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Abstracts tagged "international and juvenile dermatomyositis"

  • Abstract Number: 943 • ACR/ARHP Annual Meeting 2015

    Development of an Internationally Agreed Minimal Dataset for Juvenile Dermatomyositis (JDM) for Clinical and Research Use

    Liza J. McCann1, Lucy R Wedderburn2, Clarissa Pilkington3, Adam M. Huber4, Angelo Ravelli5, Jamie Kirkham6, Paula Williamson6 and Michael W. Beresford7, 1Paediatric Rheumatology, Alder Hey Children's NHS Foundation Trust, Liverpool, United Kingdom, 2Infection, Inflammation and Rheumatology Section, UCL Institute for Child Health, London, United Kingdom, 3Department of Rheumatology, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom, 4Pediatric rheumatology, IWK Health Centre, Halifax, NS, Canada, 5Pediatria-II, IRCCS G. Gaslini and University of Genova, Genova, Italy, 6Department of Biostatistics, University of Liverpool, MRC North West Hub for Trials Methodology Research, Liverpool, United Kingdom, 7Alder Hey Children's NHS Foundation Trust Hospital, Institute of Translational Medicine (Child Health), University of Liverpool, Liverpool, United Kingdom

    Background/Purpose: Juvenile dermatomyositis (JDM) is a rare disease. International collaboration is essential for scrutiny of sufficient patient numbers. We aim to develop a core set…

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