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  • Abstract Number: 2387 • 2016 ACR/ARHP Annual Meeting

    Response to Pamidronate Treatment Assessed By Whole Body Magnetic Resonance Imaging in Pediatric Chronic Non-Bacterial Osteomyelitis

    Caroline Marie Andreasen1, Anne Grethe Jurik2, Mia Glerup3, Christian Høst4, Birgitte Thorsted Mahler4, Ellen-Margrethe Hauge5 and Troels Herlin6, 1Dept. Rheumatology, Dept. of Rheumatology, Aarhus University Hospital, Aarhus, Denmark, 2Dept. of Radiology, Aarhus University Hospital, Aarhus, Denmark, 3Pediatric Rheumatology Clinic, Department of Pediatrics, Dept. of Pediatrics, Aarhus University Hospital, Aarhus, Denmark, 4Dept. of Pediatrics, Aarhus University Hospital, Aarhus, Denmark, 5Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark, 6Dept. of Pediatrics, Aarhus University Hospital, Aarhus N, Denmark

    Background/Purpose: Pamidronate (PAM) may be effective in diminishing pain and permanent bone deformities in chronic non-bacterial osteomyelitis (CNO). Whole body magnetic resonance imaging (WB MRI)…
  • Abstract Number: 2388 • 2016 ACR/ARHP Annual Meeting

    Clinical Characterization and Outcomes of Pediatric Chronic Nonbacterial Osteomyelitis

    Angela Taneja1, Kelly Rouster-Stevens1, Sampath Prahalad1 and Sheila Angeles-Han2, 1Pediatric Rheumatology, Emory University School of Medicine, Atlanta, GA, 2Pediatrics, Emory University School of Medicine, Atlanta, GA

    Background/Purpose: Chronic Nonbacterial Osteomyelitis (CNO) is a rare condition of largely unknown etiology with variable clinical and radiological features. It is an aseptic auto-inflammatory bone…
  • Abstract Number: 2389 • 2016 ACR/ARHP Annual Meeting

    Is There a Difference in the Presentation of Diffuse and Limited Subtype in Childhood? Results from the Juvenile Scleroderma Inception Cohort

    Ivan Foeldvari1, Jens Klotsche2, Ozgur Kasapcopur3, Amra Adrovic4, Valda Stanevicha5, Maria Teresa Terreri6, Ekaterina Alexeeva7, Maria M. Katsicas8, Rolando Cimaz9, Mikhail Kostik10, Thomas J. A. Lehman11, Walter A. Sifuentes-Giraldo12, Vanessa Smith13, Flavio Sztajnbok14, Tadey Avcin15, Maria Jose Santos16, Dana Nemkova17, Cristina Battagliotti18, Despina Eleftheriou19, Liora Harel20, Mahesh Janarthanan21, Tilmann Kallinich22, Jordi Anton23, Kirsten Minden2, Susan Mary Nielsen24, Kathryn S. Torok25, Yosef Uziel26 and Nicola Helmus1, 1Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, 2Epidemiology unit, German Rheumatism Research Center, Berlin, Germany, 3Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, 4Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Istanbul, Turkey, 5University Childrens Hospital, Riga, Latvia, 6Pediatric Rheumatology Unit, Federal University of São Paulo, São Paulo, Brazil, 7Scientific Centre of Children’s Health of RAMS, Moscow, Russia, 8Service of Immunology & Rheumatology. Hospital de Pediatrìa Prof Dr.Juan.P. Garrahan, MD, Buenos Aires, Argentina, 9Pediatric Rheumatology, Anna Meyer Children's Hospital, Florence, Italy, 10Hospital Pediatrics, State Pediatric Medical University, Saint-Petersburg, Russia, 11Chief Div Ped Rheum PTD, Hospital for Special Surgery, New York, NY, 12Department of Rheumatology, University Hospital Ramón y Cajal, Madrid, Spain, 13Department of Rheumatology, Ghent University Hospital, Ghent University, Ghent, Belgium, 14Pediatric Rheumatology Division, Adolescent Health Care Unit, Universida de do Estado do Rio de Janeiro., Rio de Janeiro, Brazil, 15University Children's Hospital, Ljubljana, Slovenia, 16Rheumatology, Department of Rheumatology, Hospital Garcia de Orta, Almada, Portugal, Almada, Portugal, 17Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, 18Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, 19Paediatric Rheumatology Department, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom, 20Pediatric Rheumatology Unit, Schneider Children's Medical Center of Israel, Petach Tikvah, Israel, 21Pediatric Rheumatology, Chennai, India, 22Charite, University Medicine Berlin, Berlin, Germany, 23Unitat de Reumatologia Pediàtrica, Hospital Sant Joan de Déu, Barcelona, Spain, 24Rigshospitalet, Copenhagen, Denmark, 25Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, 26Meir Medical Center, Kfar Saba, Israel

    Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Several adult publications looked at the differences between limited (ljSSc) and diffuse subtype (djSSc). There…
  • Abstract Number: 2390 • 2016 ACR/ARHP Annual Meeting

    Proposal of Assessment of  the Activity of Juvenile Localised Scleroderma. Results of the Consensus Meeting in Hamburg, Germany December 2015

    Ivan Foeldvari1, Eileen Baildam2, Michael Blakley3, Christina Boros4, Kim Fligelstone5, Antonia Kienast1, Dana Nemkova6, Clare Pain2, Amanda Saracino4, Gabriele Simonini7, Kathryn S. Torok8, Lisa Weibel9 and Nicola Helmus1, 1Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, 2Paediatric Rheumatology, Alder Hey Children's NHS Foundation Trust, Liverpool, United Kingdom, 3Internal Medicine and Pediatrics, Indiana University School of Medicine and Riley Hospital for Children at IU Health, Indianapolis, IN, 4Pediatric Rheumatology, London, United Kingdom, 5Manchester Academic Health Science Centre, Centre for Musculoskeletal Research, Institute of Inflammation and Repair, The University of Manchester, Manchester, United Kingdom, 6Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, 7Pediatric Rheumatology, Anna Meyer Children's Hospital, Florence, Italy, 8Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, 9Pediatric Dermatology, University Childrenxs Hospital, Zurich, Switzerland

    Background/Purpose:  Juvenile Localised Scleroderma (JLS) is an orphan disease which is complicated by difficulties in robust measurement of disease activity.   Several outcome measures to assess…
  • Abstract Number: 2391 • 2016 ACR/ARHP Annual Meeting

    Update on the Juvenile Systemic Sclerosis Inception Cohort Project.  Characteristics of the First 80 Patients at First Assessment

    Ivan Foeldvari1, Jens Klotsche2, Ozgur Kasapcopur3, Amra Adrovic4, Valda Stanevicha5, Ana Paula Sakamoto6, Ekaterina Alexeeva7, Maria M. Katsicas8, Rolando Cimaz9, Mikhail Kostik10, Thomas J. A. Lehman11, Walter A. Sifuentes-Giraldo12, Vanessa Smith13, Flavio Sztajnbok14, Tadey Avcin15, Maria Jose Santos16, Dana Nemkova17, Cristina Battagliotti18, Despina Eleftheriou19, Liora Harel20, Mahesh Janarthanan21, Tilmann Kallinich22, Jordi Anton23, Kirsten Minden2, Susan Mary Nielsen24, Kathryn S. Torok25, Yosef Uziel26 and Nicola Helmus27, 1Hamburger Zentrum für Kinder- und Jugendrheumatologie, Hamburg, Germany, 2Epidemiology unit, German Rheumatism Research Center, Berlin, Germany, 3Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, 4Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Istanbul, Turkey, 5University Childrens Hospital, Riga, Latvia, 6Pediatric Rheumatology Unit, Federal University of São Paulo, São Paulo, Brazil, 7Rheumatology, Scientific Center of Children's Health, Moscow, Russia, 8Service of Immunology & Rheumatology. Hospital de Pediatrìa Prof Dr.Juan.P. Garrahan, MD, Buenos Aires, Argentina, 9Pediatrics, University of Firenze, Firenze, Italy, 10Hospital Pediatrics, State Pediatric Medical University, Saint-Petersburg, Russia, 11Chief Div Ped Rheum PTD, Hospital for Special Surgery, New York, NY, 12Department of Rheumatology, University Hospital Ramón y Cajal, Madrid, Spain, 13Department of Rheumatology, Ghent University Hospital, Ghent University, Ghent, Belgium, 14Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil, 15University Children's Hospital, Ljubljana, Slovenia, 16Rheumatology, Department of Rheumatology, Hospital Garcia de Orta, Almada, Portugal, Almada, Portugal, 17Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, 18Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, 19Paediatric Rheumatology Department, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom, 20Pediatric Rheumatology Unit, Schneider Children's Medical Center of Israel, Petach Tikvah, Israel, 21Pediatric Rheumatology, Chennai, India, 22Charite, University Medicine Berlin, Berlin, Germany, 23Unitat de Reumatologia Pediàtrica, Hospital Sant Joan de Déu, Barcelona, Spain, 24Rigshospitalet, Copenhagen, Denmark, 25Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, 26Meir Medical Center, Kfar Saba, Israel, 27Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany

    Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Currently just retrospective data exist regarding evolvement of organ involvement. In the retrospective studies assessment…
  • Abstract Number: 2392 • 2016 ACR/ARHP Annual Meeting

    Establishing Quality of Life Content Domains in Pediatric Localized Scleroderma

    Christina K. Zigler1, Kaveh Ardalan2 and Kathryn S. Torok3, 1University of Pittsburgh, Pittsburgh, PA, 2Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, 3Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA

    Background/Purpose: Localized scleroderma (LS) can affect patients' physical function and psychosocial well-being, but, published studies of the impact of pediatric LS on health-related quality of…
  • Abstract Number: 2393 • 2016 ACR/ARHP Annual Meeting

    Medication Use in the Juvenile Systemic Sclerosis Inception Cohort.  ARE There Differences in the Diffuse and Limited Subset Patients?

    Ivan Foeldvari1, Jens Klotsche2, Ozgur Kasapcopur3, Amra Adrovic4, Valda Stanevicha5, Maria Teresa Terreri6, Ekaterina Alexeeva7, Maria M. Katsicas8, Rolando Cimaz9, Mikhail Kostik10, Thomas J. A. Lehman11, Walter A. Sifuentes-Giraldo12, Vanessa Smith13, Flavio Sztajnbok14, Tadey Avcin15, Maria Jose Santos16, Dana Nemkova17, Cristina Battagliotti18, Despina Eleftheriou19, Liora Harel20, Mahesh Janarthanan21, Tilmann Kallinich22, Jordi Anton23, Kirsten Minden2, Susan Mary Nielsen24, Kathryn S. Torok25, Yosef Uziel26 and Nicola Helmus1, 1Hamburg Center for Pediatric and Adolescent Rheumatology, Hamburg, Germany, 2Epidemiology unit, German Rheumatism Research Center, Berlin, Germany, 3Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Department of Pediatric Rheumatology, Istanbul, Turkey, 4Department of Pediatric Rheumatology, Istanbul University, Cerrahpasa Medical School, Istanbul, Turkey, 5University Childrens Hospital, Riga, Latvia, 6Pediatric Rheumatology Unit, Federal University of São Paulo, São Paulo, Brazil, 7Rheumatology, Scientific Center of Children's Health, Moscow, Russia, 8Service of Immunology & Rheumatology. Hospital de Pediatrìa Prof Dr.Juan.P. Garrahan, MD, Buenos Aires, Argentina, 9Pediatrics, University of Firenze, Firenze, Italy, 10Hospital Pediatrics, State Pediatric Medical University, Saint-Petersburg, Russia, 11Chief Div Ped Rheum PTD, Hospital for Special Surgery, New York, NY, 12Rheumatology, Hospital Universitario Ramón y Cajal, Madrid, Spain, 13Department of Rheumatology, Ghent University Hospital, Ghent University, Ghent, Belgium, 14Pediatric Rheumatology Division, Adolescent Health Care Unit, Universida de do Estado do Rio de Janeiro., Rio de Janeiro, Brazil, 15University Children's Hospital, Ljubljana, Slovenia, 16Rheumatology, Department of Rheumatology, Hospital Garcia de Orta, Almada, Portugal, Almada, Portugal, 17Pediatric Rheumatology Unit, Department of Pediatrics and Adolescent Medicine, General University Hospital in Prague, Prague, Czech Republic, 18Hospital de Niños Dr Orlando Alasia, Santa Fé, Argentina, 19Paediatric Rheumatology Department, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom, 20Pediatric Rheumatology Unit, Schneider Children's Medical Center of Israel, Petach Tikvah, Israel, 21Pediatric Rheumatology, Chennai, India, 22Charite, University Medicine Berlin, Berlin, Germany, 23Unitat de Reumatologia Pediàtrica, Hospital Sant Joan de Déu, Barcelona, Spain, 24Rigshospitalet, Copenhagen, Denmark, 25Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, 26Meir Medical Center, Kfar Saba, Israel

    Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Currently there is no data regarding use of medication in jSSc patients. Our project is…
  • Abstract Number: 2394 • 2016 ACR/ARHP Annual Meeting

    Patient and Parent Global Assessments of Disease Impact in Pediatric Localized Scleroderma: Correlates of Patient Reported Health-Related Quality of Life and Parent Reported Family Impact Domains

    Kaveh Ardalan1, Kaila Schollaert-Fitch2, Christina K. Zigler3, Makenzie A. Zidek4 and Kathryn S. Torok5, 1Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, 2Division of Pediatric Rheumatology, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, 3University of Pittsburgh, Pittsburgh, PA, 4Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, 5Pediatric Rheumatology, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA

    Background/Purpose: Pediatric localized sclerodermaÕs (LS) effects on patient/family well-being are underexplored. Contributions of HRQoL domains and family dynamics to LSÕs impact on patients has not…
  • Abstract Number: 2395 • 2016 ACR/ARHP Annual Meeting

    The Performance of the Kobayashi and Egami Scores in Detecting IVIG Resistance in Kawasaki Disease in a Single Centre Canadian Cohort Treated with IVIG and Low Dose Aspirin

    Dania Basodan and Rosie Scuccimarri, Division of Pediatric Rheumatology, Montreal Children's Hospital / McGill University Health Centre, Montreal, QC, Canada

    Background/Purpose: Patients with Kawasaki disease (KD) resistant to IVIG remain a challenge. IVIG resistance has been recognised as a risk factor for the development of…
  • Abstract Number: 2396 • 2016 ACR/ARHP Annual Meeting

    Initiation of Dialysis in Pediatric ANCA-Associated Vasculitis

    Karen James1, Rui Xiao2,3, Peter A. Merkel4,5 and Pamela F. Weiss6, 1Pediatric Rheumatology, The Children's Hospital of Philadelphia, Philadelphia, PA, 2Department of Pediatrics, Division of Biostatistics, Children's Hospital of Philadelphia, Philadelphia, PA, 3Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, PA, 4Penn Vasculitis Center, Division of Rheumatology, University of Pennsylvania, Philadelphia, PA, 5Division of Rheumatology, University of Pennsylvania, Philadelphia, PA, 6Division of Rheumatology, Center for Pediatric Clincial Effectiveness, Children's Hospital of Philadelphia, Philadelphia, PA

    Background/Purpose: ANCA-associated vasculitis (AAV) is a group of rare systemic vasculitidies with significant morbidity and mortality. There have been no comparative effectiveness studies of AAV…
  • Abstract Number: 2397 • 2016 ACR/ARHP Annual Meeting

    Developing a Role for 18f-Flurodeoxyglucose PET/MRI in Pediatric Takayasu Arteritis

    Miriah Gillispie1, Patricia Rosillo2, Marietta De Guzman3, Victor Seghers4, Prakash Masand4 and Eyal Muscal5, 1Pediatric Rheumatology, Baylor College of Medicine/Texas Children's Hospital, Houston, TX, 2Allergy, Immunology and Rheumatology, Baylor College of Medicine/Texas Children's Hospital, Houston, TX, 3Pediatric Immunology, Allergy, and Rheumatology, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, 4Radiology, Texas Children's Hospital, Houston, TX, 5Immunology, allergy and Rheumatology, Baylor College of Medicine, Texas Children's Hospital, Houston, TX

