Abstracts tagged "Comon Data Elements"

Abstract Number: 0849 • ACR Convergence 2021
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Creating a Foundation for Linking Patient Reported Outcomes Measures with the International Classification of Functioning, Disability and Health
Hannah Bailey¹, Ananya Vasudevan¹, Emily Hickey², Aileen Ledingham³, Mary Slavin¹, Lewis Kazis⁴ and Ronald Tompkins⁵, ¹Boston University School of Public Health, Boston, MA, ²University of Wisconsin, Madison, WI, ³Boston University School of Public Health, Waltham, MA, ⁴Boston University, Spaulding Hospital and Harvard Medical School, Boston, MA, ⁵Harvard Medical School, Boston, MA
Background/Purpose: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a devastating multi-system chronic disease, estimated to affect 1.5 million adults in the United States. The disease is…