Abstracts tagged "Ehlers-Danlos syndrome"

Abstract Number: 2115 • 2017 ACR/ARHP Annual Meeting
Mast Cell Activation Features in Ehlers-Danlos/Joint Hypermobility Patients: A Retrospective Analysis in Light of an Emerging Disease Cluster
Dave Lee¹ and Eric Mueller², ¹Arthritis Northwest, PLLC, Spokane, WA, ²Discus Analytics LLC., Spokane, WA
Background/Purpose: Mast cells are immune cells often residing in connective tissue, best known for their role in allergic and anaphylactic responses1. Mast cell activation syndrome…
Abstract Number: 2120 • 2017 ACR/ARHP Annual Meeting
Quality, Content and Readability Assessment of Patient Education Websites Relating to Ehlers-Danlos Syndrome
Ahmed Omar^1,2, Laura Passalent³, Leslie Soever⁴, Medha Soowamber⁵ and Simon Carette⁶, ¹Rheumatology, Toronto Western Hospital, University of Toronto, Toronto, ON, Canada, ²Rheumatology, Mount Sinai Hospital, Toronto, ON, Canada, ³Allied Health, Toronto Western Hospital, Toronto, ON, Canada, ⁴Toronto General Hospital, Toronto, ON, Canada, ⁵University Health Network, Toronto, ON, Canada, ⁶Division of Rheumatology, Mount Sinai Hospital, University of Toronto, Toronto, ON, Canada
Background/Purpose: Ehlers-Danlos Syndrome (EDS) is a heritable connective tissue disease that presents in myriad ways. Education is an essential component in managing this complex condition.…
Abstract Number: 279 • 2015 ACR/ARHP Annual Meeting
Ehlers-Danlos Syndrome Hypermobility Type (Type III) Is Associated with Rheumatological Conditions
Kyla Rodgers¹, Richard Chou¹ and Mary Beth Dinulos², ¹Medicine, Geisel School of Medicine at Dartmouth, Lebanon, NH, ²Pediatrics and Genetics, Geisel School of Medicine at Dartmouth, Lebanon, NH
Background/Purpose: Ehlers-Danlos syndrome is a group of inherited conditions caused by genetic mutations in collagen genes, such as COL5A, COL3A, etc, resulting in defects in…
Abstract Number: 2381 • 2015 ACR/ARHP Annual Meeting
Postural Stability in Adolescents with Ehlers-Danlos Syndrome (Hypermobility Type) Following an Exercise Intervention
Jason Long¹, Stephanie Sabo², Cailee Caldwell² and Bailey Petersen³, ¹Orthopaedic Surgery, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Occupational and Physical Therapy, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Kinesiology, Penn State University, State College, PA
Background/Purpose: Ehlers-Danlos Syndrome (EDS) comprises a group of disorders marked by abnormal collagen function. In EDS Hypermobility Type (EDS-HT), major diagnostic findings involve joint hypermobility…
Abstract Number: 2207 • 2014 ACR/ARHP Annual Meeting
Decreased Bone Mineral Density in Patients with Ehler-Danlos Syndrome
Narender Annapureddy¹, Joel A. Block² and Sonali Khandelwal¹, ¹Rheumatology, Rush University Medical Center, Chicago, IL, ²Section of Rheumatology, Rush University Medical Center, Chicago, IL
Background/Purpose: Ehler-Danlos Syndrome (EDS) constitutes a heterogeneous group of inherited connective tissue disorders characterized by abnormalities of collagen I, III, V, or fibronectin, and primarily…
Abstract Number: 2081 • 2014 ACR/ARHP Annual Meeting
Ehlers-Danlos Hypermobile (EDS-HT) Patients and Postural Instability : Another Clue to Explain Pain and Fatigue ?
Roland Jaussaud¹, Elodie Vlamynck², Rami Haidar³, Dorothée Lambert⁴, Violaine Laurant-Noel⁵ and Amélie Servettaz⁵, ¹Médecine interne, maladies infectieuses, immunologie clinique, CHU de Reims, REIMS, France, ²Cabinet d'Orthopédie, Versailles, France, ³Cabinet d'Orthopédie, Lille, France, ⁴Médecine interne, maladies infectieuses, Immunologie clinique, CHU Reims, Reims, France, ⁵Médecine interne, maladies infectieuses, immunologie clinique, Hôpital Robert Debré. CHU de Reims, Reims, France
Background/Purpose Postural instability was found in several functional disorders including dyslexia, chronic pain and fibromyalgia. Furthermore, the link between vertical heterophoria (VH) and postural control…
Abstract Number: 1104 • 2013 ACR/ARHP Annual Meeting
Quality Of Life and Burden Of Ehlers-Danlos Syndrome (EDS) Type III
Marion Geoffroy¹, Christelle Guillaume¹, Amélie Servettaz¹, Violaine Laurant-Noel¹, Christine Serratrice Sr.², Jacques Serratrice³, Boris Bienvenu⁴ and Roland Jaussaud⁵, ¹Médecine interne, maladies infectieuses, immunologie clinique, Hôpital Robert Debré. CHU de Reims, Reims, France, ²internal medicine, Foundation Hopital Saint Joseph, Marseille, France, ³Hôpital de la Timone, Marseille, France, ⁴Division of Internal Medicine, Centre Hospitalier Régional Universitaire de Caen, Côte de Nacre, Caen, France, Caen, France, ⁵Médecine interne, maladies infectieuses, immunologie clinique, CHU de Reims, REIMS, France
Background/Purpose: The Ehlers-Danlos syndrome (EDS) is a clinically and genetically heterogeneous group of inherited connective tissue disorders. Hypermobility type EDS is the most common type…
Abstract Number: 843 • 2013 ACR/ARHP Annual Meeting
Endogenous Pain Modulation In The Ehlers-Danlos Syndrome, Hypermobility Type
Inge De Wandele, Department of Rehabilitation Sciences and Physiotherapy, Ghent University, Ghent, Belgium
Background/Purpose: The Ehlers-Danlos Syndrome (EDS) is the most prevalent heritable connective tissue disorder. More than 90% of individuals are classified as having the hypermobility type…

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