ACR Meeting Abstracts

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Abstracts tagged "Disparities"

  • Abstract Number: 0616 • ACR Convergence 2024

    Disparities in Health-Related Quality of Life Among Patients with Systemic Lupus Erythematosus

    Victoria Delk1, Dulaney Wilson2, Gary Gilkeson2, Jim Oates2 and Diane Kamen2, 1Medical University of South Carolina, North Charleston, SC, 2Medical University of South Carolina, Charleston, SC

    Background/Purpose: Systemic lupus erythematosus (SLE) is a systemic autoimmune disease with the potential to severely diminish patients' quality of life (QoL). SLE disproportionately affects young…
  • Abstract Number: 1030 • ACR Convergence 2024

    Diversity in Axial Spondyloarthritis Drug Trials: Examining Enrollment by Sex, Race, Ethnicity and Geographic Region

    Mathieu Choufani1, Wissam Ghusn2 and Joerg Ermann3, 1Division of Rheumatology, Inflammation, and Immunity, Brigham and Women's Hospital, Boston, MA, 2Department of Internal Medicine, Boston Medical Center, Boston, MA, 3Division of Rheumatology, Inflammation and Immunity, Brigham and Women's Hospital and Harvard Medical School, Boston, MA

    Background/Purpose: While axial spondyloarthritis (AxSpA) was historically perceived as a "white man's disease", it is now appreciated as a condition that can affect individuals of…
  • Abstract Number: 1916 • ACR Convergence 2024

    Healthcare Disparities and Clinical Outcomes in Cardiac Sarcoidosis. a Retrospective Cohort Study

    Yurilu Gonzalez Moret1, Diego Lema2, kevin Lo3 and Fabian Rodriguez Quinonez4, 1Jefferson Einstein Hospital, Philadelphia, PA, 2Universidad Central de Venezuela, University of Wisconsin, Philadelphia, PA, 3Brigham and Women's Hospital, Boston, MA, 4Einstein Medical Center Philadelphia, Philadelphia, PA

    Background/Purpose: Sarcoidosis is a condition affecting multiple organ systems, characterized by the presence of non-caseating granulomas. Cardiac sarcoidosis (CS) is a challenging diagnosis, with a…
  • Abstract Number: 2552 • ACR Convergence 2024

    Changes in Social Determinants of Health Needs Uncovered by a Rheumatology-Based Screening and Assistance Program

    Haelynn Gim1, Rebecca Summit2, Karli Retzel2, Leah Santacroce2, Virginia Bills3, Nancy Shadick2, Sara Schoenfeld4 and Candace Feldman2, 1Harvard Medical School, Brookline, MA, 2Brigham and Women's Hospital, Boston, MA, 3Mass General Brigham, Boston, MA, 4Massachusetts General Hospital, Boston, MA

    Background/Purpose: Social determinants of health (SDoH), including non-medical social needs and adverse environmental exposures, contribute to inequities in rheumatic disease care and outcomes. Patients with…
  • Abstract Number: 0185 • ACR Convergence 2024

    New and Severe Damage in a Prevalent Lupus Cohort Through the Lens of Demographic and Neighborhood Disparities

    Jonathan Katz1, Ang Yu2, Felix Elwert2, Robert Greenlee3, David Gazeley4, Ann Rosenthal5, Jenna Cormier5, Bryn Sutherland5, Shalvi Parikh6, Yiran Jiang7 and Christie Bartels8, 1University of Wisconsin Hospitals and Clinics, Madison, WI, 2University of Wisconsin-Madison, Madison, WI, 3Marshfield Clinical Research Institute, Marshfield, WI, 4Medical College of Wisconsin, Wauwatosa, WI, 5Medical College of Wisconsin, Milwaukee, WI, 6Mississippi Delta Family Medicine Residency, Greenville, MS, 7Annapolis Rheumatology, Washington, DC, 8University of Wisconsin School of Medicine and Public Health, Madison, WI

    Background/Purpose: Systemic Lupus Erythematosus (SLE) disproportionally affects minoritized populations.  SLE damage, assessed by SLICC/ACR Damage Index (SDI), is higher in Black than in White US…
  • Abstract Number: 0619 • ACR Convergence 2024

    Prevalence and Factors Predicting Hemophagocytic Lymphohistiocytosis in Hospitalized Patients with Systemic Lupus Erythematosus

    OKEOGHENE AKPOIGBE1, BETTINA ESCOLANO2, ENOCH J ABBEY2 and Amanda Sammut3, 1New York City Health and Hospitals/Harlem in Affliation with Columbia University, NEW YORK, NY, 2New York City Health and Hospitals/Harlem in Affliation with Columbia University, NEW YORK, 3New York City Health and Hospitals/Harlem. Rheumatology Department, Chappaqua, NY

