Evaluation of the Educational Needs in Argentinian Patients with Rheumatoid Arthritis Using the SpENAT Questionnaire

Silvana Karina Pérez¹, Maria Julia Santa Cruz¹, María Alejandra Medina¹, Diana Klajn², Silvia Beatriz Papasidero¹, Jose Angel Caracciolo¹, Gisela Pendón³, Federico Giordano⁴, Dora Pereira⁵, Damaris Alvarez⁶, Valeria Astudillo⁶, Eduardo Kerzberg⁶, Adriana Perez Davila⁷, Analia Bohr⁷, Fernando Melo⁸, Nicolas Lloves⁸, Marta Mamani⁹, Claudia Hartvig¹⁰, Gabriela Sanchez¹⁰, Monica Sacnun¹⁰, Yamila Chichotky¹¹, José Velasco Zamora¹¹, Mariana Benegas¹², Javier Rosa¹³, Maria Victoria Garcia¹⁴, Laura Raiti¹⁵, Vanesa Cruzat¹⁵, Rosana Quintana¹⁶, Bernado Pons-Estel¹⁷, Karin Kirmayr¹⁸, Andrea D'Orazio¹⁹, Cinthya Retamozo²⁰, Olga Romano²¹, Rodolfo Perez-Alamino²¹, María de los Angeles Correa²², Gustavo Citera²³, Oscar Rillo²⁴, María Marta Zalazar²⁴, Ana Carolina Costi²⁵, Mercedes Argentina García²⁵, Graciela Gómez²⁶ and Hernán Maldonado Ficco²⁷, ¹Rheumatology Department, Hospital General de Agudos Dr. Enrique Tornú, Buenos Aires, Argentina, ²Research Committee, Hospital General de Agudos Dr. Enrique Tornú, Buenos Aires, Argentina, ³Hospital Ricardo Gutierrez, La Plata, Argentina, ⁴Rheumatology Department, Hospital Ricardo Gutierrez, La Plata, Buenos Aires, Argentina, ⁵Rheumatology Department, Hospital Ricardo Gutierrez, Buenos Aires, Argentina, ⁶Rheumatology Department, Hospital Ramos Mejía, Buenos Aires, Argentina, ⁷Rheumatology Department, Hospital de Rehabilitación Manuel Rocca, Buenos Aires, Argentina, ⁸Rheumatology Department, Hospital Rivadavia, Buenos Aires, Argentina, ⁹Rheumatology Department, Hospital Bernardino Rivadavia, Buenos Aires, Argentina, ¹⁰Rheumatology Department, Hospital Provincial de Rosario, Santa Fe, Argentina, ¹¹Rheumatology Department, Reumatologia al sur, Buenos Aires, Argentina, ¹²Rheumatology Department, Sanatorio de la Providencia, Buenos Aires, Argentina, ¹³Rheumatology Unit, Internal Medicine Service, Hospital Italiano de Buenos Aires, CABA, Argentina, ¹⁴Rheumatology Department, Hospital Italiano de Buenos Aires, Buenos Aires, Argentina, ¹⁵Rheumatology Department, Clinica Bessone, Buenos Aires, Argentina, ¹⁶Rheumatology Department, Sanatorio Parque, Rosario, Santa Fe, Argentina, ¹⁷GLADEL, Rosario, Santa Fe, Argentina, ¹⁸Rheumatology Department, Sanatorio San Carlos, Bariloche, Argentina, ¹⁹Rheumatology Department, Hospital Interzonal Dr. José Penna, Bahia Blanca, Buenos Aires, Argentina, ²⁰Rheumatology Department, Centro Especializado Diabetes y Reumatologia, Salta, Argentina, ²¹Rheumatology Department, Hospital de Clínicas Pte. Dr. Nicolás Avellaneda, Tucumán, Argentina, ²²Section Rheumatology, Instituto de Rehabilitación Psicofísica, Buenos Aires, Buenos Aires, Argentina, ²³Rheumatology Department, Instituto de Rehabilitación Psicofísica, Buenos Aires, Argentina, ²⁴Rheumatology Department, Hospital General de Agudos Dr. Ignacio Pirovano, Buenos Aires, Argentina, ²⁵Rheumatology Department, Hospital Interzonal General de Agudos Gral. José de San Martín, La Plata, Buenos Aires, Argentina, ²⁶Rheumatology Department, Instituto de Investigaciones Medicas Alfredo Lanari, Buenos Aires, Argentina, ²⁷section of Rheumatology, Clinica Regional del Sud, Córdoba, Argentina, Córdoba, Argentina

Meeting: 2017 ACR/ARHP Annual Meeting

Date of first publication: September 18, 2017

Keywords: education and rheumatoid arthritis (RA)

Session Information

Date: Sunday, November 5, 2017

Title: Patient Outcomes, Preferences, and Attitudes Poster I

Session Type: ACR Poster Session A

Session Time: 9:00AM-11:00AM

Background/Purpose: The SpENAT, a Spanish version of the Educational Needs Assessment Tool, is a self-completed questionnaire that assesses educational needs (ENs) with the purpose of providing tailored and patient-centered information. It consists of 39 questions grouped into the 7 following domains: Pain management, Movement, Feelings, Arthritis process, Treatments, Self-help measures and Support system. The objective of the study was to describe the educational needs of RA patients using the SpENAT and to determine the main sources of information that these patients consult.

