ACR Meeting Abstracts

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  • Abstract Number: PP12 • ACR Convergence 2022

    We Became Advocates, Educators, and a Support System for Hispanic/Latino Patients with Rheumatoid Arthritis and Their Caregivers Through Involvement in a Virtual Patient Advisory Board

    Zucy Almonacid1, Wigna Cruz2, Francisca Garcia3, Teresa Hernandez4, Velia Martinez5, Patricia Mattos3, Mario Mutis6 and Denise Serrano7, 1Hicsville, NY, 2Juan Diaz, PR, 3Lake Worth, FL, 4Greenacres, FL, 5Guaynabo, PR, 6Fort Pierce, FL, 7Toa Alto, PR

    Background/Purpose: Each of us has been diagnosed with rheumatoid arthritis (RA), from as recently as one year ago to as long as 20 years ago.…
  • Abstract Number: PP04 • ACR Convergence 2022

    Invisible to Invincible: The Role of Virtual Events in Autoimmune Advocacy, Education and Community Building

    Kara Wada, The Ohio State University, Columbus, OH

    Background/Purpose: After years of ignoring my dry eyes and mouth, unrelenting fatigue, and body pain, an off-the-cuff comment from my dental hygienist finally pushed me…
  • Abstract Number: 2246 • ACR Convergence 2022

    Rheumatoid Arthritis Patient Discordance with Provider Treatment Goals Is Associated with Poorer RA Outcomes

    Kelly O'Neill1, Pamela Sinicrope2, Cynthia Crowson3, Kathryne Marks4, Rachel Giblon5, Elena Myasoedova2 and John Davis2, 1Rheumatoid Patient Foundation, Winter Springs, FL, 2Mayo Clinic, Rochester, MN, 3Mayo Clinic, Eyota, MN, 4Brigham and Women's Hospital, Boston, MA, 5Mayo Clinic, Rochester, MN, Rochester, MN

    Background/Purpose: We previously reported on themes in rheumatoid arthritis (RA) patients' treatment goals which associated with aspects of rheumatology care such as presence of a…
  • Abstract Number: PP23 • ACR Convergence 2022

    The Journey to Collaborative Care and Patient-Centric Educational Opportunities for a Scleroderma Patient

    Amy Gietzen and Hannah Bowen, The Ann Steffens Scleroderma Foundation, Albany, NY

    Background/Purpose: In 2001 I started to experience forearm, elbow, and wrist pain. My fingers were constantly swollen, and sensitive. After 6 months of living in…
  • Abstract Number: PP25 • ACR Convergence 2022

    From Denial of Spondyloarthritis to Becoming a Support Group Leader and Medical Doctor of Rheumatology: A Patient’s Perspective

    Shung Chiu1 and Mei Nee Chiu2, 1Spondylitis Association of America, Ludhiana, Punjab, India, 2University Institute of Pharmaceutical Sciences, Panjab University, Ludhiana, Punjab, India

    Background/Purpose: From being a table tennis champion to getting into medical school, I thought my life was smooth sailing. But little did I know it…
  • Abstract Number: PP10 • ACR Convergence 2022

    How Advocating for My Autoimmune Disease Led Me to Desire to Pursue a Career in Rheumatology

    Brooklyn Johnson1 and Kathleen Collins2, 1Memphis, TN, 2LeBonheur Children's Hospital, Memphis, TN

    Background/Purpose: The summer before my senior year, I developed a faint rash on my face and my arms. At a dermatology appointment, I pointed this…
  • Abstract Number: PP16 • ACR Convergence 2022

    Please Hear Me: How Effective Provider-Patient Communication Improved My Psoriatic Arthritis

    Ashley Krivohlavek, Oklahoma City, OK

    Background/Purpose: At age 12, I was diagnosed with psoriasis (PsO) followed by a diagnosis of psoriatic arthritis (PsA) at age 30. I'm now 38. In…
  • Abstract Number: PP22 • ACR Convergence 2022

    Patients Raising Awareness for Patients – A Collaborative Partnership Between Take a Pain Check Foundation and Canadian Arthritis Patient Alliance

