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  • Abstract Number: 2004 • 2012 ACR/ARHP Annual Meeting

    Do We Need a Minimum Standards in Care for Children with Localized Scleroderma- Result of the Consensus Meeting in Hamburg Germany On the 11th of December 2011. Part I. Diagnosis and Assessment of the Disease

    Ivan Foeldvari1, Tamás Constantin2, Peter Hoeger3, Monika Moll4, Clare Pain5, Dana Nemcova6, Kathryn S. Torok7, Lisa Weibel8 and Philip J. Clements9, 1Kinder- und Jugenrheumatologie, Hamburger Zentrum Kinder-und Jugendrheumatologie, Hamburg, Germany, 2Pediatric Rheumatology, Semmelweis Egyetem, AOK, II.sz. Gyermekgyogyaszati Klinika, Budapest, Hungary, 3Pediatric Dermatology, Kinderkrankenhaus Wilhelmstift, Hamburg, Germany, 4Pediatric Rheumatology, University Childrenxsxhospital, Tübingen, Germany, 5Paediatric Rheumatology, Alder Hey Children's Hospital, Liverpool, United Kingdom, 6Pediatric Rheumatology, University Childrenxsxhospital, Prague, Czech Republic, 7Pediatric Rheumatology, Scleroderma Center of Pittsburgh, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, 8Pediatric Dermatology, University Childrenxs Hospital, Zurich, Switzerland, 9University of California, Los Angeles, Department of Medicine, Los Angeles, CA

    Background/Purpose: Juvenile localised scleroderma (jlSc) is an orphan disease. There are currently no guidelines regarding diagnosis, follow up and treatment. In the frame of the…
  • Abstract Number: 2005 • 2012 ACR/ARHP Annual Meeting

    Clinical Course and Outcomes of Children with Juvenile Idiopathic Arthritis-Associated Uveitis and Idiopathic Uveitis

    Sheila T. Angeles-Han1, Steven Yeh2, Courtney McCracken3, Larry B. Vogler4, Kelly A. Rouster-Stevens5, Christine W. Kennedy6, Matthew Kent4, Kirsten Jenkins7, Scott Lambert8, Carolyn Drews-Botsch9 and Sampath Prahalad10, 1Pediatrics, Emory Univ School of Medicine, Atlanta, GA, 2Ophthalmology, Emory University School of Medicine, Atlanta, GA, 3Emory University School of Medicine, Atlanta, GA, 4Dept of Pediatrics, Emory Univ School of Medicine, Atlanta, GA, 5Pediatric Rheumatologist, Emory Children's Center, Atlanta, GA, 6Rheumatology Immunology, Emory Children's Center, Atlanta, GA, 7Children's Healthcare of Atlanta, Atlanta, GA, 8Ophthalmology, Emory Univ School of Medicine, Atlanta, GA, 9Epidemiology, Emory University School of Public Health, Atlanta, GA, 10Pediatrics, Emory Children's Center, Atlanta, GA

    Background/Purpose:  Uveitis can lead to vision loss and blindness.  Few studies focus on the outcomes of children with both juvenile idiopathic arthritis-associated uveitis (JIA-U) and…
  • Abstract Number: 2006 • 2012 ACR/ARHP Annual Meeting

    Sexual Health and Substance Abuse in Adolescents with Rheumatic Conditions

    Sara M. Stern1, Rhina Castillo2, Katherine AB Marzan2, Jennifer Jackson3, Mona Desai3, Ellen Iverson3, Leslie F. Clark3 and Diane Tanaka3, 1Pediatric Rheumatology, Children's Hospital Los Angeles, Los Angeles, CA, 2Division of Rheumatology, Children's Hospital Los Angeles, Los Angeles, CA, 3Division of Adolescent Medicine, Children's Hospital Los Angeles, Los Angeles, CA

    Background/Purpose: Adolescence is a unique stage with pubertal maturation, individuation from parents and peer group identification.  The impact of a rheumatic condition can affect social,…
  • Abstract Number: 2007 • 2012 ACR/ARHP Annual Meeting

    Radiological Peripheral Involvement At Hands, Feet and Hips in Young Adults with Polyarticular Idiopathic Juvenile Arthritis