    Background/Purpose: Systemic lupus erythematosus (SLE) complicated with hemophagocytic lymphohistiocystosis (HLH) can be life-threatening with mortality as high as 9.9%-10.5%. Estimates of the prevalence of HLH…
  • Abstract Number: 1031 • ACR Convergence 2024

    Access to Advanced Therapies in Axial Spondyloarthritis in Latin America, Data from the PANLAR-ESPALDA Registry

    Rodrigo Garcia Salinas1, Fernando Andres Sommerfleck2, Diego Vila3, Daniel Palleiro4, Daniel Fernández-Ávila5, Julio César Casasola Vargas6, Maria Amada Barcia7, Dora Liliana Candia Zuniga8, Nicolas Martin Marin Zucaro9, María Lorena Brance10 and Wilson Bautista-Molano11, 1Hospital Italiano La Plata, La Plata, Argentina, 2Sanatorio Julio Mendez, Buenos Aires, Argentina, 3Hospital Virgen del Carmen, Campana, Buenos Aires, Argentina, 4Instituto Nacional de Reumatologia, Montevideo, Uruguay, 55Hospital San Ignacio, Colombia, BOGOTA, Colombia, 6Hospital General de México, “Dr.Eduardo Liceaga”, MEXICO CITY, Mexico, 77Hospital General Portoviejo del Instituto Ecuatoriano de Seguridad Social (IESS), Guayaquil, Ecuador, 88Hospital Regional Primero de Octubre ISSTE, Fuerzas Armadas, Mexico City, Mexico, 9Hospital Italiano de Buenos Aires, Capital Federal, Argentina, 10School of Medicine, Rosario National University, Argentina, Rosario, Argentina, 11University Hospital Fundación Santa Fe de Bogotá, Bogotá, Colombia

    Background/Purpose: Access to advanced treatments in LATAM poses challenges due to various socioeconomic factors. The PANLAR-ESPALDA registry was established with the objective of gathering data…
  • Abstract Number: 1917 • ACR Convergence 2024

    Access to Rheumatology Care near Indian Health Service Hospitals for American Indian Communities

    Tristan Furnary1, Rachel Wallwork2, Megan Lockwood3, Brooke Montgomery4, Caleb Bolden4, Siobhan Wescott5, Matthew Tobey4 and Marcy Bolster4, 1Harvard Medical School, Brookline, MA, 2Johns Hopkins University, Towson, MD, 3Medstar Georgetown University Hospital, Washington, DC, 4Massachusetts General Hospital, Boston, MA, 5University of Nebraska Medical Center, Omaha, NE

    Background/Purpose: Geographic barriers to subspecialty care among American Indian (AI) populations are poorly defined. Mapping the geographic distribution of rheumatology providers is a crucial step…
  • Abstract Number: 2555 • ACR Convergence 2024

    Addressing Economic Insecurities Could Improve Patient-Reported Outcomes in Lupus

    Shivani Garg1, Jay Patel1, Meredith Ingersoll2, Shelby Gomez2, Amanda Weber2, Sarah Panzer1, Sancia Ferguson3, Tripti Singh1 and Christie Bartels4, 1University of Wisconsin, School of Medicine and Public Health, Madison, Madison, WI, 2UW Health, Madison, 3University of Wisconsin, Madison, Madison, WI, 4University of Wisconsin School of Medicine and Public Health, Madison, WI

    Background/Purpose: A complex interaction between biologic factors and social determinants of health (SDoH) drives disparities in lupus (or SLE) outcomes in the US. A recent…
  • Abstract Number: 0188 • ACR Convergence 2024

    Social Support in African American Women with and Without Systemic Lupus Erythematosus (SLE)

    Sarah Smith1, Chloe Mattila1, Charmayne M. Dunlop-Thomas2, Lusawasra King3, Lori Ann Ueberroth3, Edith Williams4, S. Sam Lim5, Diane Kamen3, Bethany Wolf3 and Paula Ramos3, 1Medical University of South Carolina, Charleston, 2Emory University School of Medicine, Department of Medicine, Division of Rheumatology, Atlanta, GA, 3Medical University of South Carolina, Charleston, SC, 4University of Rochester School of Medicine and Dentistry, Rochester, 5Emory University, Atlanta, GA

    Background/Purpose: Systemic lupus erythematosus (SLE) disproportionately impacts African American women. However, this health disparity population continues to be underrepresented in research. Research suggests that social…
  • Abstract Number: 0676 • ACR Convergence 2024

    Understanding the Patient Burden of Lupus: Insights from Multi-Faceted Ethnography Research

    Jeanette Andersen1, Ina Meyer2, Neeta Camadoo3, Tracy Machado4, Shreya Saraf4 and Mohamed Akrout2, 1Lupus Europe, Brussels, Belgium, 2F. Hoffmann-La Roche Ltd, Basel, 3Roche Products Ltd, Welwyn Garden City, 4Elma Research International, London

