Abstracts tagged "doctor-patient relationship"

Abstract Number: 057 • 2020 Pediatric Rheumatology Symposium
Transition from Pediatric to Adult Rheumatology: The Clinician as a Fundamental Ally
Teresa Semalulu ¹, Karen Beattie ¹, Jeanine McColl ¹, Arzoo Alam ², Steffy Thomas ¹, Julie Herrington ³, Jan Willem Gorter ¹, Tania Cellucci ¹, Stephanie Garner ¹, Liane Heale ⁴, Mark Matsos ¹ and Michelle Batthish¹, ¹McMaster University, Hamilton, Canada, ²McMaster University, Mississauga, Canada, ³Hamilton, Canada, ⁴McMaster University, Toronto, Canada
Background/Purpose: The transition from pediatric to adult rheumatology is linked to poor outcomes in the absence of comprehensive transition programs. Several tools are available to…
Abstract Number: 1154 • 2019 ACR/ARP Annual Meeting
Hispanic Patients with Rheumatoid Arthritis Have Greater Discordance Between Patient and Physician Global Estimates Than Other Ethnic Groups, Explained Largely by Fibromyalgia (FM) According to a FM Assessment Screening Tool 3 (FAST3)
Isabel Castrejon¹, Mariam Riad ², Joel A. Block ¹ and Theodore Pincus ², ¹Rush University Medical Center, Chicago, IL, ²Division of Rheumatology, Rush University Medical Center, Chicago, IL
Background/Purpose: Discordance between patient and physician global estimates has been described in many rheumatic diseases, including rheumatoid arthritis (RA)1, and has been associated with decreased…
Abstract Number: 2763 • 2019 ACR/ARP Annual Meeting
What Disease Do You Have? – Assessment and Predictors of Accurate Illness Naming in Rheumatology
Jacob Meindertsma¹, Kara Harrison ¹, Nicholas Lucchesi ¹ and Adam Carlson ¹, ¹University of Virginia, Charlottesville, VA
Background/Purpose: Shared decision making remains central to the effective treatment of many rheumatologic conditions and is most appropriate when the patient and physician agree on…
Abstract Number: 979 • 2018 ACR/ARHP Annual Meeting
Stopping Medicines for Inactive Juvenile Idiopathic Arthritis: What Do Patients and Families Consider?
Daniel B. Horton^1,2, Jomaira Salas³, Aleksandra Wec⁴, Timothy Beukelman⁵, Alexis Boneparth⁶, Jaime Guzman⁷, Ky Haverkamp⁸, Melanie Kohlheim⁹, Melissa L. Mannion⁵, Nandini Moorthy¹, Elizabeth Stringer¹⁰, Lori Tucker⁷, Sarah Ringold¹¹ and Marsha Rosenthal², ¹Pediatrics, Rutgers Robert Wood Johnson Medical School, New Brunswick, NJ, ²Rutgers Institute for Health, Health Care Policy and Aging Research, New Brunswick, NJ, ³Department of Sociology, Rutgers, the State University of New Jersey, New Brunswick, NJ, ⁴Mathematica Policy Research, Princeton, NJ, ⁵Pediatrics, University of Alabama at Birmingham, Birmingham, AL, ⁶Pediatrics, Columbia University Medical Center, New York, NY, ⁷Rheumatology, BC Children's Hospital and University of British Columbia, Vancouver, BC, Canada, ⁸Family Medicine, University of Washington School of Medicine, Seattle, WA, ⁹Pediatric Rheumatology Care and Outcomes Improvement Network, Cincinnati, OH, ¹⁰IWK Health Centre, Dalhousie University, Halifax, NS, Canada, ¹¹Pediatrics, Seattle Children's Hospital, Seattle, WA
Background/Purpose: Prior research has focused on factors important to clinicians in decisions about withdrawing JIA therapy. Based on recent interviews with patients and caregivers about…
Abstract Number: 1398 • 2018 ACR/ARHP Annual Meeting
Inflammatory Arthritis DMARD Adverse Effects Are Pervasive and Can Greatly Impact Quality of Life and Work and Social Roles: Initial Results from the Omeract Safety Working Group
