Abstracts tagged "caregivers and quality of life"

Abstract Number: 2376 • 2016 ACR/ARHP Annual Meeting
The Disease Burden of Systemic Juvenile Idiopathic Arthritis for Patients and Caregivers: An International Health Related Quality of Life Survey and Retrospective Chart Review
Susan Shenoi¹, Gerd Horneff², Michal Cidon³, Athimalaipet Ramanan⁴, Yukiko Kimura⁵, Pierre Quartier⁶, Ivan Foeldvari⁷, Andrew Zeft⁸, Kathleen G Lomax⁹, Jill Gregson¹⁰, Sarah Campbell¹¹, Jeffrey Weiss¹¹, Nina Marinsek¹¹, Dony Patel¹¹ and Nico Wulffraat¹², ¹Seattle Children's Hospital, Seattle, WA, ²Asklepios Kliniken GmbH, Hamburg, Germany, ³Stanford University, Palo Alto, CA, ⁴University Hospitals Bristol, Bristol, United Kingdom, ⁵Hackensack University Medical Center, Hackensack, NJ, ⁶Hôpital Necker, Paris, France, ⁷Hamburger Zentrum für Kinder-und Jugend Rheumatologie, Hamburg, Germany, ⁸Pediatrics Rheumatology, Cleveland Clinic, Cleveland, OH, ⁹Novartis Pharmaceuticals Corporation, East Hanover, NJ, ¹⁰Novartis Pharma AG, Basel, Switzerland, ¹¹Navigant Consulting, Inc., London, United Kingdom, ¹²Wilhelmina Kinderziekenhuis, Utrecht, Netherlands
Background/Purpose: Systemic juvenile idiopathic arthritis (SJIA) is a severe autoinflammatory disease characterized by systemic features including high fevers, rash, and arthritis. SJIA can impose a…

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