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Abstract Number: 2419

Needs Assessment and Implementation of a Reproductive Health Intention Screen for Women with Systemic Rheumatic Diseases

Elizabeth Janiak1, Latoya Bartlett2, Joy Gulla2, Bill Albert3, Sonali Desai4, Susan Ritter5, Laura Tarter5, Jonathan Coblyn5, Bonnie L. Bermas6, Wan-Ju Wu1, Caryn Dutton1, Lydia Pace7 and Candace H. Feldman4, 1Obstetrics and Gynecology, Brigham and Women's Hospital, Boston, MA, 2Brigham and Women's Hospital, Boston, MA, 3Power to Decide, Washington, DC, DC, 4Division of Rheumatology, Immunology and Allergy, Brigham and Women's Hospital, Boston, MA, 5Rheumatology, Immunology and Allergy, Brigham and Women's Hospital, Boston, MA, 6Rheumatology, University of Texas, Southwestern, Dallas, TX, 7Division of Women's Health, Brigham and Women's Hospital, Boston, MA

Meeting: 2018 ACR/ARHP Annual Meeting

Keywords: pregnancy and rheumatic disease, Reproductive Health

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Session Information

Date: Tuesday, October 23, 2018

Title: Reproductive Issues in Rheumatic Disorders Poster

Session Type: ACR Poster Session C

Session Time: 9:00AM-11:00AM

Background/Purpose: Among women with systemic rheumatic diseases (SRD), poor maternal and fetal outcomes may occur if disease activity and medication use are not optimized preconception. We conducted a needs assessment of rheumatologists’ potentially modifiable practices around fertility intention screening and contraceptive prescribing. We then implemented an intervention to ameliorate noted gaps in care.

Methods: Using the electronic medical record (EMR) at a large academic medical center, we identified women 18-50 years with SRD and assessed teratogenic medication use, contraceptive use, and obstetrics and gynecology (OB/GYN) care during the year prior to our intervention. We administered a 13-item survey to the rheumatologists to assess fertility intention screening and contraceptive prescribing. We then introduced our intervention, the validated One Key Question® (OKQ), “Would you like to become pregnant in the next year?” to rheumatologists during a rheumatology-OB/GYN Grand Rounds lecture, created an EMR template for OKQ documentation, flagged potentially eligible SRD patients each week in the EMR, and introduced a streamlined referral system to facilitate access to OB/GYN care.

Results: We identified 625 women 18-50 with SRD seen by a rheumatologist ≤1 year prior to OKQ implementation. Of these, 66% received ≥1 medication with known teratogenic risk. Thirty-three percent of these women had any documented contraception and 5% had been referred to OB/GYN in the previous year. We received survey responses from 74% (32/43) of the practicing rheumatologists. While many providers frequently discuss contraception when prescribing a teratogen, few utilize educational materials and almost none provide contraception (Figure). When asked about comfort assessing patients’ reproductive goals, 31% felt very comfortable, 50% somewhat comfortable, and 19% not very comfortable or unsure (Table). Providers cited multiple potentially modifiable barriers to screening, most notably lack of time (63%), lack of knowledge (31%) or not knowing where to refer patients (41%). Within 2 months of implementation, the OKQ has been documented in 58 charts by 11 providers, and 11 patients (19%) were referred to OB/GYN.

 

Conclusion: In this large, academic rheumatology practice, physician comfort with reproductive health was highly variable and referrals for OB/GYN care infrequent. Implementation of a single question fertility intention screen (OKQ) may help ensure that an assessment of patients’ family planning needs and appropriate follow-up are incorporated into their rheumatologic care.

 

 

 


 

 

Table. Reproductive Health in Rheumatology Practice Selected Survey Results (N=32)

 

Response – N (%)

Rheumatologists were asked to rate the following:

Frequency of contraception discussions

 

Very often

14 (44)

Somewhat often

7 (22)

Occasionally/ Not very often/Never

11 (34)

Frequency of pregnancy planning discussions

 

Very often

13 (41)

Somewhat often

10 (31)

Occasionally/Not very often/Never

9 (28)

Comfort assessing patients’ reproductive goals

 

Very comfortable

10 (31)

Somewhat comfortable

16 (50)

Not very comfortable/Not comfortable at all/Not sure

6 (19)

Comfort counseling patients about contraceptive options

 

Very comfortable

5 (16)

Somewhat comfortable

15 (47)

Not very comfortable/Not comfortable at all/Not sure

12 (38)

Barriers to counseling about reproductive goals and/or contraception*

Not enough time

20 (63)

Sensitivity of the issue

7 (22)

Topic is out of practice scope

15 (47)

Limited knowledge about contraceptive options

10 (13)

Moral or religious objections

0 (0.0)

Limited knowledge about medication effects in pregnancy

4 (13)

Limited knowledge about disease activity in pregnancy

2 (6)

Inadequate guidelines

6 (19)

Challenges referring patients

13 (41)

Patients’ limited knowledge about risks

8 (25)

Patients’ limited knowledge/beliefs/myths about contraceptives

10 (31)

Cultural barriers/communication issues with patients

9 (28)

Rheumatologists were asked to rate how influential the following factors are in their decision whether to prescribe methotrexate to a 25 y/o F who declines non-barrier contraceptives

Patient autonomy

 

Not influential at all/slightly influential/somewhat influential

6 (19)

Very influential

17 (55)

Extremely influential

8 (26)

Optimal management of the patient’s rheumatic disease

 

Not influential at all/slightly influential/somewhat influential

2 (7)

Very influential

20 (65)

Extremely influential

9 (29)

Potential risk to a fetus

 

Not influential at all/slightly influential/somewhat influential

4 (13)

Very influential

14 (45)

Extremely influential

13 (42)

Concern for harm to patient related to miscarriage or fetal anomalies

Not influential at all/slightly influential/somewhat influential

4 (13)

Very influential

15 (48)

Extremely influential

12 (39)

Provider legal/malpractice

 

Not influential at all/slightly influential/somewhat influential

12 (39)

Very influential

15 (48)

Extremely influential

4 (13)

*Respondents could choose more than one barrier

 

 

 


Disclosure: E. Janiak, None; L. Bartlett, None; J. Gulla, None; B. Albert, Employed by Power to Decide, 3; S. Desai, None; S. Ritter, None; L. Tarter, None; J. Coblyn, None; B. L. Bermas, UptoDate, 7; W. J. Wu, None; C. Dutton, None; L. Pace, None; C. H. Feldman, None.

To cite this abstract in AMA style:

Janiak E, Bartlett L, Gulla J, Albert B, Desai S, Ritter S, Tarter L, Coblyn J, Bermas BL, Wu WJ, Dutton C, Pace L, Feldman CH. Needs Assessment and Implementation of a Reproductive Health Intention Screen for Women with Systemic Rheumatic Diseases [abstract]. Arthritis Rheumatol. 2018; 70 (suppl 9). https://acrabstracts.org/abstract/needs-assessment-and-implementation-of-a-reproductive-health-intention-screen-for-women-with-systemic-rheumatic-diseases/. Accessed .
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