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  • Abstract Number: 045 • 2020 Pediatric Rheumatology Symposium

    No-Shows: a Search for Modifiable Risk Factors

    Samantha Ong 1, Xujia Li 1 and Austin Dalrymple2, 1Saint Louis University School of Medicine, St. Louis, 2Saint Louis University School of Medicine, Saint Louis, Missouri

    Background/Purpose: Missed ambulatory visits, or “no-shows,” limit patient access, increase costs, occupy provider time, and lead to worse patient outcomes. Only a few studies have…
  • Abstract Number: 046 • 2020 Pediatric Rheumatology Symposium

    Near Infrared Indocyanine Green Imaging Reveals Altered Anatomy and Diminished Function in Lymphatic Vessels in the Hands of Rheumatoid Arthritis Patients During Flare

    Richard Bell 1, Homaira Rahimi2, H. Mark Kenney 2, Ronald Wood 2, Alicia Lieberman 3, Edward Schwarz 4 and Christopher Ritchlin 5, 1University of Rochester Medical Center, Rochester, 2University of Rochester, Rochester, 3Batavia, 4University of Rochester, Rochester, NY, USA, Rochester, 5University of Rochester Medical Center, Canandaigua

    Background/Purpose: Near infrared (NIR) imaging studies of subdermal indocyanine green (ICG) in murine models of inflammatory arthritis have established abnormal lymphatic vessel (LV) function during…
  • Abstract Number: 047 • 2020 Pediatric Rheumatology Symposium

    Patients with Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry: Clinical Characteristics and Inception Cohorts

    Yongdong Zhao1, Timothy Beukelman 2, Yukiko Kimura 3, Mara Becker 4, Sarah Ringold 5, Anne Dennos 6 and Laura Schanberg 7 for the CARRA investigators, 1University of Washington, Seattle, 2University of Alabama at Birmingham, Birmingham, 3Hackensack Meridian School of Medicine, Hackensack, 4Duke University Medical Center/Duke Clinical Research Institute, Chapel Hill, 5Seattle Children's, Seattle, 6Duke University, Durham, 7Duke University Hospital, DURHAM

    Background/Purpose: In July 2015, the CARRA Registry was re-established as a multi-center observational study that collects essential data from patients with childhood-onset rheumatic diseases. The…
  • Abstract Number: 048 • 2020 Pediatric Rheumatology Symposium

    Novel Algorithm to Increase Sensitivity of Detecting Active Arthritis in Children Through Infrared Thermal Imaging

    Yongdong Zhao1, Ramesh Iyer 1, Mahesh Thapa 1, Debosmita Biswas 1, Kevin Cain 1, Savannah Partridge 1 and Carol Wallace 1, 1University of Washington, Seattle

    Background/Purpose: Juvenile idiopathic arthritis (JIA) is the most common rheumatic disease in children. The use of infrared thermal imaging for screening JIA has not utilized…
  • Abstract Number: 049 • 2020 Pediatric Rheumatology Symposium

    Levels of Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis (JIA) and Their Correlation to Disease Manifestations Using Patient-Reported Outcomes Measurement Information System (PROMIS®) Measures

    Danielle Fair1, Judyann Olson 2, Jan Lemke 3, Stella Protopapas 4, Ke Yan 5 and Jian Zhang 6, 1Medical College of Wisconsin & Affiliated Hospitals: Children's Wisconsin, Wauwatosa, Wisconsin, 2Medical College of Wisconsin: Children's Wisconsin, Wauwatosa, Wisconsin, 3Children's Wisconsin, Milwaukee, Wisconsin, 4Riley Children’s Hospital at Indiana University, Indianapolis, Indiana, 5Medical College of Wisconsin, Milwaukee, Wisconsin, 6Medical College of Wisconsin, 53226, Wisconsin

    Background/Purpose: Children with chronic diseases have higher rates of mental health issues and less favorable outcomes than the general pediatric population.  Children with JIA experience…
  • Abstract Number: 050 • 2020 Pediatric Rheumatology Symposium

    Long Term Safety of Biologics and Biosimilars in Pediatric Rheumatic Diseases: An Experience from a Single North Indian Centre

    MANJARI AGARWAL 1, Sujata Sawhney2 and Anju Singh 3, 1Sir Ganga Ram Hospital, NEW DELHI, Delhi, India, 2Sir ganga ram hospital, Sector 37 noida, Uttar Pradesh, India, 3Sir Ganga Ram Hospital, delhi, India

