Abstracts tagged "online patient engagement"

Abstract Number: 2639 • 2019 ACR/ARP Annual Meeting
Comparison of Patient Self-reported Data to Physician-driven Cohorts in Patients with Eosinophilic Granulomatosis with Polyangiitis
Irena Doubelt¹, Jason Springer ², Tanaz Kermani ³, Antoine Sreih ⁴, Cristina Burroughs ⁵, David Cuthbertson ⁵, Simon Carette ¹, Nader A. Khalidi ⁶, Curry L. Koening ⁷, Carol Langford ⁸, Carol A. McAlear ⁹, Larry W. Moreland ¹⁰, Paul Monach ¹¹, Dianne Shaw ¹², Philip Seo ¹³, Ulrich Specks ¹⁴, Kalen Young ¹⁵, Steven Ytterberg ¹⁴, Peter A. Merkel ¹⁶, Christian Pagnoux ¹ and VCRC Vasculitis Clinical Research Consortium ¹⁷, ¹Mount Sinai Hospital and University Health Network, Toronto, ON, Canada, ²Kansas University Medical Center, Kansas, MO, ³University of California Los Angeles, Los Angeles, CA, ⁴University of Pennsylvania, Philadelphia, PA, ⁵University of South Florida, Tampa, FL, ⁶McMaster University, Hamilton, ON, Canada, ⁷University of Utah Hospital, Salt Lake City, UT, ⁸Cleveland Clinic, Cleveland, OH, ⁹University of Pennsylvania - VCRC Project Manager, Philadelphia, PA, ¹⁰University of Pittsburgh, Pittsburgh, PA, ¹¹Brigham and Women's Hospital, Boston, MA, ¹²Vasculitis Foundation, North Carolina, ¹³Johns Hopkins Medicine, Baltimore, MD, ¹⁴Mayo Clinic College of Medicine, Rochester, MN, ¹⁵Vasculitis Foundation, Kansas City, MO, ¹⁶Univeristy of Pennsylvania, Philadelphia, PA, ¹⁷University of Pennsylvania, Division of Rheumatology, philadelphia
Background/Purpose: Aligning perspectives of patients and physicians in the diagnosis and management of diseases is imperative, particularly in rare, chronic diseases such as vasculitis. We…
Abstract Number: 2765 • 2019 ACR/ARP Annual Meeting
Assessing the Impact of Digital Health Coaching on Quality Adjusted Life Years, Symptom Severity and Disease Activity in Patients with Rheumatoid Arthritis
Matt Allsion¹, Michael McMorris ², Dhiren Patel ² and B Stephen Burton ³, ¹Pack Health, Birmigham, AL, ²Pack Health, Birmingham, ³Pack Health, Birmingham, AL
Background/Purpose: Rheumatoid arthritis (RA) is the most common autoimmune inflammatory arthritis in adults. RA has a significant negative impact on the ability to perform daily…
Abstract Number: 1926 • 2018 ACR/ARHP Annual Meeting
Effects of Social Networking on Chronic Disease Management in Rheumatoid Arthritis
Maria A. Lopez-Olivo¹, Jessica Foreman², Heather Lin³, Cheuk Hong Leung⁴, Tiffany Westrich-Robertson⁵, Catherine Hofstetter⁶, Susan K. Peterson⁷, Anne Lyddiatt⁸, Amye L. Leong⁹, Irmgard U. Willcockson¹⁰ and Maria Suarez-Almazor¹, ¹Section of Rheumatology and Clinical Immunology, Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, ²Section of Rheumatology and Clinical Immunology, Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, Houston, Texas, USA, Houston, TX, ³Biostatistics, Department of Biostatistics, The University of Texas MD Anderson Cancer Center, Houston, TX, USA, Houston, TX, ⁴Department of Biostatistics, Department of Biostatistics, The University of Texas MD Anderson Cancer Center, Houston, TX, USA, Houston, TX, ⁵International Foundation for Autoimmune and Autoinflammatory Arthritis, Saint Louis, Missouri, USA, St Louis, MO, ⁶OMERACT patient research partner group, Ottawa, ON, Canada, ⁷Department of Behavioral Science, The University of Texas MD Anderson Cancer Center, Houston Texas, USA, Houston, TX, ⁸Musculoskeletal Group, Cochrane Collaboration, Hamilton, ON, Canada, ⁹Spokesperson; Strategic Relations, Bone and Joint Decade, Santa Barbara, CA, ¹⁰School of Biomedical Informatics, University of Texas Health Science Center at Houston, Houston, TX
