Abstracts tagged "Participation"

Abstract Number: 118 • 2017 ACR/ARHP Annual Meeting
Experiences and Perceptions of Patients with Rheumatoid Arthritis Participating in an Online Support Group: The Use of Social Media
Jude K. A. des Bordes¹, Jessica Foreman¹, Susan K. Peterson², Maria A. Lopez-Olivo³, Tiffany Westrich-Robertson⁴, Catherine Hofstetter⁵, Anne Lyddiatt⁶, Amye L. Leong⁷ and Maria Suarez-Almazor³, ¹Section of Rheumatology and Clinical Immunology, Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, Houston, Texas, USA, Houston, TX, ²Department of Behavioral Science, The University of Texas MD Anderson Cancer Center, Houston Texas, USA, Houston, TX, ³Section of Rheumatology and Clinical Immunology, Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, USA, Houston, TX, ⁴International Foundation for Autoimmune and Autoinflammatory Arthritis, Saint Louis, Missouri, USA, St Louis, MO, ⁵Canadian Arthritis Patients Alliance (CAPA), Toronto Ontario, Canada, Toronto, ON, Canada, ⁶Musculoskeletal Group, Cochrane Collaboration, Hamilton, ON, Canada, ⁷Spokesperson; Strategic Relations, Bone and Joint Decade, Santa Barbara, CA
Background/Purpose: Providing social support is an important component in the management of chronic diseases. In rheumatoid arthritis (RA), peer support is particularly important for coping…
Abstract Number: 3254 • 2016 ACR/ARHP Annual Meeting
Use of the Short Valued Life Activities Scale in People with Systemic Sclerosis
Janet L. Poole¹ and Betty Skipper^2,3, ¹Health Sciences Ctr OT Program, 1 University of New Mexico, Albuquerque, NM, ²Family and Community Medicine, University of New Mexico, Albuquerque, NM, ³Family and Community Medicine, University of New Mexico, University of New Mexico, Albuquerque, NM
Background/Purpose: Systemic sclerosis is a chronic autoimmune connective tissue disorder that results in skin thickening, vascular insufficiency, and fibrosis of internal organs, such as…
Abstract Number: 319 • 2016 ACR/ARHP Annual Meeting
Incident Participation Restriction in Adults with Knee Osteoarthritis: Do Positive and Negative Affect Matter? the Multicenter Osteoarthritis Study
Molly Vaughan¹, David T. Felson², Michael P. Lavalley³, Gael Orsmond⁴, Jingbo Niu⁵, Cora E Lewis⁶, Neil Segal⁷, Michael Nevitt⁸ and Julie J. Keysor⁹, ¹635 Commonwealth Avenue, Room 651, Boston University College of Health & Rehabilitation Sciences, Boston, MA, ²Clinical Epidemiology Unit, Boston University School of Medicine, Boston, MA, ³Biostatistics, Boston University School of Public Health, Boston, MA, ⁴Department of Occupational Therapy, Boston University, Sargent College of Health & Rehabilitation Sciences, Boston, MA, ⁵Department of Nephrology, Baylor College of Medicine, Houston, TX, ⁶Preventive Medicine, University of Alabama at Birmingham, Birmingham, AL, ⁷University of Kansas, Shawnee, KS, ⁸Department of Epidemiology & Biostatistics, University of California San Francisco School of Medicine, San Francisco, CA, ⁹Physical Therapy, Boston University, Boston, MA
Background/Purpose: Participation restrictions, common among people with knee osteoarthritis (OA), may be due to psychological factors. Many people with OA experience chronic pain, which can…
Abstract Number: 1241 • 2016 ACR/ARHP Annual Meeting
Understanding Lupus Patients’ Ability to Work with Numbers
Alexa Meara¹, Mary-Kate Tompkins², Kimberly Fisher², Holly Steigelman², Wael N. Jarjour³, Stacy P. Ardoin⁴ and Ellen Peters⁵, ¹Internal Medicine/Rheumatology, The Ohio State University, Columbus, OH, ²The Ohio State University, Columbus, OH, ³Department of Rheumatology/Medicine, Ohio State University, Columbus, OH, ⁴Pediatric & Adult Rheumatology, Ohio State University, Columbus, OH, ⁵Ohio State University, Columbus, OH
Background/Purpose: Systemic lupus erythematous (SLE) is a heterogeneous disease with high morbidity and mortality affecting approximately 20-150 cases per 100,000 people. The risk of early…
Abstract Number: 1259 • 2016 ACR/ARHP Annual Meeting
Factors Influencing Patient’s Participation in Rheumatology Research Studies: Experience from a Single Academic Centre
Mumtaz Khan¹, John A. Reynolds², Kanta Kumar³, Sarah Peters³, Christianah Yemidale⁴, Ian N. Bruce⁵ and Benjamin Parker⁶, ¹Central Manchester University Hospitals NHS Foundation Trust, Manchester, United Kingdom, ²NIHR Manchester Musculoskeletal Biomedical Research Unit, Central Manchester University Hospitals NHS Foundation Trust, Manchester, United Kingdom, ³University of Manchester, Manchester, United Kingdom, ⁴Manchester University Hospital, Manchester, United Kingdom, ⁵NIHR Manchester Musculoskeletal Biomedical Research Unit, Central Manchester University Hospitals NHS Foundation Trust, UK, Manchester, United Kingdom, ⁶Centre for Musculoskeletal Research, Arthritis Research UK Epidemiology Unit, The University of Manchester, Manchester Academic Health Sciences Centre, Manchester, United Kingdom