    Background/Purpose:  The use of biologic response modifiers(BRMs) is associated with an increased risk of infections.We also use biosimilars for two reasons:1. originator not available, like…
  • Abstract Number: 051 • 2020 Pediatric Rheumatology Symposium

    Pediatric Providers’ Perspectives on Suspected Immune-Mediated Diffuse Alveolar Hemorrhage and Clinical Care Pathways

    Jessica Bloom1 and Robert Fuhlbrigge 2, 1Children's Hospital Colorado, Aurora, Colorado, 2University of Colorado, Aurora

    Background/Purpose: Immune-mediated diffuse alveolar hemorrhage (iDAH) is a life-threatening complication of pediatric rheumatologic diseases such as vasculitis, systemic lupus erythematosus, and antiphospholipid antibody syndrome. Delay…
  • Abstract Number: 052 • 2020 Pediatric Rheumatology Symposium

    Nasopharyngeal Pneumococcus Colonization in Patients with Childhood Onset Systemic Lupus Erythematosus (cSLE) Compared to Healthy Controls

    Fatima Barbar-Smiley1, Stacy Ardoin 2, Chack-Yung Yu 3, Veronica Mruk 4, Cagri Yildirim-Toruner 2, Vidya Sivaraman 5, Joanne Drew 1, alexa meara 6, Asuncion Mejias 2 and Octavio Ramilo 7, 1Nationwide Children's Hospital, Columbus, Ohio, 2Nationwide Children's Hospital, Columbus, 3Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, 4The Ohio State University, Columbus, 5Division of Rheumatology, Nationwide Children's Hospital, Bexley, 6The Ohio State University Wexner Medical Center, COLUMBUS, 7Nationwide Children's Hospital, 700 Children's Drive

    Background/Purpose: Streptococcus pneumoniae (S. pneumoniae) may lead to severe life-threatening infections in both the general and immunocompromised population. Patients diagnosed with Systemic Lupus Erythematosus (SLE)…
  • Abstract Number: 053 • 2020 Pediatric Rheumatology Symposium

    Acceptability and Usability Testing of a Preliminary Version of the JIA Option Map, an Electronic Decision Aid for Pain Management Options in Juvenile Idiopathic Arthritis

    Karine Toupin April1, Adam Huber 2, Ciaran Duffy 3, Deema Couchman 1, Laurie Proulx 4, Esi Morgan 5, Fjolla Berbatovci 1, Andrea Boyd 1, Hannah Sachs 1, Alexandra Sirois 6, Lucie Brosseau 3, Janice Cohen 7, Margaret Bisch 3, Aditi Sivakumar 1, Marco Ragusa 1, Tania El Hindi 8, Isabelle Gaboury 9, Linda Li 10, Elizabeth Stringer 11, France Legare 12, Sabrina Cavallo 13, Michele Gibbon 14, Paul Fortin 15, William Brinkman 5, Mark Connelly 16, Jennifer Weiss 17, Sabrina Gmuca 18, Peter Tugwell 19 and Jennifer Stinson 20, 1Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada, 2IWK Health Centre & Dalhousie University, Halifax, Nova Scotia, Canada, 3Ottawa, Canada, 4Canadian Arthritis Patient Alliance, Ottawa, Canada, 5Cincinnati Children's Hospital, Cincinnati, 6Outremont, Canada, 7Children's Hospital of Eastern Ontario, Ottawa, Canada, 8Statistics Canada, Ottawa, Canada, 9University of Sherbrooke, Sherbrooke, Canada, 10University of British Columbia, Vancouver, Canada, 11IWK Health Centre, Halifax, Canada, 12Laval University, Quebec City, Canada, 13University of Montreal, Montreal, Canada, 14Children's Hospital of Eastern Ontario RI, Ottawa, Canada, 15CHU de Quebec - Universite Laval, Quebec, Canada, 16Kansas City, 17Hackensack University Medical Center, Hackensack, 18Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, 19University of Ottawa - Ottawa, Ottawa, Canada, 20University of Toronto & The Hospital for Sick Children, Toronto, Ontario, Canada

    Background/Purpose: Although juvenile idiopathic arthritis (JIA) is one of the most common causes of chronic musculoskeletal pain among youth, families’ decision-making for pain management is…
  • Abstract Number: 054 • 2020 Pediatric Rheumatology Symposium

