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Abstracts tagged "Myositis and patient-reported outcome measures"

  • Abstract Number: 284 • 2015 ACR/ARHP Annual Meeting

    Validation of the Sporadic Inclusion Body Myositis Physical Functioning Assessment

    Valerie Williams1, Theresa Coles2, Carla DeMuro2, Sandra Lewis2, Nicole Williams2, Stuart Yarr2, Victoria Barghout3, Linda Lowes4, Lindsay Alfano4, Bob Goldberg5, Ari Gnanasakthy2, Gorana Capkun-Niggli6 and Brian Tseng7, 1Psychometrics, RTI Health Solutions, North Carolina, NC, 2RTI Health Solutions, North Carolina, NC, 3VEB HealthCare LLC, Morristown, NJ, 4Nationwide Children’s Hospital, Columbus, OH, 5The Myositis Association, Alexandria, VA, 6Novartis Pharmaceuticals Corporation, Basel, Switzerland, 7Novartis Pharmaceuticals Corporation, East Hanover, NJ

    Background/Purpose: Patient-reported outcomes (PROs) assess disease symptoms and impact from the patient’s perspective. This research aimed to establish the validity, reliability, and responsiveness of the…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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