Background/Purpose: We evaluated a social networking intervention to help patients with rheumatoid arthritis become active partners in their own care. We developed a closed independent…
Abstract Number: 2193 • 2018 ACR/ARHP Annual Meeting
Online Direct-to-Patient Recruitment for Systemic Lupus Erythematosus Results in Rapid Enrollment
June Fujimoto, Lilian Borisov, Kristen Warren and Robert Terbrueggen, DxTerity, Rancho Dominguez, CA
Background/Purpose: For precision medicine to address the dynamic nature of autoimmune diseases, more frequent measurements of disease activity and therapy response are needed. We report…
Abstract Number: 2120 • 2017 ACR/ARHP Annual Meeting
Quality, Content and Readability Assessment of Patient Education Websites Relating to Ehlers-Danlos Syndrome
Ahmed Omar^1,2, Laura Passalent³, Leslie Soever⁴, Medha Soowamber⁵ and Simon Carette⁶, ¹Rheumatology, Toronto Western Hospital, University of Toronto, Toronto, ON, Canada, ²Rheumatology, Mount Sinai Hospital, Toronto, ON, Canada, ³Allied Health, Toronto Western Hospital, Toronto, ON, Canada, ⁴Toronto General Hospital, Toronto, ON, Canada, ⁵University Health Network, Toronto, ON, Canada, ⁶Division of Rheumatology, Mount Sinai Hospital, University of Toronto, Toronto, ON, Canada
Background/Purpose: Ehlers-Danlos Syndrome (EDS) is a heritable connective tissue disease that presents in myriad ways. Education is an essential component in managing this complex condition.…
Abstract Number: 82 • 2016 ACR/ARHP Annual Meeting
Patients with Rheumatoid Arthritis in Germany: Are They Ready for Ehealth Via Mobile Medical Applications?
Jutta G. Richter¹, Christina Kampling², Gamal Chehab³, Hasan Acar², Arnd Becker⁴ and Matthias Schneider⁵, ¹Policlinic of Rheumatology and Hiller Research Unit Rheumatology, Heinrich-Heine-University Duesseldorf, Duesseldorf, Germany, ²Policlinic of Rheumatology, Heinrich-Heine-University Duesseldorf, Duesseldorf, Germany, ³Policlinic of Rheumatology, Heinrich-Heine-University, 40225 Duesseldorf, Germany, ⁴Ortenau Klinikum Offenburg-Gengenbach, Gengenbach, Gengenbach, Germany, ⁵Department of Rheumatology & Hiller Research Unit, Heinrich-Heine-University, Duesseldorf, Germany
Background/Purpose: Mobile medical Applications (mApps) with diary functions and integrated patient-reported outcome instruments allow patients (pts) with rheumatoid arthritis (RA) to self-monitor their disease apart…
Abstract Number: 2495 • 2015 ACR/ARHP Annual Meeting
Tele-Monitoring of Disease Activity in Rheumatoid Arthritis and Psoriatic Arthritis
Alexander Langer¹ and Hans-Eckhard Langer², ¹Department of Computer Science, RWTH Aachen University, Aachen, Germany, ²RHIO (Rheumatology, Immunology, and Osteology), Duesseldorf, Germany
Background/Purpose: There is evidence that tight control of rheumatoid arthritis improves outcome. In daily practice this aim is constricted by logistic limitations such as a…
Abstract Number: 1332 • 2014 ACR/ARHP Annual Meeting
From Social Support to Information Sharing, How Are Persons with Rheumatoid Arthritis Using Disease-Specific Facebook Communities? a Content Analysis
Cheryl Crow and Kristin Jones, Occupational Therapy, Samuel Merritt University, Oakland, CA
Background/Purpose: High perceived social support is associated with better quality of life and lower rates of depression for persons with rheumatoid arthritis (Minnock, et al…

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