ACR Meeting Abstracts

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  • Abstract Number: PP08 • ACR Convergence 2022

    Learning to Advocate for Myself and the Young Adult Community While Finding My Place as a Patient Partner at CARRA (Childhood Arthritis and Rheumatology Research Alliance)

    Ela Chintagunta1, Courtney Wells2 and Kristine Carandang3, 1Young Patients' Autoimmune Research & Empowerment Alliance, Chicago, IL, 2University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN, 3Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA

    Background/Purpose: I was diagnosed with Juvenile Idiopathic Arthritis at the age of 13 when I was experiencing joint swelling in my lower body and my…
  • Abstract Number: PP06 • ACR Convergence 2022

    Search for a New Rheumatologist; What Happened When My Trusted Rheumatologist Retired

    Lawrence Phillips, Noblesville, IN

    Background/Purpose: I was diagnosed with rheumatoid arthritis (RA) in 1999. In 2015 and 2019, two surgeons independently diagnosed me with ankylosing spondylitis (AS) following two…
  • Abstract Number: PP05 • ACR Convergence 2022

    From Practical Tips to Heartfelt Encouragement: How Social Media Can Improve Quality of Life with Rheumatic Disease

    Cheryl Crow1 and Zoe Rothblatt2, 1Arthritis Life, Bellevue, WA, 2Global Healthy Living Foundation, New York, NY

    Background/Purpose: Living with different autoimmune rheumatic diseases, we (Cheryl and Zoe) share similar struggles with disease management, and successes in learning new ways to use…
  • Abstract Number: PP01 • ACR Convergence 2022

    Why Communication Is the Most Important Thing in Healthcare

    India Murphy-Miller, Ardeer, Victoria, Australia

    Background/Purpose: My name is India I got diagnosed with JIA when I was 8 and I'm now about to turn 28 so as you can…
  • Abstract Number: PP14 • ACR Convergence 2022

    The Use of Social Support as Treatment

    Aleta McLean, Open Hand Atlanta, Atlanta, GA

    Background/Purpose: The months leading up to my diagnosis were frustrating. Initially my hair started falling out. I was told it was stress related. I was…
  • Abstract Number: PP17 • ACR Convergence 2022

    Engaging with the Spoon Theory: How I Make Decisions Using a Cost-Benefit Analysis That Works to Improve My Mental Health While Living with RA

    Stephanie Aleite, AiArthritis, St. Louis, MO

    Background/Purpose: Patients living with rheumatoid arthritis (RA) often also live with comorbid mental health conditions. Regardless of diagnosed mental health condition, living with a chronic…
  • Abstract Number: PP13 • ACR Convergence 2022

    How Becoming Engaged in My Care with Specialized Tools and Support Helped Me Find My Personal Lupus Triggers and Regain Control of My Health

    Tonya Hinton-Green, Philadelphia, PA

    Background/Purpose: My story begins in the ER where I was diagnosed with lupus right after my 22nd birthday.For the next 25 years I went from…
  • Abstract Number: PP21 • ACR Convergence 2022

    What Lies Beneath: Making Rheumatoid Arthritis Visible for the Seronegative Patient Through Blood Work

    Shilpa Venkatachalam, Global Healthy Living Foundation, New York, NY

    Background/Purpose: When I first received my Rheumatoid Arthritis (RA) diagnosis 5 years ago, I experienced a combination of relief and disbelief. Relief because now all…
  • Abstract Number: PP23 • ACR Convergence 2022

    The Journey to Collaborative Care and Patient-Centric Educational Opportunities for a Scleroderma Patient

    Amy Gietzen and Hannah Bowen, The Ann Steffens Scleroderma Foundation, Albany, NY

    Background/Purpose: In 2001 I started to experience forearm, elbow, and wrist pain. My fingers were constantly swollen, and sensitive. After 6 months of living in…
  • Abstract Number: PP22 • ACR Convergence 2022

    Patients Raising Awareness for Patients – A Collaborative Partnership Between Take a Pain Check Foundation and Canadian Arthritis Patient Alliance

    Natasha Trehan1 and Laurie Proulx2, 1Take a Pain Check Foundation, Markham, ON, Canada, 2Canadian Arthritis Patient Alliance, Ottawa, ON, Canada

