Abstracts tagged "Disparities"

Abstract Number: 0375 • ACR Convergence 2024
Patient Outcomes During the Implementation of a Patient Decision-Aid for a Diverse Population of Systemic Lupus Erythematosus: A Study in 15 U.S. Rheumatology Clinics
Jasvinder Singh¹, Larry Hearld², Walter Chatham³, Sonali Narain⁴, Narender Annapureddy⁵, Diane Kamen⁶, Kimberly Trotter⁷, vikas Majithia⁸, Zineb Aouhab⁹, Swamy Venuturupalli¹⁰, Daniel Wallace¹¹, rosalind Ramsey-Goldman¹², Alfred Kim¹³, Maureen McMahon¹⁴, S. Sam Lim¹⁵, Kalpana Bhairavarasu¹⁶, Alexa Meara¹⁷, Kenneth Kalunian¹⁸ and Cathy Lee Ching¹⁹, ¹Baylor College of Medicine, Birmingham, AL, ²University of Alabama at Birmingham (UAB), Birmingham, AL, ³University of Nevada, Las Vegas, Las Vegas, NV, ⁴Northwell Health, Great Neck, NY, ⁵Vanderbilt University Medical Center, Nashville, TN, ⁶Medical University of South Carolina, Charleston, SC, ⁷University of Chicago, Chicago, IL, ⁸University of Missisippi Medical Center (UMC), Jackson, MS, ⁹Loyola University Medical Center, Oak Brook, IL, ¹⁰Attune Health, Beverly Hills, CA, ¹¹Cedars Sinai Medical Center, Studio City, CA, ¹²Northwestern University, Chicago, IL, ¹³Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO, ¹⁴UCLA David Geffen School of Medicine, Los Angeles, CA, ¹⁵Emory University, Atlanta, GA, ¹⁶Baylor College of Medicine, Sugar Land, TX, ¹⁷The Ohio State University Wexner Medical Center, COLUMBUS, OH, ¹⁸University of California San Diego, La Jolla, CA, ¹⁹UMMC, Jackson, MS
Background/Purpose: To implement a self-administered patient decision-aid (PtDA) for lupus in outpatient clinics, assess its reach/penetration within each clinic, and examine patient outcomesMethods: An effective…
Abstract Number: 1026 • ACR Convergence 2024
Healthcare Utilization and Childhood Opportunity Index in Patients with Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus
Julia Harris¹, Ashley Cooper² and Luke Harris², ¹Children's Mercy Kansas City, Overland Park, KS, ²Children's Mercy Kansas City, Kansas City, MO
Background/Purpose: Juvenile idiopathic arthritis (JIA) and systemic lupus erythematosus (SLE) are chronic autoimmune diseases that can be complicated by significant morbidity. There are also known…
Abstract Number: 1907 • ACR Convergence 2024
Community-Engaged Curriculum Development Using Racial Justice and Biomedical Lenses to Address COVID-19 Vaccine Hesitancy in Black Individuals with Rheumatologic Conditions
Eseosa Osaghae¹, Greta Sirek², Tonya Roberson³, Mia Chandler⁴, Ariel Childs⁵, Monica Crespo-Bosque⁶, Gina Curry⁷, Amar Dhand⁸, Mary Dollear⁹, Alice Eggleston¹⁰, Nnenna Ezeh², Dieufort Fleurissaint¹¹, Denice Garrett¹², Gail Granville¹³, Muriel Jean-Jacques¹, Elena Losina², Holly Milaeger¹, Lutfiyya Muhammad¹⁴, Mary Ann Nelson¹⁵, Chisa Nosamiefan¹⁶, Bisola Ojikutu¹⁷, Neil Pillai¹, Marie Jacques Toussaint¹⁸, Mary Beth Son¹⁹, Ana Valle², Jessica Williams²⁰, Michael York²¹, Karen Mancera-Cuevas²², Candace Feldman² and rosalind Ramsey-Goldman¹, ¹Northwestern University, Chicago, IL, ²Brigham and Women's Hospital, Boston, MA, ³Governors State University College of Health and Human Services, University Park, IL, ⁴Boston Children’s Hospital, Boston, MA, ⁵Vital CxNs, Boston, MA, ⁶Boston Medical Center, Boston, MA, ⁷University