Abstracts tagged "patient engagement and pediatric rheumatology"

Abstract Number: 1432 • 2018 ACR/ARHP Annual Meeting
Engaging Patients and Parents to Improve Mental Health for Youth with Rheumatologic Disease
Oluwatunmise Fawole¹, Michelle Vickery², Lauren Faust³, Tamar Rubinstein⁴, Julia Harris⁵, Aimee O. Hersh⁶, Karen Onel⁷, Erica Lawson⁸, Emily von Scheven⁹, Kaveh Ardalan¹⁰, Esi Morgan¹¹, Anne Paul¹², Judith Barlin¹³, R. Paola Daly¹³, Mitali Dave¹⁴, Shannon Malloy¹⁵, Shari Hume¹⁵, Suzanne Schrandt¹⁶, Laura C. Marrow¹⁷, Angela Chapson³, Donna Napoli³, Michael Napoli³, Miranda Moyer³, Rachel Adamski³, Vincent Del Gaizo¹⁸, Martha Rodriguez¹⁹ and Andrea M. Knight²⁰, ¹The Children's Hospital of Philadelphia, Philadelphia, PA, ²Hershey Medical Center, Hershey, PA, ³Children's Hospital of Philadelphia, Philadelphia, PA, ⁴Pediatric Rheumatology, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, NY, ⁵Children's Mercy - Kansas City, Kansas City, MO, ⁶Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT, ⁷Division of Pediatric Rheumatology, University of Chicago, Chicago, IL, ⁸Pediatrics/Rheumatology, University of California, San Francisco, San Francisco, CA, ⁹Pediatric Rheumatology, University of California San Francisco, San Francisco, CA, ¹⁰Division of Rheumatology; Department of Pediatrics, Ann & Robert H. Lurie Children’s Hospital of Chicago/Northwestern University Feinberg School of Medicine, Chicago, IL, ¹¹University of Cincinnati, Cincinnati, OH, ¹²Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ¹³Lupus Foundation of America, Washington, DC, ¹⁴Cure JM Foundation, Encintas, CA, ¹⁵Cure JM Foundation, Encinitas, CA, ¹⁶Arthritis Foundation, Saint Paul, MN, ¹⁷Arthritis Foundation, Atlanta, GA, ¹⁸Parent Partner, Whitehouse Station, NJ, ¹⁹Riley Children’s Hospital at Indiana, Indianapolis, IN, ²⁰Center for Pediatric Clinical Effectiveness & PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose: Mental health conditions are common in youth with rheumatologic disease, yet intervention strategies are understudied. We used a patient-engaged approach to investigate the mental…

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