    Clinical and Laboratory Characteristics in Juvenile-onset Systemic Lupus Erythematosus Across Age Groups

    Joseph Massias 1, Eve Smith 1, Michael Beresford 1 and Christian Hedrich1, 1University of Liverpool, Liverpool, United Kingdom

    Background/Purpose: Systemic lupus erythematous (SLE) is a systemic autoimmune/inflammatory condition. Up to 20% of patients develop symptoms before their 18th birthday and are diagnosed with…
  • Abstract Number: 055 • 2020 Pediatric Rheumatology Symposium

    Differential Analysis of Serum and Urine S100 Proteins in Juvenile-onset Systemic Lupus Erythematosus (jSLE)

    Sean Donohue 1, Angela Midgley 1, Jennifer Davies 1, Rachael Wright 1, Ian Bruce 2, Michael Beresford 1 and Christian Hedrich1, 1University of Liverpool, Liverpool, United Kingdom, 2The University of Manchester, Manchester, United Kingdom

    Background/Purpose: Juvenile-onset systemic lupus erythematosus (jSLE) is a systemic autoimmune/inflammatory disease. Up to 80% of patients develop lupus nephritis (LN) that affects treatment and prognosis(1-3).…
  • Abstract Number: 056 • 2020 Pediatric Rheumatology Symposium

    Non-criteria Antiphospholipid Antibodies Associated with Pediatric Rheumatic Disease: A Single-Center Case Series

    Shawn Mahmud1, Danielle Bullock 1, Colleen Correll 1, Patricia Hobday 2, Mona Riskalla 3, Richard Vehe 4 and Bryce Binstadt 1, 1University of Minnesota, Minneapolis, 2Minneapolis, 3University of Minnesota, Minneapolis, Minnesota, 4University of Minnesota, Roseville

    Background/Purpose: Non-criteria antiphospholipid antibodies (NC-aPL) bind molecules such as phosphatidylethanolamine (PE), phosphatidylserine (PS), and prothrombin (Pt), but not the targets of routine antiphospholipid (aPL) testing…
  • Abstract Number: 057 • 2020 Pediatric Rheumatology Symposium

    Transition from Pediatric to Adult Rheumatology: The Clinician as a Fundamental Ally

    Teresa Semalulu 1, Karen Beattie 1, Jeanine McColl 1, Arzoo Alam 2, Steffy Thomas 1, Julie Herrington 3, Jan Willem Gorter 1, Tania Cellucci 1, Stephanie Garner 1, Liane Heale 4, Mark Matsos 1 and Michelle Batthish1, 1McMaster University, Hamilton, Canada, 2McMaster University, Mississauga, Canada, 3Hamilton, Canada, 4McMaster University, Toronto, Canada

    Background/Purpose: The transition from pediatric to adult rheumatology is linked to poor outcomes in the absence of comprehensive transition programs. Several tools are available to…
  • Abstract Number: 058 • 2020 Pediatric Rheumatology Symposium

    Kawasaki Disease in Ontario Children from 1995-2017: A Population-based Descriptive Analysis

    Cal Robinson 1, Rahul Chanchlani 1, Megan Schlorff 1, Francis Lao 1, Tapas Mondal 1, Catherine Demers 1, Elizabeth Darling 1, Sandeep Brar 2, Rulan Parekh 3, Hsien Seow 1, Eric Benchimol 4 and Michelle Batthish1, 1McMaster University, Hamilton, Canada, 2University of California, San Fransisco, 3University of Toronto, Toronto, Canada, 4University of Ottawa, Ottawa, Canada

    Background/Purpose: Kawasaki disease (KD) is a childhood vasculitis with rising global incidence and the most common cause of childhood acquired heart disease in the developed…
  • Abstract Number: 059 • 2020 Pediatric Rheumatology Symposium

    Challenges Faced by Families of Children with an Auto-inflammatory Disease

    Lori Tucker1, Maria Belen 2, Jenny Tekano 2, Iwona Niemietz 3, Martina Sundqvist 3 and Kelly Brown 3, 1BC Children's Hospital, Vancouver, British Columbia, Canada, 2BC CHildren's Hospital, Vancouver, Canada, 3BC Children's Hospital Research Institute, Vancouver, Canada

    Background/Purpose: Auto-inflammatory diseases (AIDs) are rare disorders that usually present in young children. Disease episodes, characterized by recurrent inflammation, are often frequent and unpredictable, and…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM CT on October 25. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

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