of Chicago Pritzker School of Medicine, Chicago, IL, ⁸Brigham and Women’s Hospital, Boston, MA, ⁹Lupus Society of Illinois, Chicago, IL, ¹⁰Alliance Chicago, Chicago, IL, ¹¹True Alliance Center, Inc, Boston, MA, ¹²Action for Bridgeport Community Development, Inc., Bridgeport, CT, ¹³Women of Courage, Inc, Boston, MA, ¹⁴Northwestern Feinberg School of Medicine, Chicago, IL, ¹⁵Mission Hill Health Movement Inc, Roxbury, MA, ¹⁶The Labalaba Foundation for Lupus Awareness and Advocacy, South Weymouth, MA, ¹⁷Harvard Medical School, Brigham and Women’s Hospital, Boston Public Health Commission,, Boston, MA, ¹⁸True Alliance Center, Inc., Boston, MA, ¹⁹Boston Children's Hospital, Brookline, MA, ²⁰Emory School of Medicine, Atlanta, GA, ²¹Boston University, Boston, MA, ²²National Health Council, Washington, DC
Background/Purpose: Despite the efficacy of COVID-19 vaccines and the benefits for individuals with rheumatic conditions, racial inequities in uptake persist. We initiated a trial that…
Abstract Number: 2409 • ACR Convergence 2024
Adherence to EULAR Recommendations and Sub Optimal Management of Systemic Lupus Erythematosus in a Network of Community-Based Rheumatology Practices in the United States
Jeffrey Curtis¹, Emily Holladay², Amy Mudano³, Emily Smitherman⁴, Fenglong xie⁵, Shanette G. Daigle⁶, Yujie Su³, Mawuena Binka⁷, Gelareh Atefi⁸, Rana Muhammad Qasim Khan⁹ and Tope Olufade¹⁰, ¹Illumination Health, Birmingham, AL, ²University of Alabama at Birmingham, Edmond, OK, ³Illumination Health, Hoover, AL, ⁴University of Alabama at Birmingham, Birmingham, AL, ⁵University of Alabama at Birmingham; Illumination Health, Birmingham, AL, ⁶Foundation for Advancing Science, Technology, Education, and Research, Birmingham, ⁷BioPharmaceuticals Medical, AstraZeneca, Wilmington, DE, ⁸AstraZeneca, Media, PA, ⁹BioPharmaceuticals Medical, AstraZeneca, Wilmington, ¹⁰AstraZeneca, Wilmington, DE
Background/Purpose: Despite new developments in systemic lupus erythematosus (SLE) treatment and treatment guidelines, the clinical management of SLE is often sub-optimal. We aimed to describe…
Abstract Number: 0180 • ACR Convergence 2024
Collaborative Solutions to Lupus Trial Challenges for Underrepresented Participant Recruitment & Engagement: Perspectives from the Lupus Clinical Investigators Network (LuCIN)
Brandon Jackson¹, Maria Dall'Era², Saira Sheikh³, Xueting Zhang⁴, Taylor Irons⁵, Claire Finney⁶, Taylor Adjei⁷, Jennifer Meriwether⁷, Caroline Donovan⁸, Carla Menezes⁹ and Stacie Bell¹⁰, ¹Lupus Research Alliance / Lupus Therapeutics, Miami, FL, ²UCSF, Corte Madera, CA, ³University of North Carolina at Chapel Hill, Chapel Hill, NC, ⁴Weill Cornell, New York, NY, ⁵Lupus Research Alliance / Lupus Therapeutics, Houston, ⁶Lupus Research Alliance / Lupus Therapeutics, Birmingham, AL, ⁷Lupus Research Alliance / Lupus Therapeutics, New York, NY, ⁸Lupus Research Alliance / Lupus Therapeutics, Arlington, VA, ⁹Lupus Research Alliance / Lupus Therapeutics, Brooklyn, NY, ¹⁰Lupus Therapeutics, Lakewood, CO
Background/Purpose: Racial and ethnic minority groups face higher lupus prevalence and severity and remain inadequately represented in lupus clinical trials. Lupus Therapeutics, the clinical affiliate…
Abstract Number: 0378 • ACR Convergence 2024
