Abstract Number: 2387 • 2016 ACR/ARHP Annual Meeting
Response to Pamidronate Treatment Assessed By Whole Body Magnetic Resonance Imaging in Pediatric Chronic Non-Bacterial Osteomyelitis
Background/Purpose: Pamidronate (PAM) may be effective in diminishing pain and permanent bone deformities in chronic non-bacterial osteomyelitis (CNO). Whole body magnetic resonance imaging (WB MRI)…Abstract Number: 2388 • 2016 ACR/ARHP Annual Meeting
Clinical Characterization and Outcomes of Pediatric Chronic Nonbacterial Osteomyelitis
Background/Purpose: Chronic Nonbacterial Osteomyelitis (CNO) is a rare condition of largely unknown etiology with variable clinical and radiological features. It is an aseptic auto-inflammatory bone…Abstract Number: 2389 • 2016 ACR/ARHP Annual Meeting
Is There a Difference in the Presentation of Diffuse and Limited Subtype in Childhood? Results from the Juvenile Scleroderma Inception Cohort
Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Several adult publications looked at the differences between limited (ljSSc) and diffuse subtype (djSSc). There…Abstract Number: 2390 • 2016 ACR/ARHP Annual Meeting
Proposal of Assessment of the Activity of Juvenile Localised Scleroderma. Results of the Consensus Meeting in Hamburg, Germany December 2015
Background/Purpose: Juvenile Localised Scleroderma (JLS) is an orphan disease which is complicated by difficulties in robust measurement of disease activity. Several outcome measures to assess…Abstract Number: 2391 • 2016 ACR/ARHP Annual Meeting
Update on the Juvenile Systemic Sclerosis Inception Cohort Project. Characteristics of the First 80 Patients at First Assessment
Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Currently just retrospective data exist regarding evolvement of organ involvement. In the retrospective studies assessment…Abstract Number: 2392 • 2016 ACR/ARHP Annual Meeting
Establishing Quality of Life Content Domains in Pediatric Localized Scleroderma
Background/Purpose: Localized scleroderma (LS) can affect patients' physical function and psychosocial well-being, but, published studies of the impact of pediatric LS on health-related quality of…Abstract Number: 2393 • 2016 ACR/ARHP Annual Meeting
Medication Use in the Juvenile Systemic Sclerosis Inception Cohort. ARE There Differences in the Diffuse and Limited Subset Patients?
Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Currently there is no data regarding use of medication in jSSc patients. Our project is…Abstract Number: 2394 • 2016 ACR/ARHP Annual Meeting
Patient and Parent Global Assessments of Disease Impact in Pediatric Localized Scleroderma: Correlates of Patient Reported Health-Related Quality of Life and Parent Reported Family Impact Domains
Background/Purpose: Pediatric localized sclerodermaÕs (LS) effects on patient/family well-being are underexplored. Contributions of HRQoL domains and family dynamics to LSÕs impact on patients has not…Abstract Number: 2395 • 2016 ACR/ARHP Annual Meeting
The Performance of the Kobayashi and Egami Scores in Detecting IVIG Resistance in Kawasaki Disease in a Single Centre Canadian Cohort Treated with IVIG and Low Dose Aspirin
Background/Purpose: Patients with Kawasaki disease (KD) resistant to IVIG remain a challenge. IVIG resistance has been recognised as a risk factor for the development of…Abstract Number: 2396 • 2016 ACR/ARHP Annual Meeting
Initiation of Dialysis in Pediatric ANCA-Associated Vasculitis
Background/Purpose: ANCA-associated vasculitis (AAV) is a group of rare systemic vasculitidies with significant morbidity and mortality. There have been no comparative effectiveness studies of AAV…Abstract Number: 2397 • 2016 ACR/ARHP Annual Meeting
Developing a Role for 18f-Flurodeoxyglucose PET/MRI in Pediatric Takayasu Arteritis
Background/Purpose: Assessing disease activity is often challenging in pediatric Takayasu Arteritis (TA). TA inflammation may be clinically silent and not always reflected on laboratory or…Abstract Number: 2398 • 2016 ACR/ARHP Annual Meeting
Reaching the Masses: A Novel Approach to Pediatric Rheumatology Education Via Tele-Learning
Background/Purpose: There is a dire need for pediatric rheumatologists in the US, as 11 states and several large cities are without these specialists. Likewise, 40%…Abstract Number: 2399 • 2016 ACR/ARHP Annual Meeting
Waning Hepatitis B Immunity Status in a Significant Proportion of Immunocompromised Pediatric Rheumatology and Gastroenterology Patients
Background/Purpose: Despite a historically robust vaccination program, hepatitis B infection remains a significant public health challenge, and particularly for patients on chronic immunosuppressive therapy. There…Abstract Number: 2400 • 2016 ACR/ARHP Annual Meeting
Clinical and Treatment Factors Associated with Antibiotic-Refractory Lyme Arthritis in Children
Background/Purpose: Few factors have been consistently linked to antibiotic-refractory Lyme arthritis (ARLA) other than premature intra-articular glucocorticoid injections. We sought to identify clinical and treatment…Abstract Number: 2401 • 2016 ACR/ARHP Annual Meeting
Mucocutaneous Lesions and Recurrent Fevers in Patients with Trisomy 8 Mosaicism and Chromosome 8 Duplication
Background/Purpose: Many patients with myelodysplastic syndromes with somatic trisomy 8 in the bone marrow and Behcet’s-like ulcerations have been described. A handful of patients with…
