ACR Meeting Abstracts

ACR Meeting Abstracts

Abstracts tagged "Juvenile scleroderma and pediatric rheumatology"

  • Abstract Number: 1282 • ACR/ARHP Annual Meeting 2017

    Assessing the Prevalence of Juvenile Systemic Sclerosis in Childhood Using Administrative Claims Data from the United States

    Ivan Foeldvari1, Timothy Beukelman2 and Fenglong Xie3, 1Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, 2Pediatric Rheumatology, University of Alabama at Birmingham, Birmingham, AL, 3Division of Clinical Immunology & Rheumatology, University of Alabama at Birmingham, Birmingham, AL

    Background/Purpose: Juvenile systemic Sclerosis (jSSc) is an orphan disease. There are some data regarding the incidence, but nearly no data exist regarding the prevalence of…

  • Abstract Number: 1283 • ACR/ARHP Annual Meeting 2017

    Male Patients Have a More Severe Course As Female Patients with Diffuse Juvenile Systemic Scleroderma? Results from the Juvenile Scleroderma Inception Cohort Www.Juvenile-Scleroderma.Com

    Ivan Foeldvari1, Jens Klotsche2, Ozgur Kasapcopur3, Amra Adrovic4, Valda Stanevicha5, Maria Teresa Terreri6, Ekaterina Alexeeva7, Maria M. Katsicas8, Vanessa Smith9, Rolando Cimaz10, Mikhail Kostik11, Thomas J. A. Lehman12, Jordi Anton13, Walter A. Sifuentes-Giraldo14, Flavio Sztajnbok15, Tadey Avcin16, Mahesh Janarthanan17, Maria José Santos18, Dana Nemkova19, Cristina Battagliotti20, Despina Eleftheriou21, Liora Harel22, Tilmann Kallinich23, K Minden24, Susan Mary Nielsen25, Kathryn S. Torok26, Yosef Uziel27, Anne Stevens28, Clarissa Pilkington29 and Nicola Helmus1, 1Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, 2Epidemiology unit, German Rheumatism Research Center, Berlin, Germany, 3Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, 4Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Istanbul, Turkey, 5Pediatric cathedra, Riga Stradiņš University, Riga, Latvia, 6Pediatric Rheumatology Unit, Federal University of São Paulo (UNIFESP - Universidade Federal de São Paulo), São Paulo, Brazil, 7Children's Health of RAMS and IM Sechenov First Moscow State Medical University, Moscow, Russian Federation, 8Service of Immunology & Rheumatology., Hospital de Pediatría Prof Dr JP Garrahan, Buenos Aires, Argentina, 9Faculty of Internal Medicine, Ghent University, Ghent, Belgium, 10Pediatrics, Ospedale Pediatrico Anna Meyer, Florence, Italy, 11Hospital Pediatrics, State Pediatric Medical University, Saint-Petersburg, Russia, 12Pediatric Rheumatology, Hospital for Special Surgery Weill Cornell Medical College, New York, NY, 13pediatric Rheumatology, University Childrenxs Hospital, Barcelona, Spain, 14Rheumatology, Hospital Universitario Ramón y Cajal, Madrid, Spain, 15Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil, 16University Children's Hospital, Ljubljana, Slovenia, 17Pediatric Rheumatology, Chennai, India, 18Reuma.pt, Almada, Portugal, Almada, Portugal, 19Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, 20Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, 21Infection, Inflammation and Rheumatology, UCL Institute of Child Health, London, United Kingdom, 22Schneider Children's Medical Center of Israel, Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel, 23Charité, Humbolt University Medicine Berlin, Berlin, Germany, 24Charité – University of Medicine Berlin, Berlin, Germany, 25Rigshospitalet, Copenhagen, Denmark, 26Pediatric Rheumatology, University of Pittsburgh Med Ctr, Pittsburgh, PA, 27Meir Medical Center, Kfar Saba, Israel, 28University of Washington, Department of Pediatrics, Seattle, WA, 29Paediatric Rheumatology, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom

    Background/Purpose: In adult systemic scleroderma patients male have a more sever course. This issue was never evaluated in a larger juvenile scleroderma cohort. Methods: Patients…

  • Abstract Number: 1286 • ACR/ARHP Annual Meeting 2017

    Performance of Juvenile Scleroderma Classification Criteria for Juvenile Systemic Sclerosis. Results from the Jssc Inception Cohort

    Jens Klotsche1, Ivan Foeldvari2, Ozgur Kasapcopur3, Vanessa Smith4, Flavio Sztajnbok5, Maria M. Katsicas6, Rolando Cimaz7, Mahesh Janarthanan8, Jordi Anton9, Mikhail Kostik10, Dana Nemkova11, Walter A. Sifuentes-Giraldo12, Valda Stanevicha13, Kathryn S. Torok14, Simone Appenzeller15, Tadey Avcin16, Lillemor Berntson17, Liora Harel18, Tilmann Kallinich19, Maria José Santos20, Maria Teresa Terreri21, Yosef Uziel22 and Nicola Helmus2, 1Epidemiology unit, German Rheumatism Research Center, Berlin, Germany, 2Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, 3Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, 4Faculty of Internal Medicine, Ghent University, Ghent, Belgium, 5Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil, 6Service of Immunology & Rheumatology., Hospital de Pediatría Prof Dr JP Garrahan, Buenos Aires, Argentina, 7Pediatrics, Ospedale Pediatrico Anna Meyer, Florence, Italy, 8Pediatric Rheumatology, Chennai, India, 9pediatric Rheumatology, University Childrenxs Hospital, Barcelona, Spain, 10Hospital Pediatrics, State Pediatric Medical University, Saint-Petersburg, Russia, 11Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, 12Rheumatology, Hospital Universitario Ramón y Cajal, Madrid, Spain, 13Pediatric cathedra, Riga Stradiņš University, Riga, Latvia, 14Pediatric Rheumatology, University of Pittsburgh Med Ctr, Pittsburgh, PA, 15Pediatric Rheumatology Unit, State University of Campinas, Campinas, Brazil, 16University Children's Hospital, Ljubljana, Slovenia, 17Dept. of Pediatrics, Uppsala University Hospital, Uppsala, Sweden, 18Schneider Children's Medical Center of Israel, Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel, 19Charité, Humbolt University Medicine Berlin, Berlin, Germany, 20Reuma.pt, Almada, Portugal, Almada, Portugal, 21Pediatric Rheumatology Unit, Federal University of São Paulo (UNIFESP - Universidade Federal de São Paulo), São Paulo, Brazil, 22Meir Medical Center, Kfar Saba, Israel

    Background/Purpose: Juvenile systemic sclerosis (jSSc) is a rare disease during childhood. Classification criteria for jSSc were published in 2007. They include a major criterion that…