    Background/Purpose:  Assessing disease activity is often challenging in pediatric Takayasu Arteritis (TA).  TA inflammation may be clinically silent and not always reflected on laboratory or…
  • Abstract Number: 2398 • 2016 ACR/ARHP Annual Meeting

    Reaching the Masses: A Novel Approach to Pediatric Rheumatology Education Via Tele-Learning

    J. Brian Shirley1, Fatima Gutierrez2, Eyal Muscal3, Andrea A. Ramirez1 and Jennifer A. Rama4, 1Allergy, Immunology and Rheumatology, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, 2Pediatric Hospital Medicine, Texas Tech University Health Sciences Center El Paso, El Paso Children's Hospital, El Paso, TX, 3Immunology, allergy and Rheumatology, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, 4Pulmonology, Baylor College of Medicine, Texas Children's Hospital, Houston, TX

    Background/Purpose: There is a dire need for pediatric rheumatologists in the US, as 11 states and several large cities are without these specialists. Likewise, 40%…
  • Abstract Number: 2399 • 2016 ACR/ARHP Annual Meeting

    Waning Hepatitis B Immunity Status in a Significant Proportion of Immunocompromised Pediatric Rheumatology and Gastroenterology Patients

    Emily A. Smitherman1, Leslie A. Favier1, M. Raphaelle Jean2, Adam Furnier3, Sandra Kramer2, Allen Watts1, Pamela Morgan4, Dana MH Dykes2 and Jennifer L. Huggins5, 1Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 2Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 3James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 4Division of gastroenterology, hepatology and nutrition, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 5Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH

    Background/Purpose: Despite a historically robust vaccination program, hepatitis B infection remains a significant public health challenge, and particularly for patients on chronic immunosuppressive therapy. There…
  • Abstract Number: 2400 • 2016 ACR/ARHP Annual Meeting

    Clinical and Treatment Factors Associated with Antibiotic-Refractory Lyme Arthritis in Children

    Daniel B. Horton1, Alysha J. Taxter2, Brandt Groh3, David D. Sherry4 and Carlos D. Rosé5, 1Pediatrics, Division of Pediatric Rheumatology, Rutgers Robert Wood Johnson Medical School, Rutgers Biomedical and Health Sciences, New Brunswick, NJ, 2Pediatrics, Brenner Children's Hospital, Wake Forest Baptist Medical Center, Winston-Salem, NC, 3Pediatrics, Penn State Milton S. Hershey Medical Center, Hershey, PA, 4Pediatrics, Children's Hospital of Philadelphia, Division of Pediatric Rheumatology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, 5Pediatrics, Division of Rheumatology, Nemours/A.I. duPont Hospital for Children, Thomas Jefferson University, Wilmington, DE

    Background/Purpose: Few factors have been consistently linked to antibiotic-refractory Lyme arthritis (ARLA) other than premature intra-articular glucocorticoid injections. We sought to identify clinical and treatment…
  • Abstract Number: 2401 • 2016 ACR/ARHP Annual Meeting

    Mucocutaneous Lesions and Recurrent Fevers in Patients with Trisomy 8 Mosaicism and Chromosome 8 Duplication

    Kalpana Manthiram1, Sandro Perazzio2, Deborah Bruns3, Ivona Aksentijevich4, Troy R. Torgerson5 and Daniel L. Kastner4, 1National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, 2Rheumatology, University of Washington School of Medicine and Seattle Children's Research Institute, Seattle, WA, 3Southern Illinois University Carbondale, Carbondale, IL, 4Inflammatory Disease Section, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, 5Pediatric Immunology/Rheumatology, University of Washington School of Medicine & Seattle Children's Research Institute, Seattle, WA

    Background/Purpose: Many patients with myelodysplastic syndromes with somatic trisomy 8 in the bone marrow and Behcet’s-like ulcerations have been described. A handful of patients with…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

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