Methods: Multicenter, observational, cross-sectional study. We included consecutive patients ≥ 18 years with diagnosis of RA (ACR-EULAR 2010). Socio-demographic data, disease characteristics and clinimetric measurements were recorded. All patients completed the SpENAT and were asked about the sources employed to obtain information about their disease. Statistical analysis: Population characteristics were described. ENs were determined as percentages of the highest possible score for each domain. Needs for each domain according to sex, years of education, duration of disease, use of biologicals and functional capacity were analyzed by means of Anova test, and bivariate comparisons were made with Student’s T test and Bonferroni correction. Correlation between domains was determined with Spearman’s test. ENs were described by geographic region. We compared patients’ age by source of information with Student’s t-test.

Results: We included 496 patients from 20 centers across the country. More ENs were observed in Movement, Feelings and Arthritis process domains (Table). Patients with higher educational level (> 7 years) reported more ENs in Arthritis process and Self-help measures domains. A higher functional impairment (HAQ-A ≥0.87) was associated with more ENs in every domains. Patients with high activity showed more ENs than those in remission in Managing Pain, Movement, Feelings, Treatments and Support system domains; and also than those with low activity in Self-help measures and Support system domains. Patients with moderate activity showed more ENs in Managing pain domain compared to patients in remission. All SpENAT domains showed positive correlations with each other (p <0.0001), being the most important Managing pain/ Movement and Treatments/ Arthritis process (r≥0.7). The most consulted source of information was the rheumatologist (93.95%); those who made use of internet were on average younger (p = 0.0004).

Conclusion: RA Patients were very interested in knowing more about their disease. ENs were higher in Movement, Arthritis process and Feelings domains. High functional impairment was associated with more ENs. Patients with high disease activity had higher EN levels in almost every domain. The rheumatologist was the main source of information of the patient with RA.

EN in RA patients according to the domain (N=496)

Pain management

Movement

Feelings

Arthritis process

Treatments

Self-help

Support system

Median

(IQR)

79.17

(70.83-91.67)

(75-95)

81.25

(75-100)

89.29

(75-100)

78.57

(71.43-100)

(70.83-93.75)

(62.5-93.75)

Disclosure: S. K. Pérez, None; M. J. Santa Cruz, None; M. A. Medina, None; D. Klajn, None; S. B. Papasidero, None; J. A. Caracciolo, None; G. Pendón, None; F. Giordano, None; D. Pereira, None; D. Alvarez, None; V. Astudillo, None; E. Kerzberg, None; A. Perez Davila, None; A. Bohr, None; F. Melo, None; N. Lloves, None; M. Mamani, None; C. Hartvig, None; G. Sanchez, None; M. Sacnun, None; Y. Chichotky, None; J. Velasco Zamora, None; M. Benegas, None; J. Rosa, None; M. V. Garcia, None; L. Raiti, None; V. Cruzat, None; R. Quintana, None; B. Pons-Estel, None; K. Kirmayr, None; A. D'Orazio, None; C. Retamozo, None; O. Romano, None; R. Perez-Alamino, None; M. D. L. A. Correa, None; G. Citera, Novartis, Pfizer Inc, 2,AbbVie, Bristol-Myers Squibb, Janssen, Novartis, Pfizer Inc, 5; O. Rillo, None; M. M. Zalazar, None; A. C. Costi, None; M. A. García, None; G. Gómez, None; H. Maldonado Ficco, None.

To cite this abstract in AMA style:

Pérez SK, Santa Cruz MJ, Medina MA, Klajn D, Papasidero SB, Caracciolo JA, Pendón G, Giordano F, Pereira D, Alvarez D, Astudillo V, Kerzberg E, Perez Davila A, Bohr A, Melo F, Lloves N, Mamani M, Hartvig C, Sanchez G, Sacnun M, Chichotky Y, Velasco Zamora J, Benegas M, Rosa J, Garcia MV, Raiti L, Cruzat V, Quintana R, Pons-Estel B, Kirmayr K, D'Orazio A, Retamozo C, Romano O, Perez-Alamino R, Correa MDLA, Citera G, Rillo O, Zalazar MM, Costi AC, García MA, Gómez G, Maldonado Ficco H. Evaluation of the Educational Needs in Argentinian Patients with Rheumatoid Arthritis Using the SpENAT Questionnaire [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 10). https://acrabstracts.org/abstract/evaluation-of-the-educational-needs-in-argentinian-patients-with-rheumatoid-arthritis-using-the-spenat-questionnaire/. Accessed .

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