Background/Purpose: There is a drive to offer all patients the opportunity to participate in clinical research. We aimed to investigate the eligibility, screening and participation…
Abstract Number: 2921 • 2016 ACR/ARHP Annual Meeting
Patient Participation in Patient Reported Outcome Instrument Development in Systemic Sclerosis
John Pauling^1,2, Tracy M. Frech^3,4, Robyn T. Domsic⁵ and Marie Hudson^6,7, ¹Department of Pharmacy and Pharmacology, University of Bath, Bath, United Kingdom, ²Department of Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, United Kingdom, ³Internal Medicine, Salt Lake City VAMC, Salt Lake, UT, ⁴Internal Medicine-Division of Rheumatology, University of Utah School of Medicine, SLC, UT, ⁵Medicine - Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, ⁶Medicine, McGill University, Montreal, QC, Canada, ⁷Medicine/Rheumatology, Jewish General Hospital, Lady Davis Research Institute, Montreal, QC, Canada
Background/Purpose: The patient perspective captured using Patient-Reported Outcome (PRO) instruments provide valuable insight into the patient condition not always captured by physician-derived assessment tools. Target…
Abstract Number: 3148 • 2015 ACR/ARHP Annual Meeting
Physical Activity in Children and Adolescents with Juvenile Idiopathic Arthritis and Associated Factors
Sabrina Cavallo¹, Marie-Ève Mathieu², Annette Majnemer³, Désirée B. Maltais⁴, Ciarán M. Duffy⁵, Mélanie Henderson⁶ and Debbie Ehrmann Feldman⁷, ¹École de Santé Publique, Université de Montréal, Montreal, QC, Canada, ²Département de Kinésiologie, Université de Montréal, Montréal, QC, Canada, ³School of Physical and Occupational therapy, McGill University, Montreal, QC, Canada, ⁴Département de Réadaptation, Université de Laval, Québec, QC, Canada, ⁵Children's Hospital of Eastern Ontario and University of Ottawa, Ottawa, ON, Canada, ⁶Centre de recherche du Centre Hospitalier Universitaire Sainte-Justine, Montréal, QC, Canada, ⁷School of Rehabilitation, Université de Montréal, Montreal, QC, Canada
Background/Purpose: Physical activity has health benefits for all children and adolescents, including those with juvenile idiopathic arthritis (JIA). Our study aimed 1) to determine whether…
Abstract Number: 2560 • 2014 ACR/ARHP Annual Meeting
Sustained Improvements in Workplace and Household Productivity and Social Participation with Certolizumab Pegol over 96 Weeks in Patients with Axial Spondyloarthritis, Including Ankylosing Spondylitis and Non-Radiographic Axial Spondyloarthritis
Desiree van der Heijde¹, Juergen Braun², Martin Rudwaleit³, Oana Purcaru⁴ and Arthur Kavanaugh⁵, ¹Department of Rheumatology, Leiden University Medical Center, Leiden, Netherlands, ²Rheumazentrum Ruhrgebiet, Herne, Germany, ³Endokrinologikum, Berlin, Germany, ⁴Allee De La Recherche 60, UCB Pharma, Anderlecht, Belgium, ⁵University of California San Diego, La Jolla, CA
Background/Purpose Axial spondyloarthritis (axSpA) includes both ankylosing spondylitis (AS, meeting modified New York criteria) and axSpA with no sacroiliitis on X-ray (non-radiographic axSpA, nr-axSpA). Previous…
Abstract Number: 1552 • 2014 ACR/ARHP Annual Meeting
Sustained Improvements in Workplace and Household Productivity and Social Participation with Certolizumab Pegol over 96 Weeks in Patients with Psoriatic Arthritis
Arthur Kavanaugh¹, Dafna D. Gladman², Désirée van der Heijde³, Oana Purcaru⁴ and Philip J. Mease⁵, ¹University of California San Diego, La Jolla, CA, ²University of Toronto, Toronto Western Hospital, Toronto, ON, Canada, ³Department of Rheumatology, Leiden University Medical Center, Leiden, Netherlands, ⁴UCB Pharma, Brussels, Belgium, ⁵Swedish Medical Center and University of Washington, Seattle, WA
Background/Purpose Compared to the general population, patients (pts) with psoriatic arthritis (PsA) suffer greater amounts of disability and substantially lower employment rates.1 The previous results…
Abstract Number: 1759 • 2013 ACR/ARHP Annual Meeting
The Effect Of Knee Replacement On Self-Reported Participation and Gait Speed: The Multicenter Osteoarthritis Study and The Osteoarthritis Initiative
Jessica L. Maxwell, Physical Therapy & Athletic Training, Boston Univ Sargent College, Boston, MA
The Effect of Knee Replacement on Self-Reported Participation and Gait Speed: The MOST Study and the Osteoarthritis InitiativeBackground/Purpose: Little research has explored participation outcomes, defined…

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