Session Information
Date: Sunday, November 8, 2015
Title: Systemic Lupus Erythematosus - Clinical Aspects and Treatment Poster Session I
Session Type: ACR Poster Session A
Session Time: 9:00AM-11:00AM
Background/Purpose: Self-management (SM) skills are vital to the physical and emotional health adolescents with systemic lupus erythematosus (SLE). These self-management skills may also affect successful transition to independent self-care. We developed an online educational course for young adults with SLE as well as a social media site where participants could discuss the content of the educational site, or other spontaneous issues, during the 8 week intervention.
Methods: SLE patients were recruited to participate in an 8-week, 8 module online SLE educational course. Participants were randomized to answer questions at the end of each week either in a written journal (control) or on a social media site (SM). Outcome measures were examined in the entire group and between the two groups before and after the intervention. These measures included medication adherence (as measured by the Medication Adherence Self-report Inventory (MASRI) and the Mediation Possession Ratio (MPR)), empowerment processes and outcomes, sense of agency (SOC) and sense of community (SOC), quality of life (as measured by the Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY), and self-efficacy (using the Children’s Arthritis Self-Efficacy Scale (CASE) questionnaire.
Results: 33 SLE patients, ages 13-24, participated in the study. The control (N=15) and SM (N=18) groups were similar in age, race, gender, and disease duration. The overall mean MPR and MASRI were quite high for this group of subjects. The mean MPR and MASRI for all subjects improved throughout the study. All of the secondary measures described, including SOC, SOA, empowerment outcomes, and quality of life, improved over the course of the study as well. Some measures showed a more robust improvement in the SM group, including SOA, SOC, and CASE. In particular, those participants who participated in the SM group had significantly better empowerment outcomes as compared to the control subjects.
Conclusion: We have developed an online education intervention for young adults with SLE, which improves self-management skills. Additional involvement in social media with other young adults with SLE appears to improve empowerment. This intervention would be ideal for a multi-site trial.
To cite this abstract in AMA style:
Scalzi L, Olsen NJ. Impact of Online Education and Social Media Intervetion for Self-Management in Adolescents with SLE [abstract]. Arthritis Rheumatol. 2015; 67 (suppl 10). https://acrabstracts.org/abstract/impact-of-online-education-and-social-media-intervetion-for-self-management-in-adolescents-with-sle/. Accessed .« Back to 2015 ACR/ARHP Annual Meeting
ACR Meeting Abstracts - https://acrabstracts.org/abstract/impact-of-online-education-and-social-media-intervetion-for-self-management-in-adolescents-with-sle/