Abstracts tagged "juvenile sclerosis and systemic sclerosis"

Abstract Number: 2389 • ACR/ARHP Annual Meeting 2016
Is There a Difference in the Presentation of Diffuse and Limited Subtype in Childhood? Results from the Juvenile Scleroderma Inception Cohort
Ivan Foeldvari¹, Jens Klotsche², Ozgur Kasapcopur³, Amra Adrovic⁴, Valda Stanevicha⁵, Maria Teresa Terreri⁶, Ekaterina Alexeeva⁷, Maria M. Katsicas⁸, Rolando Cimaz⁹, Mikhail Kostik¹⁰, Thomas J. A. Lehman¹¹, Walter A. Sifuentes-Giraldo¹², Vanessa Smith¹³, Flavio Sztajnbok¹⁴, Tadey Avcin¹⁵, Maria Jose Santos¹⁶, Dana Nemkova¹⁷, Cristina Battagliotti¹⁸, Despina Eleftheriou¹⁹, Liora Harel²⁰, Mahesh Janarthanan²¹, Tilmann Kallinich²², Jordi Anton²³, Kirsten Minden², Susan Mary Nielsen²⁴, Kathryn S. Torok²⁵, Yosef Uziel²⁶ and Nicola Helmus¹, ¹Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, ²Epidemiology unit, German Rheumatism Research Center, Berlin, Germany, ³Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, ⁴Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Istanbul, Turkey, ⁵University Childrens Hospital, Riga, Latvia, ⁶Pediatric Rheumatology Unit, Federal University of São Paulo, São Paulo, Brazil, ⁷Scientific Centre of Children’s Health of RAMS, Moscow, Russia, ⁸Service of Immunology & Rheumatology. Hospital de Pediatrìa Prof Dr.Juan.P. Garrahan, MD, Buenos Aires, Argentina, ⁹Pediatric Rheumatology, Anna Meyer Children's Hospital, Florence, Italy, ¹⁰Hospital Pediatrics, State Pediatric Medical University, Saint-Petersburg, Russia, ¹¹Chief Div Ped Rheum PTD, Hospital for Special Surgery, New York, NY, ¹²Department of Rheumatology, University Hospital Ramón y Cajal, Madrid, Spain, ¹³Department of Rheumatology, Ghent University Hospital, Ghent University, Ghent, Belgium, ¹⁴Pediatric Rheumatology Division, Adolescent Health Care Unit, Universida de do Estado do Rio de Janeiro., Rio de Janeiro, Brazil, ¹⁵University Children's Hospital, Ljubljana, Slovenia, ¹⁶Rheumatology, Department of Rheumatology, Hospital Garcia de Orta, Almada, Portugal, Almada, Portugal, ¹⁷Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, ¹⁸Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, ¹⁹Paediatric Rheumatology Department, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom, ²⁰Pediatric Rheumatology Unit, Schneider Children's Medical Center of Israel, Petach Tikvah, Israel, ²¹Pediatric Rheumatology, Chennai, India, ²²Charite, University Medicine Berlin, Berlin, Germany, ²³Unitat de Reumatologia Pediàtrica, Hospital Sant Joan de Déu, Barcelona, Spain, ²⁴Rigshospitalet, Copenhagen, Denmark, ²⁵Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, ²⁶Meir Medical Center, Kfar Saba, Israel
Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Several adult publications looked at the differences between limited (ljSSc) and diffuse subtype (djSSc). There…
Abstract Number: 2391 • ACR/ARHP Annual Meeting 2016
Update on the Juvenile Systemic Sclerosis Inception Cohort Project. Characteristics of the First 80 Patients at First Assessment
Ivan Foeldvari¹, Jens Klotsche², Ozgur Kasapcopur³, Amra Adrovic⁴, Valda Stanevicha⁵, Ana Paula Sakamoto⁶, Ekaterina Alexeeva⁷, Maria M. Katsicas⁸, Rolando Cimaz⁹, Mikhail Kostik¹⁰, Thomas J. A. Lehman¹¹, Walter A. Sifuentes-Giraldo¹², Vanessa Smith¹³, Flavio Sztajnbok¹⁴, Tadey Avcin¹⁵, Maria Jose Santos¹⁶, Dana Nemkova¹⁷, Cristina Battagliotti¹⁸, Despina Eleftheriou¹⁹, Liora Harel²⁰, Mahesh Janarthanan²¹, Tilmann Kallinich²², Jordi Anton²³, Kirsten Minden², Susan Mary Nielsen²⁴, Kathryn S. Torok²⁵, Yosef Uziel²⁶ and Nicola Helmus²⁷, ¹Hamburger Zentrum für Kinder- und Jugendrheumatologie, Hamburg, Germany, ²Epidemiology unit, German Rheumatism Research Center, Berlin, Germany, ³Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, ⁴Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Istanbul, Turkey, ⁵University Childrens Hospital, Riga, Latvia, ⁶Pediatric Rheumatology Unit, Federal University of São Paulo, São Paulo, Brazil, ⁷Rheumatology, Scientific Center of Children's Health, Moscow, Russia, ⁸Service of Immunology & Rheumatology. Hospital de Pediatrìa Prof Dr.Juan.P. Garrahan, MD, Buenos Aires, Argentina, ⁹Pediatrics, University of Firenze, Firenze, Italy, ¹⁰Hospital Pediatrics, State Pediatric Medical University, Saint-Petersburg, Russia, ¹¹Chief Div Ped Rheum PTD, Hospital for Special Surgery, New York, NY, ¹²Department of Rheumatology, University Hospital Ramón y Cajal, Madrid, Spain, ¹³Department of Rheumatology, Ghent University Hospital, Ghent University, Ghent, Belgium, ¹⁴Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil, ¹⁵University Children's Hospital, Ljubljana, Slovenia, ¹⁶Rheumatology, Department of Rheumatology, Hospital Garcia de Orta, Almada, Portugal, Almada, Portugal, ¹⁷Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, ¹⁸Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, ¹⁹Paediatric Rheumatology Department, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom, ²⁰Pediatric Rheumatology Unit, Schneider Children's Medical Center of Israel, Petach Tikvah, Israel, ²¹Pediatric Rheumatology, Chennai, India, ²²Charite, University Medicine Berlin, Berlin, Germany, ²³Unitat de Reumatologia Pediàtrica, Hospital Sant Joan de Déu, Barcelona, Spain, ²⁴Rigshospitalet, Copenhagen, Denmark, ²⁵Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, ²⁶Meir Medical Center, Kfar Saba, Israel, ²⁷Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany
Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Currently just retrospective data exist regarding evolvement of organ involvement. In the retrospective studies assessment…
Abstract Number: 2393 • ACR/ARHP Annual Meeting 2016
Medication Use in the Juvenile Systemic Sclerosis Inception Cohort. ARE There Differences in the Diffuse and Limited Subset Patients?