Disparate Disease Activity Outcomes Associated with Demographic Variables in Patients with Juvenile Idiopathic Arthritis in the Pediatric Rheumatology Care and Outcomes Improvement Network Registry
Julia Harris¹, Catherine Bingham², Sheetal Vora³, Cagri Yildirim-Toruner⁴, Kerry Ferraro⁵, Erik Friedrichsen⁶, Michelle Batthish⁷, Jon Burnham⁸, Danielle Fair⁹, Suhas Ganguli¹⁰, Mileka Gilbert¹¹, Beth Gottlieb¹², Tzielan Lee¹³, Daniel Lovell¹⁴, Melissa Mannion¹⁵, Edward Oberle¹⁶, Nancy Pan¹⁷, Linda Ray¹⁸, Michael Shishov¹⁹, Mary Toth²⁰ and Esi Morgan²¹, ¹Children's Mercy Kansas City, Overland Park, KS, ²Penn State Children’s Hospital, Hershey, ³Atrium Health Levine Children's Hospital, Charlotte, NC, ⁴Baylor College of Medicine/ Texas Children's Hospital, Houston, TX, ⁵JIA parent and CHOP volunteer, Lower Gwynedd, PA, ⁶Seattle Children's Hospital, Seattle, ⁷McMaster Children's Hospital, Hamilton, ON, Canada, ⁸Children's Hospital of Philadelphia, Philadelphia, PA, ⁹Medical College of Wisconsin/Children's Wisconsin, Wauwatosa, WI, ¹⁰Hackensack University Medical Center, Hackensack, ¹¹Medical University of South Carolina, Charleston, SC, ¹²Cohen Children's Medical Center, Lake Success, NY, ¹³Stanford University School of Medicine, Palo Alto, CA, ¹⁴Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ¹⁵University of Alabama at Birmingham, Birmingham, AL, ¹⁶Nationwide Children's Hospital, Columbus, OH, ¹⁷Hospital for Special Surgery, Weill Cornell Medicine, New York, NY, ¹⁸University of Mississippi Medical Center, Jackson, MS, ¹⁹Phoenix Children's Hospital, Phoenix, AZ, ²⁰Nemours Foundation, Orlando, FL, ²¹Seattle Children's Hospital, Seattle, WA
Background/Purpose: The Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) is a North American learning health network focused on improving outcomes in patients with juvenile…
Abstract Number: 1027 • ACR Convergence 2024
Evaluation of Health Disparities in Outcomes of Patients with Juvenile Idiopathic Arthritis
Julia Harris¹, Jade Singleton² and Sheetal Vora³, ¹Children's Mercy Kansas City, Overland Park, KS, ²Seattle Children's Hospital, Seattle, ³Atrium Health Levine Children's Hospital, Charlotte, NC
Background/Purpose: Juvenile idiopathic arthritis (JIA) is a chronic autoimmune disease complicated by significant morbidity and disability with suboptimal rates of prolonged remission, decreased health-related quality…
Abstract Number: 1908 • ACR Convergence 2024
Male Sex, Medical Comorbidity and Post-procedure Complications Are Associated with Higher In-hospital Mortality After Primary Total Knee Arthroplasty for Osteoarthritis
Sumanth Chandrupatla¹, Kranti Rumalla² and Jasvinder Singh³, ¹University of Alabama at Birmingham, Birmingham, AL, ²Northwestern University Feinberg School of Medicine, Chicago, IL, ³Baylor College of Medicine, Birmingham, AL
Background/Purpose: We aimed to assess whether sex, comorbidity and postoperative complications are associated with in-patient mortality after primary total knee arthroplasty (TKA) for osteoarthritis (OA).Methods:…
Abstract Number: 2529 • ACR Convergence 2024
Improving Outcomes and Narrowing Disparities in Juvenile Idiopathic Arthritis (JIA): A Division-Wide, Equity-Focused Quality Improvement Project