Kathleen M. Andersen¹, Ayano Kelly², Anne Lyddiatt³, Clifton O. Bingham III⁴, Vivian P. Bykerk⁵, Marita Cross⁶, Adena Batterman⁷, Joan Westreich⁸, Lyn March⁹, Michelle Jones¹⁰, Beverly Shea¹¹, Peter Tugwell¹², Peter Brooks¹³, Lee S. Simon¹⁴, Robin Christensen¹⁵ and Susan J. Bartlett¹⁶, ¹Department of Family Medicine, McGill University, Montreal, QC, Canada, ²Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia, ³Musculoskeletal Group, Cochrane Collaboration, Hamilton, ON, Canada, ⁴Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ⁵Deptartment of Rheumatology, Hospital for Special Surgery, New York, NY, ⁶Institute of Bone and Joint Research–Kolling Institute, University of Sydney, Sydney, Australia, ⁷Social Work Programs, Hospital for Special Surgery, New York, NY, ⁸Department of Social Work Programs, Hospital for Special Surgery, New York, NY, ⁹Department of Rheumatology, Northern Clinical School, Institute of Bone and Joint Research, Kolling Institute, University of Sydney & Department of Rheumatology, Royal North Shore Hospital, St Leonards, Sydney, Australia, ¹⁰Johns Hopkins University School of Medicine, Baltimore, MD, ¹¹University of Ottawa, Ottawa, ON, Canada, ¹²Center For Global Health, Institute of Population Hlth, Ottawa, ON, Canada, ¹³The University of Melbourne, Victoria, Australia, ¹⁴SDG LLC Consulting, West Newton, MA, ¹⁵Musculoskeletal Statistics Unit, The Parker Institute, Bispebjerg and Frederiksberg, Denmark, ¹⁶Department of Medicine, Division of ClinEpi, Rheumatology, Respirology, McGill University, Montreal, QC, Canada
Background/Purpose: There is suboptimal reporting of adverse events (AE) in trials. The OMERACT Safety Working Group is developing a patient-centered AE collection and reporting approach…
Abstract Number: 211 • 2017 ACR/ARHP Annual Meeting
Hopes and Fears of Patients with Axial Spondyloarthritis in Spain. the Value of Patient Opinion: Results from the Spanish Atlas
Marco Garrido-Cumbrera¹, Pedro Plazuelo-Ramos², Olta Brace¹, David Galvez-Ruiz¹ and Jorge Chacon-Garcia¹, ¹Universidad de Sevilla, Seville, Spain, ²CEADE, Madrid, Spain
Background/Purpose: Not much attention has been paid to listening to the opinions of patients in most scientific studies on Spondyloarthritis, despite their opinions playing an…
Abstract Number: 1255 • 2017 ACR/ARHP Annual Meeting
Using PROs to Guide Patient-Centered Conversations and Care in Inflammatory Arthritis: The Clinician Perspective
Susan J. Bartlett¹, Katherine Clegg Smith², Elaine de Leon², Michelle Jones³, Anna Kristina Gutierrez⁴, Allie Butanis⁵ and Clifton O. Bingham III⁶, ¹Department of Medicine, Division of ClinEpi, Rheumatology, Respirology, McGill University, Montreal, QC, Canada, ²Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, ³Johns Hopkins University School of Medicine, Baltimore, MD, ⁴Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ⁵Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD, ⁶Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD
Background/Purpose: Although patient-reported outcomes (PROs) are routinely collected for research and quality purposes, they have not been routinely incorporated into the routine care of patients.…
Abstract Number: 2255 • 2017 ACR/ARHP Annual Meeting
Using PROs to Guide Patient-Centered Conversations and Care in Inflammatory Arthritis: The Patient Perspective
Clifton O. Bingham III¹, Katherine Clegg Smith², Elaine de Leon², Michelle Jones³, Anna Kristina Gutierrez⁴, Allie Butanis⁵ and Susan J. Bartlett⁴, ¹Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ²Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, ³Johns Hopkins University School of Medicine, Baltimore, MD, ⁴Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ⁵Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD
Background/Purpose: Although optimal care is patient-centered and grounded in shared decision-making (SDM) between patients and providers, rheumatologists often have little insight into the day-to-day experiences…
Abstract Number: 113 • 2016 ACR/ARHP Annual Meeting
Online Consultation for Chinese Patients with Rheumatic Diseases Based on Smart System of Disease Management (SSDM) Mobile Tools: A Study of Medical Economics