    Background/Purpose: Juvenile Idiopathic Arthritis is a chronic disease that affects a child's school life and relationships, creating social isolation for youth and young adults. Take…
  • Abstract Number: 2274 • ACR Convergence 2022

    Factors Associated with Disease Flare Following SARS-CoV-2 Vaccination in People with Inflammatory Rheumatic and Musculoskeletal Diseases – Results from the Physician-Reported EULAR Coronavirus Vaccine (COVAX) Registry

    Bayram Farisoğulları1, Saskia Lawson-Tovey2, Kimme Hyrich3, Laure Gossec4, Loreto Carmona5, Anja Strangfeld6, Elsa Mateus7, Martin Schaefer8, Ana Maria Rodrigues9, Eric Hachulla10, Jose A Gomez-Puerta11, Marta Mosca12, Patrick Durez13, Ludovic Trefond14, Tiphaine Goulenok15, Martina Cornalba16, Emoke Šteňová17, Inita Bulina18, Eva Strakova19, Julija Zepa20, Nicolas Roux21, Olivier Brocq22, Viellard Eric23, Bernd Raffeiner24, Gerd Burmester25, Xavier Mariette26 and Pedro Machado27, 1Hacettepe University Faculty of Medicine Division of Rheumatology, Ankara, Turkey, 2Centre for Genetics and Genomics Versus Arthritis, Centre for Musculoskeletal Research, the University of Manchester, Manchester, UK AND National Institute of Health Research Manchester Biomedical Research Centre, Manchester University NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester, United Kingdom, 3The University of Manchester, Manchester, United Kingdom, 4Sorbonne Université, Paris, France, 5Instituto de Salud Musculoesquelética (InMusc), Madrid, Spain, 6Deutsches Rheuma-Forschungszentrum Berlin, Berlin, Germany, 7EULAR, Lisboa, Portugal, 8German Rheumatism Research Center, Berlin, Germany, 9Reuma.pt, Sociedade Portuguesa de Reumatologia, Lisbon, Portugal, 10University of Lille, LILLE, France, 11Hospital Clínic de Barcelona, Barcelona, Spain, 12Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy, 13Rheumatology, Cliniques Universitaires Saint-Luc – Université catholique de Louvain (UCLouvain) – Institut de Recherche Expérimentale et Clinique (IREC), Brussels, Belgium, 14Université Clermont Auvergne, CHU Clermont-Ferrand, Service de Médecine Interne, Hôpital Gabriel Montpied, INSERM U1071, Clermont-Ferrand, France, 15APHP, Paris, France, 16Dipartimento di Reumatologia e Scienze Mediche, ASST Gaetano Pini-CTO, Milano, Italy, 17University Hospital, Bratislava, Slovakia, 18Center of Rheumatology, Paul Stradins Clinical University hospital, Riga, Latvia, Riga, Latvia, 19Department of Internal Medicine, Faculty Hospital Prešov, Presov, Slovakia, 20Riga Stradins University, Latvia, Pauls Stradins Clinical University Hospital, Centre of Rheumatology, Riga, Latvia, Riga, Latvia, 21Service de Rhumatologie, Hôpital Robert Schuman, Metz, France, 22Rheumatology- CH Princesse Grace, Monaco, Monaco, 23Private practice, St. Malo, France, 24Department of Rheumatology, Central Hospital of Bolzano, Bolzano, Italy, 25Charité University Medicine Berlin, Berlin, Germany, 26Paris-Saclay University, Rueil Malmaison, Ile-de-France, France, 27University College London, London, United Kingdom

    Background/Purpose: To investigate the frequency and factors associated with disease flare following vaccination against SARS-CoV-2 in people with inflammatory/autoimmune rheumatic and musculoskeletal diseases (I-RMD).Methods: The…
  • Abstract Number: PP26 • ACR Convergence 2022

    Chronically Catherine: A Sex and the City-Inspired Autobiographical Column for Disabled Young Adults on Subjects We Really Care About – Like Disabled Dating and How Hot Cheetos Saved My Life

    Catherine Ames1, Courtney Wells2 and Kristine Carandang1, 1Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA, 2University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN

    Background/Purpose: What if Carrie Bradshaw, sex advice columnist, fashionsta, and all around icon from Sex and the City were chronically ill? Or disabled? That's the…
  • Abstract Number: PP24 • ACR Convergence 2022

    Planting Seeds of Self-Advocacy: Increasing Healthcare Engagement in Children and Adolescents Through Arthritis Camp

    Kaye Anderson1, Kristine Carandang2 and Courtney Wells3, 1Young Patients' Autoimmune Research & Empowerment Alliance, River Falls, WI, 2Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA, 3University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN

    Background/Purpose: I was diagnosed with Juvenile Idiopathic Arthritis at the age of ten. The constant battle between doctor appointments, pain, and medication side effects left…
  • Abstract Number: PP04 • ACR Convergence 2022

    Invisible to Invincible: The Role of Virtual Events in Autoimmune Advocacy, Education and Community Building

    Kara Wada, The Ohio State University, Columbus, OH

    Background/Purpose: After years of ignoring my dry eyes and mouth, unrelenting fatigue, and body pain, an off-the-cuff comment from my dental hygienist finally pushed me…
  • Abstract Number: 2273 • ACR Convergence 2022

    Waning Vaccine Response After Primary Vaccine Series: Results from the Covid19 Vaccine Response in Rheumatology Patients (COVER) Study

    Amy Mudano1, Gary Cutter2, Ted Mikuls3, Geoffrey Thiele4, Mark Law4, Bart Hamilton4, Michael Zikry5, Kelly Y. Chun6, Monique Bastidas7, Michael George8, Lisa Williams9, Kevin Winthrop10, Mark Busch11, Stanley Cohen12, Roman Czubatyj13, Rajesh Kataria14, Reshma Khan15, Soha Mousa16, Jose Pando17, Elizabeth Perkins18, Shanmugapriya Reddy19, Delfin Santos20, Joy Schechtman21, Frank Scott22, Sucharitha Shanmugam23, Atul Singhal24, John Tesser25, John Tower26, Swamy Venuturupalli27, Sean Joseph Wollaston28, Conrad Ziembinski29 and Jeffrey Curtis30, 1Illumination Health, Hoover, AL, 2University of Alabama at Birmingham, Birmingham, AL, 3Division of Rheumatology, University of Nebraska Medical Center, Omaha, NE, 4University of Nebraska Medical Center, Omaha, NE, 5LabCorp, Burlington, NC, 6Labcorp, Calabasas, CA, 7LabCorp, Northridge, CA, 8University of Pennsylvania, Philadelphia, PA, 9Illumination Heath, Hoover, AL, 10Oregon Health & Science University, Portland, OR, 11Family Arthritis Center-Jupiter, Jupiter, FL, 12Metroplex Clinical Research Center, Pittsburgh, PA, 13Arthritis Physicians LLC, Rochester Hills, MI, 14Southern Ohio, Wheelersburg, OH, 15Palm Beach Rheumatology and Wellness, Jupiter, FL, 16Arthritis and Rheumatology of Southwest Ohio, Liberty Township, OH, 17Rheumatology Consultants of DE, Lewes, DE, 18Rheumatology Care Center, Hoover, AL, 19Southwest Florida Rheumatology, Riverview, FL, 20Rochester Rheumatology, Rochester Hills, MI, 21SunValley Arthritis Center, Peoria, AZ, 22Arthritis Medical Center, Arroyo Grande, CA, 23Rheumatology and Arthritis Care Center, Exton, PA, 24Southwest Rheumatology Research, Mesquite, TX, 25Arizona Arthritis & Rheumatology Associates, Phoenix, AZ, 26Arthritis Physicians LLC, Rochester, MI, 27Cedars-Sinai Medical Center, Los Angeles, CA, 28Rheumatology Associates, North Hollywood, CA, 29CZ Rheumatology, Coral Springs, FL, 30Division of Clinical Immunology & Rheumatology, University of Alabama at Birmingham, Birmingham, AL

    Background/Purpose: Given possible increased risk of COVID-19 in patients with autoimmune conditions, there is a need to better understand the immunogenicity and safety of SARS-CoV-2…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM CT on October 25. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

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