    Muriel Elhai1, Ramin Bazeli2, Veronique Freire2, Antoine Feydy2, Andre Kahan3, Chantal Job-Deslandre4 and Julien Wipff1, 1Rheumatology A, Paris Descartes University, Cochin Hospital, APHP, Paris, France, 2Radiology B, Paris Descartes University, Cochin Hospital, APHP, Paris, France, 3Service de Rhumatologie A, Rheumatology A, Paris Descartes University, Cochin Hospital, APHP, Paris, France, 4Service de Rhumatologie, Rheumatology A, Paris Descartes University, Cochin Hospital, APHP, Paris, France

    Background/Purpose: Radiographic damage was recently considered to be a feature of poor prognosis in cases of polyarticular juvenile idiopathic arthritis (pJIA). However, most radiographic studies…
  • Abstract Number: 2008 • 2012 ACR/ARHP Annual Meeting

    Initial Evaluation of a Localized Scleroderma (LS) Clinical Activity Measure

    Suzanne C. Li1, Kathryn S. Torok2, Christina Kelsey3, Mara L Becker4, Fatma Dedeoglu5, Robert C. Fuhlbrigge6, Gloria C. Higgins7, Sandy D. Hong8, Maria F. Ibarra9, Ronald Laxer10, Thomas G. Mason II11, Marilynn G. Punaro12, Elena Pope13, C. Egla Rabinovich14 and Katie G. Stewart12, 1Pediatrics, Joseph M Sanzari Children's Hospital, Hackensack University Medical Center, Hackensack, NJ, 2Pediatric Rheumatology, Scleroderma Center of Pittsburgh, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, 3Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, 4Clinical Pharmacology and Rheumatology, Children's Mercy Hospital, Kansas City, MO, 5Division of Immunology, Boston Children's Hospital, Boston, MA, 6Pediatric Rheumatology, Childrens Hospital, Boston, MA, 7Pediatric Rheumatology Ohio State University, Nationwide Childrens Hosp, Columbus, OH, 8Pediatrics-Rheumatology, U of Iowa Children's Hosp, Iowa City, IA, 9Pediatric Rheumatolgy, Children's Mercy Hospital, Kansas City, MO, 10Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, 11Rheumatology, Mayo Clinic Rochester, Rochester, MN, 12Pediatric Rheumatology, Texas Scottish Rite Hospital, Dallas, TX, 13Dermatology, The Hospital for Sick Children, Toronto, ON, Canada, 14Pediatric Rheumatology, Duke University Medical Center, Durham, NC

    Background/Purpose: LS commonly causes severe morbidity for the growing child. Optimal therapy is not known and the lack of an agreed-upon standard for assessing disease…
  • Abstract Number: 2009 • 2012 ACR/ARHP Annual Meeting

    Does Breastfeeding Influence the Presentation of  Juvenile Idiopathic Arthritis? Results From the Childhood Arthritis Prospective Study

    Hannah Pickford1, Eileen Baildam2, Alice Chieng3, Joyce Davidson4, Helen E. Foster5, Janet Gardner-Medwin4, Lucy R. Wedderburn6, Wendy Thomson1 and Kimme L. Hyrich7, 1University of Manchester, Arthritis Research UK Epidemiology Unit, Manchester, United Kingdom, 2Alder Hey Children's Foundation NHS Trust, Liverpool, United Kingdom, 3Manchester Children's Hospital, Manchester, United Kingdom, 4Royal Hospital for Sick Children, Glasgow, United Kingdom, 5Institute Cellular Medicine, Musculoskeletal Research Group, Newcastle upon Tyne, United Kingdom, 6Rheumatology Unit , Institute of Child Health, University College London (UCL), London, United Kingdom, 7Manchester Academic Health Science Centre, Arthritis Research UK Epidemiology Unit, Manchester, United Kingdom

    Background/Purpose: There is extensive research into the association between breastfeeding (BF) and the occurrence of autoimmune diseases, although results have been conflicting. Studies have suggested…
  • Abstract Number: 2010 • 2012 ACR/ARHP Annual Meeting

    Administration of Routine Preventative Vaccinations in Children with Juvenile Idiopathic Arthritis Receiving Adalimumab

    Neelufar Mozaffarian1 and Vipin Arora2, 1Abbott, Abbott Park, IL, 2Health Outcomes Research, Abbott, Abbott Park, IL

