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  • Abstract Number: PP12 • ACR Convergence 2022

    We Became Advocates, Educators, and a Support System for Hispanic/Latino Patients with Rheumatoid Arthritis and Their Caregivers Through Involvement in a Virtual Patient Advisory Board

    Zucy Almonacid1, Wigna Cruz2, Francisca Garcia3, Teresa Hernandez4, Velia Martinez5, Patricia Mattos3, Mario Mutis6 and Denise Serrano7, 1Hicsville, NY, 2Juan Diaz, PR, 3Lake Worth, FL, 4Greenacres, FL, 5Guaynabo, PR, 6Fort Pierce, FL, 7Toa Alto, PR

    Background/Purpose: Each of us has been diagnosed with rheumatoid arthritis (RA), from as recently as one year ago to as long as 20 years ago.…
  • Abstract Number: PP15 • ACR Convergence 2022

    Coordination of Care by a Healthcare Team for Unexpected and Unusual Side Effects Occurring During a Global Pandemic

    Laura Genoves, Arthritis Foundation, Bainbridge Island, WA

    Background/Purpose: I am a patient who lives with moderate to severe RA. My quality of life is dependent on medications such as a biologic, DMARDs…
  • Abstract Number: PP14 • ACR Convergence 2022

    The Use of Social Support as Treatment

    Aleta McLean, Open Hand Atlanta, Atlanta, GA

    Background/Purpose: The months leading up to my diagnosis were frustrating. Initially my hair started falling out. I was told it was stress related. I was…
  • Abstract Number: PP11 • ACR Convergence 2022

    Exercise as a Supportive Treatment for My Ankylosing Spondylitis

    Sara King-Dowling, Children's Hospital of Philadelphia, Philadelphia, PA

    Background/Purpose: Patients with autoimmune rheumatic diseases (ARDs) are often caught in a paradox as they experience mobility challenges, but long periods of immobility cause increased…
  • Abstract Number: 2268 • ACR Convergence 2022

    Recurrent Thrombosis Risk in Non-anticoagulated Antiphospholipid Syndrome Patients: A Prospective Case-Control Study from AntiPhospholipid Syndrome Alliance for Clinical Trials and InternatiOnal Networking (APS ACTION) Clinical Database and Repository (“Registry”)

    Cecile Yelnik1, Zeynep Belce Erton2, Elodie Drumez3, Dachi Cheildze2, Danieli Castro Oliveira de Andrade4, Ann E Clarke5, Maria G. Tektonidou6, Vittorio Pengo7, Savino Sciascia8, Amaia Ugarte9, H Michael Belmont10, Mª Angeles Aguirre11, Paul fortin12, maria gerosa13, Flavio Victor Signorelli14, Tatsuya Atsumi15, Zhouli Zhang16, Hannah Cohen17, D. Ware Branch18, Denis Wahl19, Laura Andreoli20, Esther Rodriguez Almaraz21, Michelle Petri22, Ricard Cervera23, Yu Zuo24, Bahar Artim-Esen25, Guillermo Pons-Estel26, Rohan Willis27, Maria Laura Bertolaccini28, Robert Roubey29, Doruk Erkan2 and on behalf of APS ACTION On Behalf Of APS ACTION2, 1Lille University, Lille, France, 2Hospital for Special Surgery, New York, NY, 3Université de Lille, Lille, France, 4Hospital das Clinicas HCFMUSP, Faculdade de Medicina, Universidade de São Paulo, São Paulo, Brazil, 5University of Calgary, Division of Rheumatology, Cumming School of Medicine, Calgary, AB, Canada, 6National and Kapodistrian University of Athens, Athens, Greece, 7Padova University Hospital, Padova, Italy, 8University of Turin, Torino, Italy, 9BioCruces Bizkaia Health Research Institute, Barakaldo, Spain, 10NYU School of Medicine, New York, NY, 11Maimonides Institute for Biomedical Research of Córdoba, Cordoba, Spain, 12CHU de Québec, Pavillon CHUL, Québec, Canada, 13University of Milan, Milano, Italy, 14Universidade do Estado do Rio de Janeiro, Rio De Janeiro, Brazil, 15Hokkaido University, Sapporo, Japan, 16Peking University First Hospital, Beijing, China, 17University College London, London, United Kingdom, 18University of Utah, Salt Lake City, UT, 19Université de Nancy, Nancy, France, 20Rheumatology and Clinical Immunology Unit, ASST Spedali Civili and University of Brescia, Brescia, Italy, 21Hospital Universitario 12 de Octubre, Madrid, Spain, 22Johns Hopkins University School of Medicine, Division of Rheumatology, Baltimore, MD, 23Hospital Clínic de Barcelona, Barcelona, Spain, 24University of Michigan, Ann Arbor, MI, 25Istanbul University, Istanbul, Turkey, 26CREAR, Rosario, Argentina, 27University of Texas Medical Branch, Galveston, TX, 28King's College London, London, United Kingdom, 29University of North Carolina, Chapel Hill, NC