Fei Xiao¹, Xiangyuan Liu², Zhijun Li³, Tong Xie⁴, Xinwang Duan⁵, Huiqiong Zhou⁶, Yanhong Huang⁷, Yi Zheng⁸, Hua Wei⁹, Hongzhi Wang¹⁰, Rong Mu¹¹, Hui Xiao¹, Yuhua Jia¹, Yonggang Zhao¹, Yuan Liu¹ and Fengchun Zhang¹², ¹Gothic Internet Technology Corporation, Shanghai, China, ²Department of Rheumatology and Immunology, Peking University Third hospital, Bei jing, China, ³The First Affiliated Hospital of Bengbu Medical College, Bengbu, China, ⁴Affiliated hospital of Guangdong medical University, Zhanjiang, China, ⁵Department of rheumatology, The Second Affiliated Hospital of Nanchang University, Nanchang, China, ⁶The First Affiliated Hospital of PLA General Hospital, Beijing, China, ⁷Beijing Jishuitan Hospital, Beijing, China, ⁸8 Gongren Tiyuchang Nanlu, Cha, Beijing Chao-Yang Hospital, Beijing, China, ⁹No 98,Nantong West Rd,Yangzhou, Northern Jiangsu People's Hospital, Yangzhou, China, ¹⁰The First Hospital of Jiaxing, Jiaxing, China, ¹¹Department of Rheumatology and Immunology, Peking University People's Hospital, Beijing, China, ¹²Peking Union Medical College Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing, China
Background/Purpose: China does not have primary medical care and referral system. Patients can choose any hospital or any doctor they like to seek medical care.…
Abstract Number: 1414 • 2016 ACR/ARHP Annual Meeting
Access to an Active, Interactive Self-Assessment e-Health Platform Improves Patient-Physician Communication in Rheumatoid Arthritis: Results of a Randomized Controlled Trial Including 320 Patients over 1 Year
Laure Gossec¹, Herve Servy², Martin Soubrier³, Jean-Michel Joubert⁴, Wienia Czarlewski⁴, Bernard Combe⁵, Jean-Marie Berthelot⁶, Daniel Wendling⁷, Alain Cantagrel⁸, Emmanuelle Dernis⁹, Laurent Grange¹⁰, Catherine Beauvais¹¹, Aleth Perdriger¹², Henri Nataf¹³ and Maxime Dougados¹⁴, ¹Paris 06 University and AP-HP, Hôpital Pitié Salpêtrière, Paris, France, ²Sanoia, La Ciotat, France, ³Rheumatology, Department of Rheumatology, CHU Gabriel Montpied, Clermont-Ferrand, France, ⁴UCB Pharma, Colombes, France, ⁵Département Rhumatologie, Hôpital Lapeyronie, Montpellier, France, ⁶Service Rheumatology, CHU de Nantes, Nantes, France, ⁷Service de Rhumatologie, CHU Jean Minjoz, Besancon, France, ⁸Service de Rhumatologie, Hôpital de Purpan CHU Toulouse, Toulouse, France, ⁹Service de Rhumatologie, Centre Hospitalier, Le Mans, France, ¹⁰CHU Grenoble - Hôpital SUD, Echirolles, France, ¹¹Service de Rhumatologie, Hopital Saint Antoine, Paris, France, ¹²C.H.R. Hôpital Sud, Rennes, France, ¹³Cabinet Medical, Mantes-la-Jolie, France, ¹⁴Service de Rhumatologie B, Hopital Cochin, Paris, France
Background/Purpose: Electronic (e)-health is a rapidly evolving field. Interactive online services are available and may be useful for patients with chronic diseases such as rheumatoid…
Abstract Number: 2608 • 2015 ACR/ARHP Annual Meeting
The “Rheumatoid Arthritis Impact of Disease”� Score Correlates with Other Patient Reported Outcomes and with Disease Activity Scores in Patients with RA and Its Patient Acceptable Symptom State Is More Stringent Than DAS28-Remission
Ricardo J.O. Ferreira^1,2, Cátia Duarte^1,3, Sylvie Batista³, Catarina Medeiros³, J.P. Sousa³, Gisela Eugénio¹, Carlos Costa¹, Pedro Carvalho¹, Joana F. Ferreira¹, Margarida Coutinho^1,4, Maria J. Salvador^1,4, Laure Gossec⁵ and J.A.P. da Silva^3,6, ¹Rheumatology, Centro Hospitalar e Universitário de Coimbra - Hospitais da Universidade de Coimbra, EPE, Coimbra, Portugal, ²Health Sciences Research Unit: Nursing (UICISA: E), Coimbra, Portugal, ³Faculty of Medicine, Universidade de Coimbra, Coimbra, Portugal, ⁴Clínica Universitária de Reumatologia, Faculty of Medicine, Universidade de Coimbra, Coimbra, Portugal, ⁵Rheumatology, Pitié Salpetriere Hospital, Paris, France, ⁶Centro Hospitalar e Universitário de Coimbra - Hospitais da Universidade de Coimbra, EPE, Coimbra, Portugal
Background/Purpose: The "Rheumatoid Arthritis Impact of Disease" (RAID) score is a Patient Reported Outcome (PRO) that comprises seven domains of disease[1], that may reflect the…

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