Dori Abel¹, Kirsten Spichiger², Megan Roman², William Baar², Claire O'Malley², Jay Mehta¹, Terri Al'Hadi², Kerry Ferraro³, Denique Butler², Asia Wilson-Sanders², Catherine Lewis², Danielle Dodson⁴ and Jon Burnham¹, ¹Children's Hospital of Philadelphia, Philadelphia, PA, ²Children's Hospital of Philadelphia, Philadelphia, ³JIA parent and CHOP volunteer, Lower Gwynedd, PA, ⁴The Children's Hospital of Philadelphia, Philadelphia
Background/Purpose: Although new therapeutics and treat-to-target interventions have improved JIA care, pronounced racial and ethnic outcome disparities persist. At our center, the mean population-level clinical Juvenile…
Abstract Number: 0181 • ACR Convergence 2024
Integrated Multidisciplinary Lupus Social Work Program to Manage Social Determinants of Health in SLE and Lupus Nephritis – Preliminary Results
Kimberly DeQuattro¹, Stephanie DeVaughn², Andrew Kanoff³ and Abdallah Geara¹, ¹University of Pennsylvania, Philadelphia, PA, ²Uniersity of Pennsylvania, Pennsylvania, ³University of Pennsylvania, Philadelphia, PA, Philadelphia, PA
Background/Purpose: Minoritized individuals with systemic lupus erythematosus (SLE) experience social determinants of health (SDOH) challenges that affect access to care and increase the risk for…
Abstract Number: 0404 • ACR Convergence 2024
Methotrexate Adherence in JIA: Use of Electronic Health Record-Linked Pharmacy DispensingData
Dori Abel¹, David Anderson¹, Michael Kallan², Levon Utidjian³, Jon Burnham⁴, Joyce Chang⁵, Chen Kenyon³ and Sabrina Gmuca¹, ¹Children's Hospital of Philadelphia, Philadelphia, PA, ²University of Pennsylvania, Philadelphia, ³Children's Hospital of Philadelphia, Philadelphia, ⁴Children's Hospital of Philadelphia, Bryn Mawr, PA, ⁵Boston Children's Hospital, Boston, MA
Background/Purpose: The extent to which adherence to prescribed treatment regimens contributes to differential disease outcomes in JIA – and demographic disparities in these outcomes –…
Abstract Number: 1028 • ACR Convergence 2024
Assessment of Patient-Reported Outcomes in Juvenile Idiopathic Arthritis by Race, Ethnicity, and Insurance Type in the Pediatric Rheumatology Care and Outcomes Improvement Network Registry
Julia Harris¹, Nancy Pan², Catherine Bingham³, Sheetal Vora⁴, Cagri Yildirim-Toruner⁵, Kerry Ferraro⁶, Erik Friedrichsen⁷, Michelle Batthish⁸, Jon Burnham⁹, Danielle Fair¹⁰, Suhas Ganguli¹¹, Mileka Gilbert¹², Beth Gottlieb¹³, Olha Halyabar¹⁴, Melissa Hazen¹⁵, Tzielan Lee¹⁶, Daniel Lovell¹⁷, Melissa Mannion¹⁸, Edward Oberle¹⁹, Linda Ray²⁰, Michael Shishov²¹, Mary Toth²² and Esi Morgan²³, ¹Children's Mercy Kansas City, Overland Park, KS, ²Hospital for Special Surgery, Weill Cornell Medicine, New York, NY, ³Penn State Children’s Hospital, Hershey, ⁴Atrium Health Levine Children's Hospital, Charlotte, NC, ⁵Baylor College of Medicine/ Texas Children's Hospital, Houston, TX, ⁶JIA parent and CHOP volunteer, Lower Gwynedd, PA, ⁷Seattle Children's Hospital, Seattle, ⁸McMaster Children's Hospital, Hamilton, ON, Canada, ⁹Children's Hospital of Philadelphia, Philadelphia, PA, ¹⁰Medical College of Wisconsin/Children's Wisconsin, Wauwatosa, WI, ¹¹Hackensack University Medical Center, Hackensack, ¹²Medical University of South Carolina, Charleston, SC, ¹³Cohen Children's Medical Center, Lake Success, NY, ¹⁴Division