    Natasha Trehan1 and Laurie Proulx2, 1Take a Pain Check Foundation, Markham, ON, Canada, 2Canadian Arthritis Patient Alliance, Ottawa, ON, Canada

    Background/Purpose: Juvenile Idiopathic Arthritis is a chronic disease that affects a child's school life and relationships, creating social isolation for youth and young adults. Take…
  • Abstract Number: PP18 • ACR Convergence 2022

    From Devastated to Empowered: How Patient Engagement in Research Changes Lives

    Eileen Davidson, Burnaby, BC, Canada

    Background/Purpose: In April of 2015 I was a 29 year-old single mom diagnosed with rheumatoid arthritis (RA). RA wasn't unknown to me; my aunt who…
  • Abstract Number: 2241 • ACR Convergence 2022

    Autoantibodies and Damage in Patients with Idiopathic Inflammatory Myopathies: A Longitudinal Multicenter Study from the EuroMyositis International Network

    Fabricio Espinosa-Ortega1, Karin Lodin2, Marie Holmqvist1, Maryam Dastmalchi3, Angela Ceribelli4, Jiri Venkovsky5, Hector Chinoy6, Louise Diederichsen7, Samuel Shinjo8, Ingrid Lundberg9 and Helene Alexanderson1, 1Karolinska Institutet, Stockholm, Sweden, 2Karolinska University hospital, Huddinge, Sweden, 3Karolinska University Hospital, Stockholm, Sweden, 4Humanitas Research Hospital, Humanitas University, Rozzano (MI) Italy, Borgo San Giacomo, Italy, 5Charles Univ Prague, Inst Rheumatol, Prague, Czech Republic, Prague, Czech Republic, 6The University of Manchester, Sale, United Kingdom, 7Copenhagen University Hospital, Rigshospitalet, Dragør, Denmark, 8Faculdade de Medicina FMUSP, Universidade de São Paulo, São Paulo, Brazil, 9Karolinska Universitetssjukhuset, Karolinska Institutet, Stockholm, Sweden

    Background/Purpose: Patients with idiopathic inflammatory myopathies (IIM) may harbor autoantibodies that are associated with well-defined clinical phenotypes. The association of these autoantibodies with level of…
  • Abstract Number: 2236 • ACR Convergence 2022

    Association of microRNA-30b Plasma Expression with Fibromyalgia Clinical Features and with Corneal Small Nerve Fiber Pathology

    Laura Aline Martínez Martínez1, Fausto Sánchez Muñoz1, Manuel Ramírez Fernández2, Yaneli Juárez Vicuña1, Mario Peña-Peña1, Carlos Alfonso Guzman Martin1, Itzel Palafox Sosa1 and Manuel Martínez-Lavín1, 1Instituto Nacional de Cardiología Ignacio Chávez, Ciudad de México, Mexico, 2APEC Hospital de la ceguera, Ciudad de México, Mexico

    Background/Purpose: There is a clear association between fibromyalgia and small fiber neuropathy. Dorsal root ganglia contain the small nerve fiber nuclei. Severe fibromyalgia is associated…
  • Abstract Number: PP08 • ACR Convergence 2022

    Learning to Advocate for Myself and the Young Adult Community While Finding My Place as a Patient Partner at CARRA (Childhood Arthritis and Rheumatology Research Alliance)

    Ela Chintagunta1, Courtney Wells2 and Kristine Carandang3, 1Young Patients' Autoimmune Research & Empowerment Alliance, Chicago, IL, 2University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN, 3Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA

    Background/Purpose: I was diagnosed with Juvenile Idiopathic Arthritis at the age of 13 when I was experiencing joint swelling in my lower body and my…
  • Abstract Number: 2239 • ACR Convergence 2022

    Effect of Treatment with IVIG (octagam10%) on Skin Symptoms and Quality of Life in Subjects with Dermatomyositis. Results of a Large, Randomized, Placebo-controlled International Phase III Trial

