Abstracts tagged "measure and patient outcomes"

Abstract Number: 890 • 2014 ACR/ARHP Annual Meeting
Test of the NIH Patient-Reported Outcomes Measurement Information System (PROMIS) 29-Item Profile in a Large Cohort of Rheumatic Disease Patients
Patricia P. Katz¹, Sofia Pedro² and Kaleb Michaud³, ¹Medicine, University of California, San Francisco, San Francisco, CA, ²1035 N Emporia Ste 288, National Data Bank, Wichita, KS, ³University of Nebraska Medical Center and National Data Bank, Omaha, NE
Background/Purpose: Patient-reported outcomes are routinely used in rheumatology research and clinical care. Yet, often outcomes cannot be compared across studies or diseases because a variety…
Abstract Number: 2520 • 2013 ACR/ARHP Annual Meeting
A Freely Accessible Toolbox For Patient-Reported Outcomes: Development and Systematic Literature Review For Lupus Instruments
Isabel Castrejón¹, Loreto Carmona^2,3, Robin Christensen⁴, Till Uhlig⁵, Birgit Prodinger⁶, Francis Guillemin⁷, Marieke Scholte-Voshaar⁸ and Laure Gossec^9,10, ¹Rheumatology, Rush University Medical Center, Chicago, IL, ²Health Sciences School, Universidad Camilo José Cela, Villanueva de la Cañada, Spain, ³Institute for Musculoskeletal Health, Madrid, Spain, ⁴Musculoskeletal Statistics Unit, The Parker Institute, Department of Rheumatology, Copenhagen University Hospital, Bispebjerg and Frederiksberg, Denmark, ⁵Dept. of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway, ⁶ICF Research Branch, Swiss Paraplegic Group, Nottwil, Switzerland, Notwill, Switzerland, ⁷CHU Nancy, Clinical Epidemiology and Evaluation, Université de Lorraine, Paris Descartes University, APEMAC, EA 4360, Nancy, France, ⁸EULAR Standing Committee of People with Arthritis/Rheumatism in Europe, Zurich, Switzerland, ⁹Cochin University Hospital, Paris, France, ¹⁰Rheumatology, PitiéSalpêtrière Hospital, Pierre et Marie Curie University, Paris, France
Background/Purpose: Patient self-report has become prominent in the assessment of rheumatic and musculoskeletal diseases (RMD). In a workshop on priorities in PROs in 2009 it…

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