Abstracts tagged "juvenile idiopathic arthritis (JIA) and patient outcomes"

Abstract Number: 2316 • 2017 ACR/ARHP Annual Meeting
Barriers at School for Children with Juvenile Idiopathic Arthritis (JIA) – a Patient Reported Outcome
Kelsey Chomistek¹, Nicole Johnson¹, Rebeka Stevenson¹, Nadia Luca², Paivi Miettunen¹, Susanne Benseler², Dwaraka Veeramreddy³ and Heinrike Schmeling⁴, ¹Pediatrics, University of Calgary, Alberta Children's Hospital, Calgary, AB, Canada, ²Pediatric Rheumatology, University of Calgary, Alberta Children's Hospital, Calgary, AB, Canada, ³University of Calgary, Alberta Children's Hospital, Calgary, AB, Canada, ⁴Alberta Children’s Hospital/University of Calgary, Calgary, AB, Canada
Background/Purpose: Few studies in children with chronic illnesses/disability have reported challenges faced by patients at school. Therefore, the objective of this study is to identify…
Abstract Number: 2434 • 2015 ACR/ARHP Annual Meeting
Promis Tools for Measurement of Patient-Reported Outcomes in Children with Juvenile Arthritis
Timothy Brandon¹, Brandon Becker¹, Katherine Bevans¹ and Pamela F. Weiss², ¹Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA, ²Rheumatology, Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose: Child/parent perspectives on their own/their child's health are highly pertinent to disease management. PROMIS is a collection of patient-reported outcome measures that were developed…
Abstract Number: 2902 • 2014 ACR/ARHP Annual Meeting
The Health Status of Patients with Juvenile Idiopathic Arthritis (JIA) Significantly Worsens after Transfer from Pediatric to Adult Care
Kirsten Minden¹, Jens Klotsche², Martina Niewerth², Angela Zink³ and Gerd Horneff⁴, ¹Chidlrens´ hospital, Charité University Medicine, Berlin, Germany, ²Epidemiology unit, German Rheumatism Research Center, Berlin, Germany, ³German Rheumatism Research Centre and Charité University Medicine, Berlin, Germany, ⁴Asklepios Klinik Sankt Augustin, Sankt Augustin, Germany
Background/Purpose A minority of patients with polyarticular JIA enter adulthood in drug free remission. Thus, patients are in need of care beyond adolescence. There is…
Abstract Number: 300 • 2014 ACR/ARHP Annual Meeting
Patient-Reported Joint Count in Juvenile Idiopathic Arthritis: The Reliability of a Mannequin Format
Maryanne Dijkstra¹, Janneke Anink¹, Philomine A. van Pelt^1,2, Johanna M.W. Hazes² and Lisette W.A. van Suijlekom-Smit¹, ¹Pediatric Rheumatology, Erasmus MC Sophia Children's Hospital, Rotterdam, Netherlands, ²Rheumatology, Erasmus MC, Rotterdam, Netherlands
Background/Purpose: Juvenile idiopathic arthritis (JIA) is a common chronic disease, requiring regular monitoring. Patient-reported outcomes can assist monitoring, may promote patient self-management and can be…

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