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Abstract Number: 2365

Sex, Language and Age of Disease Onset Impact Illness Perceptions Among RA Patients

Susan J. Bartlett1, Mariana Useche2, Maria Celia Bazan Bardales3, Elizabeth Hazel4 and Ines Colmegna5, 1Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, 2Medicine, The Research Institute of the McGill University Health Centre, Montreal, QC, Canada, 3The Research Institute of the McGill University Health Centre, Montreal, QC, Canada, 4Rheumatology, McGill University Health Centre, Pointe-Claire, QC, Canada, 5The Research Institute of the McGill University Health Centre, Division of Rheumatology, Department of Medicine, McGill University, Montreal, Quebec, Canada, Montreal, QC, Canada

Meeting: 2018 ACR/ARHP Annual Meeting

Keywords: patient preferences and rheumatoid arthritis (RA)

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Session Information

Date: Tuesday, October 23, 2018

Session Title: Patient Outcomes, Preferences, and Attitudes Poster II: Patient Perspectives

Session Type: ACR Poster Session C

Session Time: 9:00AM-11:00AM

Background/Purpose: Patients’ illness perceptions (IP) influence self-management, adherence, and outcomes. Little is known about how cultural background and the lived experiences influence IP among rheumatoid arthritis (RA) patients. We compared IP in people with inflammatory arthritis in men and women, by age of onset (juvenile idiopathic arthritis -JIA vs. RA), and by language/culture (English vs. French Canadian).

Methods: RA patients receiving care at an academic RA Clinic in Montreal, Canada completed the illness perception questionnaire –revised form (IPQ-R) between 2013 and 2015 during a clinic visit. Sociodemographic and RA clinical characteristics were also collected. T-tests and chi-square were used to compare characteristics and mean IPQ-R domain scores between groups by sex, diagnosis and language.

Results: Patients were mostly female, well-educated, spoke English, and had established RA. Over half (56%) were in remission or low disease activity. Mean HAQ (p<.01) and pain (p<.01) were significantly higher among women. Age, % speaking English, and education were significantly higher, and disease duration and CRP were lower in RA vs. JIA (p’s<.05). Sociodemographic and RA characteristics were similar by language. Personal and treatment control, timeline-acute/chronic, and disease consequences were similar among groups. As compared to those with RA, JIA patients had significantly higher mean Illness Coherence and Identity scores, and lower emotional representations Table 1. English speaking patients had significantly higher mean Timeline-cyclical scores; a similar trend was seen for women vs. men.

Conclusion: Illness perceptions related to the chronicity of their disease, and confidence that treatment and lifestyle choices could help control their disease were similarly high among all subgroups. As compared to people with RA, those with JIA reported a better understanding of disease-related symptoms, were more likely to identify having JIA as part of who they are, and reported less emotional distress in relation to their disease. English speaking patients and women reported less confidence in their ability to predict their symptoms and disease course. Understanding how patients view themselves, their inflammatory arthritis, and perceptions of timelines and controllability may offer new insight into ways to positively influence treatment expectations, adherence, and self- management.

Table 1. Mean scores on Illness Perception Domains by sex, diagnosis, and language.

Sex

N

Mean

SD

Sig

Diagnosis

N

Mean

SD

Sig

Language

N

Mean

SD

Sig

Timeline – Cyclical

Women

122

14.0

3.3

.071

RA

120

13.7

3.4

.378

English

114

13.4

3.3

.025

Men

27

12.7

3.1

JIA

29

14.3

3.1

French

35

14.9

3.3

Illness Coherence

Women

103

18.8

4.6

.350

RA

99

17.5

7.9

.036

English

97

18.2

7.8

.850

Men

22

15.8

14.4

JIA

26

20.9

3.5

French

28

18.5

5.4

Emotional Representations

Women

122

16.8

5.4

.203

RA

120

17.3

5.6

.001

English

114

16.5

5.5

.822

Men

27

15.3

6.2

JIA

29

13.4

4.3

French

35

16.7

6.0

Identity

Women

107

5.4

2.4

.545

RA

106

5.7

2.5

.005

English

102

5.5

2.5

.757

Men

25

5.7

2.5

JIA

26

4.3

1.9

French

30

5.3

2.2


Disclosure: S. J. Bartlett, None; M. Useche, None; M. C. Bazan Bardales, None; E. Hazel, None; I. Colmegna, None.

To cite this abstract in AMA style:

Bartlett SJ, Useche M, Bazan Bardales MC, Hazel E, Colmegna I. Sex, Language and Age of Disease Onset Impact Illness Perceptions Among RA Patients [abstract]. Arthritis Rheumatol. 2018; 70 (suppl 10). https://acrabstracts.org/abstract/sex-language-and-age-of-disease-onset-impact-illness-perceptions-among-ra-patients/. Accessed January 20, 2021.
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