Abstracts tagged "Disease Activity and juvenile dermatomyositis"

Abstract Number: 419 • ACR/ARHP Annual Meeting 2015
Development and Preliminary Validation of a New Composite Disease Activity Measure for Juvenile Dermatomyositis
Alessandro Consolaro¹, Giulia Camilla Varnier¹, Cristina Ferrari¹, Jaime De Inocencio², Adele Civino³, Marija Jelusic-Drazic⁴, Elena Tsitsami⁵, Jelena Vojinovic⁶, Balahan Makay⁷, Graciela Espada⁸, Clara Malattia¹, Susan Maillard⁹, Alberto Martini¹, Clarissa Pilkington¹⁰, Angelo Ravelli^1,11 and Kiran Nistala¹², ¹Pediatria II, Istituto Giannina Gaslini, Genova, Italy, ²Hospital 12 de Octubre, Madrid, Spain, ³Ospedale Cardinale G. Panico, Tricase, Italy, ⁴University Hospital Center, Zagreb, Croatia, ⁵First Department of Pediatrics, Athens University Medical School, Athens, Greece, ⁶Faculty of Medicine, University of Nis, Nis, Serbia, ⁷Pediatric Rheumatology, Eylul University, Izmir, Turkey, ⁸Rheumatology Section, Childrens Hosp Ricardo Gutierrez, Buenos Aires, Argentina, ⁹Paediatric Rheumatology, Great Ormond Street Hospital NHS Foundation Trust for Children, London, United Kingdom, ¹⁰Rheumatology, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom, ¹¹University of Genova, Genova, Italy, ¹²Centre for Rheumatology, University College London, London, United Kingdom
Background/Purpose: Evaluation of the level of disease activity is a fundamental component of the clinical assessment of children with JDM. The global tools that are currently available for the assessment of the overall disease activity in JDM are centered on physician’s evaluation, neglecting parent’s or child’s perception. Furthermore, these instruments are lengthy and complex. There remains the need for a concise and easily administered tool that provides an absolute measure of disease activity for use in future trials in JDM. Aim of…