Abstract Number: 2029 • 2012 ACR/ARHP Annual Meeting
Reliability of Scoring a Disease Damage Measure for Juvenile Localized Scleroderma
Background/Purpose: . In order to more accurately capture disease activity and damage in juvenile Localized Scleroderma (jLS) and to develop an accepted outcome measure for…Abstract Number: 2030 • 2012 ACR/ARHP Annual Meeting
A Multi-Modal Amplified Musculoskeletal Pain Treatment Program: Associations of Previous Pharmacotherapy with Subsequent Outcomes
Background/Purpose: Management of Amplified Musculoskeletal Pain (AMP) in children (i.e. juvenile primary fibromyalgia, complex regional pain syndrome, neuropathic pain, central sensitization) remains controversial. Common practice…Abstract Number: 2031 • 2012 ACR/ARHP Annual Meeting
Safety and Efficacy of Anakinra in Patients with Deficiency of Interleukin-1 Receptor Antagonist
Background/Purpose: Deficiency of interleukin-1 receptor antagonist (DIRA) is a neonatal-onset autoinflammatory syndrome caused by mutations in IL1RN gene and clinically characterized by a perinatal onset…Abstract Number: 2032 • 2012 ACR/ARHP Annual Meeting
Results From a Multicentre International Registry of Familial Mediterranean Fever: Impact of Genetic and Environment Factors On the Expression of a Monogenic Disease in Children
Background/Purpose: Familial Mediterranean Fever (FMF) is an autoinflammatory disease caused by mutations in a single gene, the MEFV gene. The disease is very frequent among…Abstract Number: 2033 • 2012 ACR/ARHP Annual Meeting
Infliximab Is an Effective Therapy in Pediatric Renal Sarcoidosis
Background/Purpose: Renal sarcoidosis is an unusual form of a rare multisystem disease, and there is little data to guide therapy. The cytokines implicated in…Abstract Number: 2034 • 2012 ACR/ARHP Annual Meeting
Magnetic Resonance Imaging Is a Reliable Tool to Monitor Chronic Non-Bacterial Osteomyelitis in Children
Background/Purpose: Chronic non-bacterial osteomyelitis (CNO) is a rare condition characterized by inflammatory bone lesions with no detectable infectious agents. It may be unifocal (U-CNO) or…Abstract Number: 2035 • 2012 ACR/ARHP Annual Meeting
Performance of Icbd (International Criteria for Behcet’s Disease) in Iranian Children with Behcet’s Disease
Background/Purpose: ICBD is the new international criteria for diagnosis/classification of Behcet’s Disease, created in 2006. The scoring system for ICBD depends on 2 points for…Abstract Number: 2036 • 2012 ACR/ARHP Annual Meeting
Children’s Hospital of Pittsburgh Pediatric Onset En Coup De Sabre and Parry-Romberg Syndrome Cohort
Background/Purpose: Localized scleroderma is an autoimmune disease characterized by disfiguring thickening and fibrosis of the skin and underlying soft tissues; the majority of cases have…Abstract Number: 2037 • 2012 ACR/ARHP Annual Meeting
Poor Quality of Gout Care Is Strongly Associated with Higher Gout-Related Health Care Utilization
Background/Purpose: Proponents of improving quality of gout care have suggested various gout quality indicators, but no study to date has shown the link between…Abstract Number: 2039 • 2012 ACR/ARHP Annual Meeting
Uveitis Surveillance Through Lean-Six Sigma for Quality Assurance in Juvenile Idiopathic Arthritis
Background/Purpose: Chronic asymptomatic iridocyclitis occurs in 10-20% of all patients with JIA leading to insidious but progressive morbidity and possible blindness. Patients with JIA-associated uveitis…Abstract Number: 2040 • 2012 ACR/ARHP Annual Meeting
Provisions of Quality Driven Care in Childhood-Onset Systemic Lupus Erythematosus
Background/Purpose: Quality Indicators (QI) are retrospectively measurable elements of practice performance for which there is evidence or consensus that can be used to assess the…Abstract Number: 2000 • 2012 ACR/ARHP Annual Meeting
Whole Body Magnetic Resonance Imaging in Evaluation of Enthesitis in Spondyloarthropathy
Background/Purpose: Enthesitis is a characteristic feature of spondyloarthritis (SpA). Tenderness at enthesial points constitutes clinical enthesitis. However, this may not always correlate with actual inflammation…Abstract Number: 2001 • 2012 ACR/ARHP Annual Meeting
Methotrexate and Injectable Tumor Necrosis Factor Alpha Inhibitor Adherence and Persistence in Children with Rheumatic Diseases
Background/Purpose: Medication adherence and persistence have been demonstrated to have important implications for treatment effectiveness, cost, and safety. Methotrexate is one of the most commonly…Abstract Number: 2002 • 2012 ACR/ARHP Annual Meeting
Randomized Clinical Trial in Pediatric Rheumatology: Are Parents and Patients in Equipoise?
Background/Purpose: It is an ethical requirement for setting up a randomized controlled trial (RCT) that the physician-investigator must have genuine uncertainty about the therapeutic options.…Abstract Number: 2003 • 2012 ACR/ARHP Annual Meeting
Colchicine As a Therapeutic Option in Periodic Fever Aphtous Stomatitis, Pharingitis Syndrome. and Cervical Adenitis (PFAPA)
Background/Purpose: PFAPA syndrome is episodic disease characterized by periodic episodes of high fever, aphthous stomatitis, pharyngitis, and cervical adenitis, so far no therapy was shown…