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Abstracts tagged "patient engagement and rheumatoid arthritis (RA)"

  • Abstract Number: 1925 • 2018 ACR/ARHP Annual Meeting

    Goal Concordance in Rheumatoid Arthritis: Beyond Pain Reduction, Is There Agreement?

    Jennifer Barton1,2, Shelia Markwardt2, Allison Schue1, Somnath Saha2,3 and Edward H. Yelin4, 1VA Portland Health Care System, Portland, OR, 2Oregon Health & Science University, Portland, OR, 3Medicine, VA Portland Health Care System, Portland, OR, 4Medicine/Rheumatology, University of California San Francisco, San Francisco, CA

    Background/Purpose: Goal concordance between patients with chronic diseases and their clinicians has been linked to improved outcomes, but not explored in rheumatoid arthritis (RA). Our…
  • Abstract Number: 216 • 2017 ACR/ARHP Annual Meeting

    Creation of the First Massive Open Online Course for Patients with Rheumatoid Arthritis

    Sonia Tropé1, Jean-David Cohen2, Catherine Beauvais3, Didier Poivret4, Alain Saraux5, Danielle VACHER6, Hervé Barkatz7, Pascal Lacoste7, Valérie Weill8 and Gérard Thibaud9, 1149 avenue du Maine, ANDAR, Paris, France, 2IMMUNO-RHEUMATOLOGY, CHU LAPEYRONIE, MONTPELLIER, France, 3Service de Rhumatologie, Hopital Saint Antoine, Paris, France, 4Rheumatology, Metz, France, 5Rheumatology, Brest University Medical School Hospital, Brest, France, 6expert-patient, ANDAR patient organisation, Paris, France, 7Hbmotion, Paris, France, 8hbmotion, Paris, France, 9ANDAR patient organisation, Paris, France

    Background/Purpose: People with chronic conditions face the disease more effectively when they develop psychosocial skills and self-care. Health authorities thus recommend the organization of therapeutic…
  • Abstract Number: 2255 • 2017 ACR/ARHP Annual Meeting

    Using PROs to Guide Patient-Centered Conversations and Care in Inflammatory Arthritis: The Patient Perspective

    Clifton O. Bingham III1, Katherine Clegg Smith2, Elaine de Leon2, Michelle Jones3, Anna Kristina Gutierrez4, Allie Butanis5 and Susan J. Bartlett4, 1Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, 2Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, 3Johns Hopkins University School of Medicine, Baltimore, MD, 4Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, 5Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD

    Background/Purpose: Although optimal care is patient-centered and grounded in shared decision-making (SDM) between patients and providers, rheumatologists often have little insight into the day-to-day experiences…
  • Abstract Number: 2780 • 2017 ACR/ARHP Annual Meeting

    Preference Phenotypes Can be Used to Support Shared Decision Making at the Point-of-Care

    Liana Fraenkel1, Pauline Binder-Finnema2, Betty Hsiao2, Carole Wiedmeyer3, George Michel2 and W. Benjamin Nowell4, 1Rheumatology, Rheumatology, Yale University School of Medicine, New Haven, CT, New Haven, CT, 2Yale University School of Medicine, New Haven, CT, 3CreakyJoints/Global Health Living Foundation, Upper Nyack, NY, 4Global Healthy Living Foundation, Upper Nyack, NY

    Background/Purpose: Many important treatment decisions for patients with rheumatoid arthritis (RA) are conditional on patient preferences and mandate a shared decision making (SDM) approach. Furthermore,…
  • Abstract Number: 91 • 2016 ACR/ARHP Annual Meeting

    A Systematic Review of Smartphone Applications for Measuring and Recording Rheumatoid Arthritis Disease Activity

    Rebecca Grainger1,2, Hermaleigh Townsley3, Bonnie White4, Tobias Langlotz5 and William Taylor1,6, 1University of Otago Wellington, Wellington, New Zealand, 2Wellington Regional Rheumatology Unit, Hutt Valley District Health Board, Lower Hutt, New Zealand, 3Department of Medicine, University of Otago Wellington, Wellington, New Zealand, 4Department of Medicine, University of Otago Wellington, Wellington South, New Zealand, 5Department of Information Science, University of Otago, Dunedin, New Zealand, 6Wellington Regional Rheumatology Unit, Hutt Valley District Health Board, Wellington, New Zealand

    Background/Purpose: It is recommended that management of rheumatoid arthritis (RA) requires regular quantitative assessment of RA activity. Treat to target management could be facilitated by use…
  • Abstract Number: 541 • 2016 ACR/ARHP Annual Meeting

    Patient Goals in Rheumatoid Arthritis Care: A Literature Review

    Elizabeth Hulen1, Ayla Ervin1, Allison Schue1, Gina Evans-Young2, Somnath Saha3,4, Edward H. Yelin5 and Jennifer Barton1,4, 1VA Portland Health Care System, Portland, OR, 2Rheumatology, UCSF, San Francisco, CA, 3Medicine, VA Portland Health Care System, Portland, OR, 4Oregon Health & Science University, Portland, OR, 5Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA

    Background/Purpose:  While clinician goals when treating rheumatoid arthritis (RA) focus on achieving low disease activity or remission, RA patient goals remain largely unexplored. Patient-clinician goal…
  • Abstract Number: 2469 • 2016 ACR/ARHP Annual Meeting

    How Rheumatoid Arthritis Patients and Rheumatologists Communicate during Clinic Visits When a New DMARD Is Prescribed

    Lorie L. Geryk1, Susan J. Blalock2, Courtney A. Roberts2, Beth L. Jonas3 and Delesha M. Carpenter4, 1Division of Pharmaceutical Outcomes and Policy, University of North Carolina, Chapel Hill, NC, 2Division of Pharmaceutical Outcomes and Policy, University of North Carolina Eshelman School of Pharmacy, Chapel Hill, NC, 3Thurston Arthritis Research Ct, University of North Carolina Thruston Arthritis Research Center, Chapel Hill, NC, 4Division of Pharmaceutical Outcomes and Policy, University of North Carolina, Asheville, NC

    Background/Purpose:  This observational study includes data from clinic visits of 38 RA patients (3 rheumatologists) that occurred in a southeastern state from May 2014 to…
  • Abstract Number: 452 • 2015 ACR/ARHP Annual Meeting

    Associations Between Arthritis Patient, Disease-Specific and Provider Characteristics and Medication Information Source Use

    Lorie Geryk1, Susan J. Blalock2, Robert DeVellis3, Joanne M. Jordan3 and Delesha Carpenter4, 1Division of Pharmaceutical Outcomes and Policy, University of North Carolina Eshelman School of Pharmacy, Chapel Hill, NC, 2Eshelman School of Pharmacy, University of North Carolina at Chapel Hill, Chapel Hill, NC, 3Thurston Arthritis Research Center, University of North Carolina, Chapel Hill, NC, 4Division of Pharmaceutical Outcomes and Policy, University of North Carolina Eshelman School of Pharmacy, Asheville, NC

    Background/Purpose: Few studies have described how patient, disease-specific, and provider factors are associated with medication information source use among arthritis patients. We address this research…
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