Ivan Foeldvari¹, Jens Klotsche², Ozgur Kasapcopur³, Amra Adrovic⁴, Valda Stanevicha⁵, Maria Teresa Terreri⁶, Ekaterina Alexeeva⁷, Maria M. Katsicas⁸, Rolando Cimaz⁹, Mikhail Kostik¹⁰, Thomas J. A. Lehman¹¹, Walter A. Sifuentes-Giraldo¹², Vanessa Smith¹³, Flavio Sztajnbok¹⁴, Tadey Avcin¹⁵, Maria Jose Santos¹⁶, Dana Nemkova¹⁷, Cristina Battagliotti¹⁸, Despina Eleftheriou¹⁹, Liora Harel²⁰, Mahesh Janarthanan²¹, Tilmann Kallinich²², Jordi Anton²³, Kirsten Minden², Susan Mary Nielsen²⁴, Kathryn S. Torok²⁵, Yosef Uziel²⁶ and Nicola Helmus¹, ¹Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, ²Epidemiology unit, German Rheumatism Research Center, Berlin, Germany, ³Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, ⁴Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Istanbul, Turkey, ⁵University Childrens Hospital, Riga, Latvia, ⁶Pediatric Rheumatology Unit, Federal University of São Paulo, São Paulo, Brazil, ⁷Rheumatology, Scientific Center of Children's Health, Moscow, Russia, ⁸Service of Immunology & Rheumatology. Hospital de Pediatrìa Prof Dr.Juan.P. Garrahan, MD, Buenos Aires, Argentina, ⁹Pediatrics, University of Firenze, Firenze, Italy, ¹⁰Hospital Pediatrics, State Pediatric Medical University, Saint-Petersburg, Russia, ¹¹Chief Div Ped Rheum PTD, Hospital for Special Surgery, New York, NY, ¹²Rheumatology, Hospital Universitario Ramón y Cajal, Madrid, Spain, ¹³Department of Rheumatology, Ghent University Hospital, Ghent University, Ghent, Belgium, ¹⁴Pediatric Rheumatology Division, Adolescent Health Care Unit, Universida de do Estado do Rio de Janeiro., Rio de Janeiro, Brazil, ¹⁵University Children's Hospital, Ljubljana, Slovenia, ¹⁶Rheumatology, Department of Rheumatology, Hospital Garcia de Orta, Almada, Portugal, Almada, Portugal, ¹⁷Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, ¹⁸Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, ¹⁹Paediatric Rheumatology Department, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom, ²⁰Pediatric Rheumatology Unit, Schneider Children's Medical Center of Israel, Petach Tikvah, Israel, ²¹Pediatric Rheumatology, Chennai, India, ²²Charite, University Medicine Berlin, Berlin, Germany, ²³Unitat de Reumatologia Pediàtrica, Hospital Sant Joan de Déu, Barcelona, Spain, ²⁴Rigshospitalet, Copenhagen, Denmark, ²⁵Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, ²⁶Meir Medical Center, Kfar Saba, Israel
Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Currently there is no data regarding use of medication in jSSc patients. Our project is…
Abstract Number: 1322 • ACR/ARHP Annual Meeting 2014
Cardiopulmonary Involvement in Juvenile Systemic Sclerosis: Development of Recommendations for Screening and Investigation
Ivan Foeldvari¹, Clare Pain², Tamás Constantin³, Eileen Baildam⁴, Christian Beyer⁵, Michael Blakley⁶, Dana Nemkova⁷ and Clarissa A Pilkington⁸, ¹Department of Pediatric Rheumatology, Hamburger Zentrum für Kinder und Jugendrheumatologie, Hamburg, Germany, ²Pediatric Rheumatology, University Children´s Hospital, Liverpool, United Kingdom, ³Pediatric Rheumatology, University Childrens Hospital, Budapest, Hungary, ⁴Paediatric Rheumatology, Alder Hey Children's Foundation NHS Trust, Liverpool, United Kingdom, ⁵Pediatric Cardiology, Hamburg, Germany, ⁶Internal Medicine and Pediatrics, Indiana University School of Medicine and Riley Hospital for Children at IU Health, Indianapolis, IN, ⁷Pedaitric Rheumatology, Prague, Czech Republic, ⁸Rheumatology, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom
Background/Purpose There are currently no agreed recommendations on how to investigate children for cardiopulmonary involvement in Juvenile Systemic Sclerosis (JSSc). The aim of screening is…