    Background/Purpose: Systemic lupus erythematosus (SLE or lupus) is a chronic autoimmune disease that affects multiple organs, including the skin, joints, lungs, heart, kidneys and brain.…
  • Abstract Number: 1040 • ACR Convergence 2024

    Clinic Personnel Perceptions Were Favorable for the Implementation of a Patient Decision-Aid for a Diverse Systemic Lupus Erythematosus Population: A Study in 15 U.S. Rheumatology Clinics

    Jasvinder Singh1, Larry Hearld2, Walter Chatham3, Sonali Narain4, Narender Annapureddy5, Diane Kamen6, Kimberly Trotter7, vikas Majithia8, Cathy Lee Ching9, Zineb Aouhab10, Swamy Venuturupalli11, Daniel Wallace12, rosalind Ramsey-Goldman13, Alfred Kim14, Maureen McMahon15, S. Sam Lim16, Kalpana Bhairavarasu17, Alexa Meara18 and Kenneth Kalunian19, 1Baylor College of Medicine, Birmingham, AL, 2University of Alabama at Birmingham (UAB), Birmingham, AL, 3University of Nevada, Las Vegas, Las Vegas, NV, 4Northwell Health, Great Neck, NY, 5Vanderbilt University Medical Center, Nashville, TN, 6Medical University of South Carolina, Charleston, SC, 7University of Chicago, Chicago, IL, 8University of Missisippi Medical Center (UMC), Jackson, MS, 9UMMC, Jackson, MS, 10Loyola University Medical Center, Oak Brook, IL, 11Attune Health, Beverly Hills, CA, 12Cedars Sinai Medical Center, Studio City, CA, 13Northwestern University, Chicago, IL, 14Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO, 15UCLA David Geffen School of Medicine, Los Angeles, CA, 16Emory University, Atlanta, GA, 17Baylor College of Medicine, Sugar Land, TX, 18The Ohio State University Wexner Medical Center, COLUMBUS, OH, 19University of California San Diego, La Jolla, CA

    Background/Purpose: To understand clinic personnel feedback regarding the implementation of a self-administered patient decision-aid (PtDA) for lupus in regular, outpatient rheumatology clinics.Methods: We provided self-administered…
  • Abstract Number: 1918 • ACR Convergence 2024

    Exploring the Childhood Opportunity Index and Distance to Care in a Cohort of Children with Rheumatic Disease

    Kristina Ciaglia1 and Alaina Beauchamp2, 1UT Southwestern Medical Center and Scottish Rite for Children, Dallas, TX, 2UT Southwestern Medical Center, Dallas

    Background/Purpose: Children from disadvantaged neighborhoods and socioeconomic backgrounds experience worse outcomes and delays in care.¹ The Childhood Opportunity Index (COI) is a multidimensional validated tool…
  • Abstract Number: 2556 • ACR Convergence 2024

    A Multi-center Study of Associations Between Neighborhood-Level Child Opportunity, Initial Disease Severity and Acute Care Utilization Among Children with SLE

    Joyce Chang1, Jessica Liu1, Emily Smitherman2, Pooja Patel3, Gabrielle Alonzi1, Gabrielle Morgan4, Livie Timmerman5, Laura Berbert6, Edie Weller1, Karen Costenbader7 and Mary Beth Son8, 1Boston Children's Hospital, Boston, MA, 2University of Alabama at Birmingham, Birmingham, AL, 3Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, 4Ann & Robert H. Lurie Children's Hospital of Chicago and Northwestern University Feinberg School of Medicine, Chicago, IL, 5University of Alabama at Birmingham, Gardendale, AL, 6Boston Children's Hospital, Belmont, MA, 7Brigham and Women's Hospital/ Harvard Medical School, Boston, MA, 8Boston Children's Hospital, Brookline, MA

    Background/Purpose: Child opportunity is defined as the neighborhood resources and conditions that promote healthy childhood development. We determined whether low neighborhood-level opportunity associates with more…
  • Abstract Number: 0189 • ACR Convergence 2024

    Racial Discrimination Among African American Women with and Without Systemic Lupus Erythematosus (SLE)

    Jessica Browder1, Paula Ramos2, Diane Kamen2, Bethany Wolf2, S. Sam Lim3, Lori Ann Ueberroth2 and Lusawasra King2, 1Florida State University, Tallahassee, FL, 2Medical University of South Carolina, Charleston, SC, 3Emory University, Atlanta, GA

    Background/Purpose: Black or African American women are disproportionately affected by SLE but remain underrepresented in research studies. To further knowledge about this health disparity group,…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

ACR Abstract Embargo Policy

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. Academic institutions, private organizations and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part a scientific presentation or presentation of additional new information that will be available at the time of the meeting) is under embargo until Saturday, November 11, 2023.

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying financial and other sponsors about this policy. If you have questions about the abstract embargo policy, please contact the public relations department at [email protected].

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