Abstracts tagged "Canakinumab and caregivers"

Abstract Number: 69 • 2017 Pediatric Rheumatology Symposium
The Disease Burden of Systemic Juvenile Idiopathic Arthritis for Patients and Caregivers: An International Health Related Quality of Life Survey and Retrospective Chart Review
Susan Shenoi¹, Gerd Horneff², Michal Cidon³, Athimalaipet Ramanan⁴, Yukiko Kimura⁵, Pierre Quartier⁶, Ivan Foeldvari⁷, Andrew Zeft⁸, Kathleen G Lomax⁹, Jill Gregson¹⁰, Abma Tineke¹¹, Sarah Campbell¹², Jeffrey Weiss¹², Dony Patel¹² and Nico Wulffraat¹³, ¹Pediatric Rheumatology, Children's Hospital Seattle, Seattle, WA, ²Department of Pediatrics, Asklepios Clinics St. Augustin, Sankt Augustin, Germany, ³Stanford University, Palo Alto, CA, ⁴University Hospitals Bristol, Bristol, United Kingdom, ⁵Hackensack University Medical Center, Hackensack, NJ, ⁶Necker-Enfants Malades Hospital, Paris, France, ⁷Kinder- und Jugenrheumatologie, Hamburger Zentrum Kinder-und Jugendrheumatologie, Hamburg, Germany, ⁸Pediatrics Rheumatology, Cleveland Clinic, Cleveland, OH, ⁹Novartis Pharmaceuticals Corporation, East Hanover, NJ, ¹⁰Novartis Pharma AG, Basel, Switzerland, ¹¹VU University medical center, Amsterdam, Netherlands, ¹²Navigant Consulting, Inc., London, United Kingdom, ¹³Wilhelmina Kinderziekenhuis, Utrecht, Netherlands
Background/Purpose: Systemic juvenile idiopathic arthritis (SJIA) is a severe autoinflammatory disease characterized by systemic features including high fevers, rash and arthritis. SJIA can impose high…

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