara⁷ and Hermine I. Brunner¹, ¹Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Behavioral Medicine & Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁴Pediatric Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA, ⁵University of Cincinnati Department of Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶Biostatistics and Epidemiology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁷James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: The Patient Reported Outcomes Measurement Information System (PROMIS¨), developed by the National Institutes of Health, seeks to create standardized instruments to measure patient reported…
Abstract Number: 262 • 2014 ACR/ARHP Annual Meeting
Longitudinal Assessment of Promis Pediatric Item Banks in Children with Chronic Musculoskeletal Pain
Esi M. Morgan DeWitt¹, Adam Carle², Kimberly Barnett³, Jennifer Farrell⁴, Kenneth Goldschneider⁵, Carlton Dampier⁶, David D. Sherry⁷ and Susmita Kashikar-Zuck³, ¹Department of Pediatrics, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁴Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁵Anesthesia, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶Department of Pediatrics (Hematology-Oncology), Emory University School of Medicine, Atlanta, GA, ⁷Pediatric Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose Assessing clinical status in musculoskeletal pain syndromes requires self-report of pain and function. Yet, the field suffers from a lack of psychometrically sound, consistently…

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