    Background/Purpose: Adalimumab, a fully human monoclonal antibody to tumor necrosis factor-alpha (TNF) has been shown to be safe and effective in juvenile idiopathic arthritis (JIA),…
  • Abstract Number: 2011 • 2012 ACR/ARHP Annual Meeting

    ACR Criteria, Providers’ Global Rating of Change and Role of Patient Self-Report in Evaluating Change in Disease Over Time: A Patient Reported Outcomes Measurement Information System Study

    Bin Huang1, Jennifer Farrell2, Adam Carle3, Stacey Niehaus3, Hermine Brunner4, Alexei A. Grom5, Michael Henrickson6, Jennifer L. Huggins4, D. J. Lovell7, Tracy V. Ting4 and Esi M. Morgan DeWitt2, 1Biostatistics and Epidemiology, Cincinnati Children's Hospital Medical Center/University of Cincinnati School of Medicine, Cincinnati, OH, 2Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 3Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 4Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 5PRCSG, Cincinnati, OH, 6MLC 4010, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 7Cincinnati Children's Hospital, Cincinnati, OH

    Background/Purpose: As part of a longitudinal study of Juvenile Idiopathic Arthritis (JIA), providers completed clinical outcomes assessments and patients (pt) completed self-report measures at clinic…
  • Abstract Number: 2012 • 2012 ACR/ARHP Annual Meeting

    Pediatric Rheumatology Productivity: Results of the American Academy of Pediatrics 2010 Workforce Survey

    Michael Henrickson1 and Laura Laskosz2, 1MLC 4010, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 2Division of Technical and Medical Services, The American Academy of Pediatrics, Elk Grove Village, IL

    Background/Purpose: Relative value units (RVUs) are a payer-neutral measure of clinical work. The federal government uses a multi-component formula to convert this measure into reimbursement.…
  • Abstract Number: 2013 • 2012 ACR/ARHP Annual Meeting

    Cross-Sectional and Longitudinal comparison  of Bone Mass Status, Using  pQCT, in a Large Cohort of Juvenile Idiopathic Arthritis and Juvenile Onset Systemic Lupus Erythematosus Patients

    Fernanda Falcini1, Stefano Stagi2, Loredana Cavalli3, Giulia Carnesecchi4, Federico Bertini4, Laura Masi3, Marco Matucci-Cerinic5 and Maria Luisa Brandi3, 1Department of Biomedicine, Division of Rheumatology AOUC, Excellence Centre for Research, Florence, Italy, 2Pediatric Unit,, Mugello's Hospital, Borgo San Lorenzo, Firenze, Italy, 3Department of Internal Medicine, Endocrinology Unit, University of Florence, Firenze, Italy, 4Department of Internal Medicine, Rheumatology Section, University of Florence, Florence, Italy, 5Medicine, Univ Florence, Firenze, Italy

    Background/Purpose: A small number of prospective data have been published on the use of pQCT in large groups of pts with JIA and JSLE. Moreover,…
  • Abstract Number: 2014 • 2012 ACR/ARHP Annual Meeting

    Serum 25(OH)D Levels in Adolescents and Young Adults with Juvenile Idiopathic Arthritis and Juvenile Onset Systemic Lupus Erythematosus: Prevalence and Association with Disease Activity

    Fernanda Falcini1, Stefano Stagi2, Loredana Cavalli3, Giulia Carnesecchi1, Federico Bertini1, Laura Masi3, Marco Matucci-Cerinic1 and Maria Luisa Brandi3, 1Department of Internal Medicine, Rheumatology Section, Transition Clinic, University of Florence, Florence, Italy, 2Pediatric Endocrinology Unit, Anna Meyer Children’s Hospital, University of Florence, Firenze, Italy, 3Department of Internal Medicine, Endocrinology Unit, University of Florence, Firenze, Italy

    Background/Purpose: Numerous data are available in literature on 25 (OH)D serum levels in general population, few and contradictory in Juvenile Idiopathic Arthritis (JIA), and scarce…
  • Abstract Number: 2015 • 2012 ACR/ARHP Annual Meeting