    Background/Purpose: Long-term anticoagulation is the standard of care for antiphospholipid syndrome (APS) patients with macrovascular thrombosis. However, in daily practice, long-term anticoagulation may not be…
  • Abstract Number: 2244 • ACR Convergence 2022

    Salient Coping Strategies Among Youth with Chronic Musculoskeletal Pain

    Sabrina Gmuca1, Daneka Stryker2, Mackenzie McGill1, Whitney Eriksen3 and Peter F. Cronholm4, 1Children's Hospital of Philadelphia, Philadelphia, PA, 2Drexel University College of Medicine, Philadelphia, PA, 3Jefferson Health, Philadelphia, PA, 4University of Pennsylvania, Philadelphia, PA

    Background/Purpose: Youth with chronic musculoskeletal pain (CMP) learn pain-coping strategies and build resilience through cognitive behavioral therapy (CBT). In order to expand therapeutic options for…
  • Abstract Number: PP22 • ACR Convergence 2022

    Patients Raising Awareness for Patients – A Collaborative Partnership Between Take a Pain Check Foundation and Canadian Arthritis Patient Alliance

    Natasha Trehan1 and Laurie Proulx2, 1Take a Pain Check Foundation, Markham, ON, Canada, 2Canadian Arthritis Patient Alliance, Ottawa, ON, Canada

    Background/Purpose: Juvenile Idiopathic Arthritis is a chronic disease that affects a child's school life and relationships, creating social isolation for youth and young adults. Take…
  • Abstract Number: PP21 • ACR Convergence 2022

    What Lies Beneath: Making Rheumatoid Arthritis Visible for the Seronegative Patient Through Blood Work

    Shilpa Venkatachalam, Global Healthy Living Foundation, New York, NY

    Background/Purpose: When I first received my Rheumatoid Arthritis (RA) diagnosis 5 years ago, I experienced a combination of relief and disbelief. Relief because now all…
  • Abstract Number: PP25 • ACR Convergence 2022

    From Denial of Spondyloarthritis to Becoming a Support Group Leader and Medical Doctor of Rheumatology: A Patient’s Perspective

    Shung Chiu1 and Mei Nee Chiu2, 1Spondylitis Association of America, Ludhiana, Punjab, India, 2University Institute of Pharmaceutical Sciences, Panjab University, Ludhiana, Punjab, India

    Background/Purpose: From being a table tennis champion to getting into medical school, I thought my life was smooth sailing. But little did I know it…
  • Abstract Number: PP26 • ACR Convergence 2022

    Chronically Catherine: A Sex and the City-Inspired Autobiographical Column for Disabled Young Adults on Subjects We Really Care About – Like Disabled Dating and How Hot Cheetos Saved My Life

    Catherine Ames1, Courtney Wells2 and Kristine Carandang1, 1Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA, 2University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN

    Background/Purpose: What if Carrie Bradshaw, sex advice columnist, fashionsta, and all around icon from Sex and the City were chronically ill? Or disabled? That's the…
  • Abstract Number: PP24 • ACR Convergence 2022

    Planting Seeds of Self-Advocacy: Increasing Healthcare Engagement in Children and Adolescents Through Arthritis Camp

    Kaye Anderson1, Kristine Carandang2 and Courtney Wells3, 1Young Patients' Autoimmune Research & Empowerment Alliance, River Falls, WI, 2Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA, 3University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN

    Background/Purpose: I was diagnosed with Juvenile Idiopathic Arthritis at the age of ten. The constant battle between doctor appointments, pain, and medication side effects left…
  • Abstract Number: PP23 • ACR Convergence 2022

    The Journey to Collaborative Care and Patient-Centric Educational Opportunities for a Scleroderma Patient

    Amy Gietzen and Hannah Bowen, The Ann Steffens Scleroderma Foundation, Albany, NY

    Background/Purpose: In 2001 I started to experience forearm, elbow, and wrist pain. My fingers were constantly swollen, and sensitive. After 6 months of living in…
  • Abstract Number: PP19 • ACR Convergence 2022

    Living with Rheumatoid Arthritis in a Rural Farming Community: How I Found a Rheumatologist and Got Targeted Treatment

    Vanessa Kerr, Mexico, MO

    Background/Purpose: I'm Vanessa and I've been married to James, a farmer, for 27 years. We have 5 children and when my fourth was born, I…
  • Abstract Number: PP17 • ACR Convergence 2022

    Engaging with the Spoon Theory: How I Make Decisions Using a Cost-Benefit Analysis That Works to Improve My Mental Health While Living with RA

    Stephanie Aleite, AiArthritis, St. Louis, MO

    Background/Purpose: Patients living with rheumatoid arthritis (RA) often also live with comorbid mental health conditions. Regardless of diagnosed mental health condition, living with a chronic…
  • Abstract Number: PP20 • ACR Convergence 2022

    ‘It Is Due to Stress’ – But Which Type of Stress? Cumulative childhood stress is a risk factor for autoimmune disease

    Melissa Allman, Michigan State University, Meridian Charter Township, MI

    Background/Purpose: Trauma can have profound detrimental influences on our health and well-being. I am tangibly familiar with how trauma can impact the individual due to…
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Embargo Policy

All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM CT on October 25. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

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