    Rohit Aggarwal1, Christina Charles-Schoeman2, joachim Schessl3, Victoria Werth4, Zsuzsanna Bata-Csorgo5, Mazen Dimachkie6, Zoltan Griger7, Sergey Moiseev8, Chester Oddis9, Elena Schiopu10, Jiří Vencovský11, Irene Beckmann12, Elisabeth Clodi13, Todd Levine14 and and the ProDERM investigators15, 1Division of Rheumatology and Clinical Immunology, Department of Medicine, University of Pittsburgh, Pittsburgh, PA, 2Division of Rheumatology, University of California, Los Angeles, Santa Monica, CA, 3Friedrich-Baur-Institut/Medical University Munich, Mainkofen, Germany, 4Philadelphia VAMC, Philadelphia, PA, USA and Department of Dermatology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, 5University of Szeged, Faculty of Medicine, Szeged, Hungary, 6University of Kansas Medical Center, Kansas City, KS, 7University of Debrecen, Debrecen, Hungary, 8First Moscow State Medical University, Moscow, Russia, 9University of Pittsburgh, Pittsburgh, PA, 10Michigan Medicine Rheumatology Clinic – Taubman Center, Ann Arbor, MI, 11Institute of Rheumatology and Department of Rheumatology, First Faculty of Medicine, Charles University, Prague, Czech Republic, 12Octapharma PharmazeutikaProduktionsGesmbH, Vienna, Austria, 13Octapharma Pharmazeutika ProduktionsgesmbH, Vienna, Austria, 14Phoenix Neurological Associates, Ltd., Phoenix, AZ, 15Institutions in Europe and North America, Vienna, Austria

    Background/Purpose: Dermatomyositis (DM) is a rare chronic systemic autoimmune disease with characteristic skin rashes and progressive proximal muscle weakness. The efficacy of IVIg treatment in…
  • Abstract Number: 1786 • ACR Convergence 2022

    Anterior Knee Pain Is Associated with 2-year Compartment Specific Patellofemoral Cartilage Worsening: The MOST Study

    Corey Lanois1, Natalie Collins2, Tuhina Neogi3, Ali Guermazi4, Frank Roemer5, Michael LaValley6, Michael Nevitt7, James Torner8, Cora E. Lewis9 and Joshua Stefanik10, 1Northeastern University, Providence, RI, 2University of Queensland, Brisbane, Australia, 3Boston University School of Medicine, Boston, MA, 4Boston University, Boston, MA, 5Friedrich-Alexander University Erlangen Nürnberg, Erlangen, Germany, 6Boston University School of Public Health, Arlington, MA, 7University of California at San Francisco, Orinda, CA, 8University of Iowa, Iowa City, IA, 9University of Alabama at Birmingham, Birmingham, AL, 10Northeastern University, Boston, MA

    Background/Purpose: Anterior knee pain (AKP) may be a precursor to patellofemoral osteoarthritis (PFOA). Cross-sectionally, frequent AKP has been associated with MRI features of PFOA; however,…
  • Abstract Number: 1785 • ACR Convergence 2022

    PROs and Sociodemographic Factors in Year Prior to COVID Predict Trajectories of Depressive Symptoms in Adults with RA in First 2 Years of Pandemic: Data from the Canadian Early Arthritis Cohort

    Susan Bartlett1, orit schieir2, Marie-France Valois2, Janet Pope3, Louis Bessette4, Gilles Boire5, Carol Hitchon6, Edward Keystone7, Carter Thorne8, Diane Tin9, Glen Hazlewood10 and Vivian Bykerk11, 1McGill University, Montreal, QC, Canada, 2McGill University, Montréal, QC, Canada, 3University of Western Ontario, London, ON, Canada, 4Centre de l'Ostoporose et de Rhumatologie de Québec, Québec, QC, Canada, 5Universite de Sherbrooke, Sherbrooke, QC, Canada, 6University of Manitoba, Winnipeg, MB, Canada, 7Keystone Consulting Enterprises Inc., Toronto, ON, Canada, 8Southlake Regional Health Centre, Newmarket, ON, Canada, 9The Arthritis Program Research Group, Newmarket, ON, Canada, 10University of Calgary, Calgary, AB, Canada, 11Hospital for Special Surgery, New York, NY

    Background/Purpose: Growing evidence points to considerable mental health impacts of the prolonged COVID-19 pandemic, though data from longitudinal studies in rheumatic diseases are sparse. We…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

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