Abstracts tagged "patient engagement and privacy"

Abstract Number: 1164 • 2018 ACR/ARHP Annual Meeting
Canadians’ Views about Using Big Data in Health Research from a National Online Survey: A Partnership of Patient-Consumers and Researchers
Natalie McCormick¹, Clayon Hamilton^1,2, Cheryl L. Koehn³, Kelly English⁴, Allan Stordy⁵ and Linda Li^1,6, ¹Arthritis Research Canada, Richmond, BC, Canada, ²Physical Therapy, The University of British Columbia, Vancouver, BC, Canada, ³Arthritis Consumer Experts, Vancouver, BC, Canada, ⁴Arthritis Patient Advisory Board, Arthritis Research Canada, Richmond, BC, Canada, ⁵Canadian Skin Patient Alliance, Calgary, AB, Canada, ⁶Department of Physical Therapy, The University of British Columbia, Vancouver, BC, Canada
Background/Purpose: Findings from health research using “big data” (large sets of routinely-collected healthcare data) have benefitted individual arthritis patients and society as-a-whole. However, growing…