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Abstracts tagged "patient engagement and privacy"

  • Abstract Number: 1164 • 2018 ACR/ARHP Annual Meeting

    Canadians’ Views about Using Big Data in Health Research from a National Online Survey: A Partnership of Patient-Consumers and Researchers

    Natalie McCormick1, Clayon Hamilton1,2, Cheryl L. Koehn3, Kelly English4, Allan Stordy5 and Linda Li1,6, 1Arthritis Research Canada, Richmond, BC, Canada, 2Physical Therapy, The University of British Columbia, Vancouver, BC, Canada, 3Arthritis Consumer Experts, Vancouver, BC, Canada, 4Arthritis Patient Advisory Board, Arthritis Research Canada, Richmond, BC, Canada, 5Canadian Skin Patient Alliance, Calgary, AB, Canada, 6Department of Physical Therapy, The University of British Columbia, Vancouver, BC, Canada

    Background/Purpose:                  Findings from health research using “big data” (large sets of routinely-collected healthcare data) have benefitted individual arthritis patients and society as-a-whole.  However, growing…
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