    Recognizing Two Distinct Clinical Phenotypes in Muckle-Wells Syndrome

    J B. Kuemmerle-Deschner1, Samuel Dembi Samba1, Isabelle Kone-Paut2, Isabelle Marie2, Pascal N. Tyrrell3 and Susanne M. Benseler4, 1Division of Pediatric Rheumatology, Department of Pediatrics, University Hospital Tuebingen, Tuebingen, Germany, 2Pédiatrie Générale, CHU Bicêtre, Paris, France, 3Division of Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, 4Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada

    Background/Purpose: The diagnosis of Muckle-Wells syndrome remains challenging due to the variable and often non-specific clinical presentation. The aim of this study was to identify…
  • Abstract Number: 2016 • 2012 ACR/ARHP Annual Meeting

    Primary Raynaud’s Phenomenon in a Multicenter Cohort of Italian Children and Adolescents: Which Prognostic Relevance for Serological Tests?

    Fernanda Falcini1, Valentina Denaro1, Federica Cuoco2, Giorgia Martini3, Susanna Cappelli1, Antonella Petaccia2, Fabrizia Corona2, Giulia Carnesecchi1, Francesco La Torre4, Marco Matucci-Cerinic5 and Donato Rigante6, 1Department of Internal Medicine, Rheumatology Section, University of Florence, Firenze, Italy, 2Department of Pediatrics, University of Milan, Milan, Italy, 3Department of Pediatrics,, University of Padua, Padua, Italy, 4DIMIMP-University, Rheumatologic Section, Bari, Italy, 5Department of Biomedicine & Division of Rheumatology AOUC, University of Florence, Florence, Italy, 6Pediatrics, Università Cattolica Sacro Cuore, Rome, Italy

    Background/Purpose: Raynaud’s phenomenon (RP) is an episodic vasospasm of the peripheral arteries, causing pallor followed by cyanosis and redness with pain and sometimes paraesthesia or…
  • Abstract Number: 2017 • 2012 ACR/ARHP Annual Meeting

    Orthopaedic Treatment of Temporomandibular Joint (TMJ) Damage in Adolescents with Juvenile Idiopathic Arthritis (JIA): Longitudinal Evaluation

    Fernanda Falcini1, Daniela Melchiorre2, Giulia Carnesecchi3, Federico Bertini4, Katia Biondi5, Mario Bosco5 and Marco Matucci-Cerinic6, 1Department of Biomedicine, Division of Rheumatology AOUC, Excellence Centre for Research, Florence, Italy, 2Department of Biomedicine, Division of Rheumatology, Department of Internal Medicine, Rheumatology Section, University of Florence, Florence, Italy, 3Department of Biomedicine, Division of Rheumatology, University of Florence, Florence, Italy, 4Department of Internal Medicine, Rheumatology Section, University of Florence, Florence, Italy, 5Department of Odontostomatologic Sciences, University of Pavia, Pavia, Italy, 6Department of Biomedicine & Division of Rheumatology AOUC, University of Florence, Florence, Italy

    Background/Purpose: TMJ involvement has been reported in all subsets of JIA. The prevalence of radiographic changes of TMJs varies from 30% to 65%, and 50-80%…
  • Abstract Number: 2018 • 2012 ACR/ARHP Annual Meeting

    Juvenile Idiopathic Arthritis in Adulthood: Evaluation of Disease Activity, Damage and Quality of Life

    Alessandra Salmaso1, Lorenzo Ceri2, Serena Capannini2, Francesco La Torre3, Maurizio Gattinara4, Irene Pontikaki1, Pier Luigi Meroni5, Fernanda Falcini2 and Valeria Gerloni1, 1Pediatric Rheumatology, G. Pini Institute, Department and Chair of Rheumatology, Milan, Italy, 2Department of Internal Medicine, Rheumatology Section, Transition Clinic, University of Florence, Firenze, Italy, 3DIMIMP-University, Rheumatologic Section, Bari, Italy, 4Pediatric Rheumatology, Pediatric Rheumatology, G. Pini Institute, Department and Chair of Rheumatology, Milan, Italy, 5Dept. of clinical and community science, Division of Rheumatology, Istituto G. Pini, University of Milan, Milano, Italy

    Background/Purpose: : Health outcomes in Juvenile Idiopathic Arthritis (JIA) have been a very active area of research in the past several years. Altogether, the available…
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