of Immunology, Boston Children's Hospital, Harvard Medical School, Boston, MA, ¹⁵Boston Children's Hospital, Boston, MA, ¹⁶Stanford University School of Medicine, Palo Alto, CA, ¹⁷Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ¹⁸University of Alabama at Birmingham, Birmingham, AL, ¹⁹Nationwide Children's Hospital, Columbus, OH, ²⁰University of Mississippi Medical Center, Jackson, MS, ²¹Phoenix Children's Hospital, Phoenix, AZ, ²²Nemours Foundation, Orlando, FL, ²³Seattle Children's Hospital, Seattle, WA
Background/Purpose: As healthcare moves towards more patient-centered care, it is increasingly important to integrate patients’ opinions into clinical assessments and decision-making. The Pediatric Rheumatology Care…
Abstract Number: 1910 • ACR Convergence 2024
Appointment Adherence: Impact of Health Portal Access, Letters, Phone Calls and Text Message Reminders in Underserved Population
Dina Ismail¹, Fatema Ezzy² and Milena Vukelic³, ¹Albert Einstein College of Medicine, Bronx, NY, ²Jacobi Medical Center/Albert Einstein College of Medicine, New York, NY, ³Louisiana State University, New York City, NY
Background/Purpose: Missed appointments in rheumatology are reported to be up to 40%. Non-adherence to outpatient visits is contributing to poor outcomes and low income population is considered especially vulnerable. In New…
Abstract Number: 2551 • ACR Convergence 2024
Modified Delphi Process to Propose an Equity Measurement Roadmap in Rheumatology
Sancia Ferguson¹, Allen Anandarajah², Melissa Wells³, Delamo Bekele⁴, Ashira Blazer⁵, Cynthia Crowson⁴, Deborah Desir⁶, Elizabeth Ferucci⁷, Wambui Machua⁸, Esi Morgan⁹, Wendy Rogers¹⁰, Lauren Smith¹¹, JoAnn Zell¹², Lisa Suter¹³, Shraddha Jatwani¹⁴ and Christie Bartels¹⁵, ¹University of Wisconsin, Madison, Madison, WI, ²University of Rochester Medical Center, Rochester, NY, ³McFarland Clinic, Ames, IA, ⁴Mayo Clinic, Rochester, MN, ⁵University of Maryland Baltimore, Baltimore, MD, ⁶Yale School of Medicine, WOODBRIDGE, CT, ⁷Alaska Native Tribal Health Consortium, Anchorage, AK, ⁸Piedmont Healthcare, Atlanta, GA, ⁹Seattle Children's Hospital, Seattle, WA, ¹⁰Lupus Foundation of America, Inc, Washington, DC, ¹¹Medstar Georgetown University Hospital, District Heights, MD, ¹²University of Colorado Anschutz Medical Campus, Denver, CO, ¹³Yale School of Medicine, New Haven, CT, ¹⁴Dignity Health-MMG Rheumatology, Citrus Heights, CA, ¹⁵University of Wisconsin School of Medicine and Public Health, Madison, WI
Background/Purpose: Achieving health equity has been a long-standing goal, as Academy of Medicine leaders stated, ‘There is no equity without quality, and there is no…
Abstract Number: 0182 • ACR Convergence 2024
Pilot Volunteer Lupus Navigator Program – Leveraging Community Health Workers to Address Social Determinants of Health in SLE
Patricia Nogueira De Sa¹, Stephanie Wirtshafter¹, Abdallah Geara² and Kimberly DeQuattro², ¹University of Pennsylvania, Pennsylvania, ²University of Pennsylvania, Philadelphia, PA
Background/Purpose: Systemic Lupus Erythematosus (SLE) is a chronic, multisystem autoimmune condition that disproportionally affects individuals from racial and ethnic minority groups with more than 95%…

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